Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Having a stressful day today. Had my pre chemo consultation by phone today. Went well with lots of information given about what to expect.  However, I did forget to mention about some niggling breast pain I've been having. They come and go, sometimes slightly shooting pain. Did phone breast care nurses last week, who said probably due to all the biopsies I had. They were done a few weeks ago, so wondered if pains would only start happening in the last week. So annoyed with myself, even had it written down. I know I can mention on Monday, but will now have to go through two more days of stress!!

  • Hi Pippin 24, I think every little niggling pain is a worry when you're in the position that we are, try not to worry hopefully the chemotherapy will start to work killing all of the harmful cancer cells,  hope everything goes well for you on Monday,   I'm anxious at the moment waiting for my PET scan results on Friday the 8th xx

  • Good to hear you are having the port fitted.   It will hopefully make things easier for you 

    xxx 

    I have found my body is craving nutrients.  Soups vegetables avocado.  I’m just trying to give it what it needs right now xx 

  • Pleased to hear all gone well xx 

  • Hi , I'm glad all went well for you. I contacted macmillan nurses today, who told me priority goes to people who've had things like lymph nodes removed both sides, which is fair enough. She said I could still consider having a PICC line if I wanted to. I declined the PICc and said I'd rather stick with the canula. A little time later I received a message to say port had been ordered and shouldn't be too long, so hopefully this is the case. Xx

  • Sorry to hear the effects you've been getting with the injections, good job you only have 2 to go. I have 3 to go, but so far haven't had any problems. I have had a bruised feeling around one of the breast lumps which is a concern. I contacted someone today who said it's probably something called tumour flare, which can happen. Hopefully that's all it is, unfortunately always something to worry about. I have also had some tiredness, but not too bad and just nap when I need to. Xx

  • I am pleased things are going well for you with minimal side effects.  I can imagine feeling anything in the breast area would cause worry.  It’s understandable and it is something I have often thought / worried about -  every little niggle and does it mean the worse.  I like you am napping when I need to xx I am at hospital tomorrow for PICC flush so get to check in with chemo team then xx 

  • Hi NGS, hope all goes well at the hospital today. It is a good opportunity to chat to chemo team about any concerns or worries you might have. I'm making a note of any I want to bring up with Dr, during phone call prior to next chemo. Will perhaps ask for something for constipation and maybe a mouthwash. My tongue is slightly sore and looks a bit strange. Sleeping reasonably, although awake early this morning. Have ache in lower back, could be to do with the infections. Hope things for you have improved as the week has gone on, after such a difficult start. Xx

  • Hello Pippin, oral thrush is quite common when you have treatment ,you said your tongue looked odd . Yes , get onto your Gp for some Canastan possibly xx

  • I have chlorhexidine mouthwash.  I initially received some in a free cancer care kit but after my first 12 hours in A and E the hospital advised to use this 3 times a day.  It seems to be working so far.  managed to order on Amazon.  
    last injection today.  Cannot come quick enough.  Hopefully things will settle then for a bit before next treatment. 

    xxx 

  • *injections (really must stop typing the dark!)

  • It does look a bit white, so you could be right. Will get onto gp about it if it gets any worse. Xx

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