Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

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  • Having a stressful day today. Had my pre chemo consultation by phone today. Went well with lots of information given about what to expect.  However, I did forget to mention about some niggling breast pain I've been having. They come and go, sometimes slightly shooting pain. Did phone breast care nurses last week, who said probably due to all the biopsies I had. They were done a few weeks ago, so wondered if pains would only start happening in the last week. So annoyed with myself, even had it written down. I know I can mention on Monday, but will now have to go through two more days of stress!!

  • Hi Pippin 24, I think every little niggling pain is a worry when you're in the position that we are, try not to worry hopefully the chemotherapy will start to work killing all of the harmful cancer cells,  hope everything goes well for you on Monday,   I'm anxious at the moment waiting for my PET scan results on Friday the 8th xx

  • It’s so hard when it affects others which inevitably it does, kids, family, husbands, friends..thats super hard. My husband actually had prostate cancer 2 years ago and it was really hard being the carer or the one who wasn’t ill and seeing someone I love going through that…trying to be positive all the time, keeping the house running and supporting him emotionally…so I totally understand how my Husband now feels as the shoe is now on the other foot! Clearly I didn’t want him having all the limelight!! It’s hard when you know others are worrying - I hate that part. BUT I hope it also makes you realise how much you are loved and that’s very special and heartwarming. They’ll be ok…as will you be!

  • Thank you for your kind words and putting things into perspective you've seen things from both sides , hoping and praying we can get through this xx

  • I am quite pleased with how things are going so far. Think most of us will have struggles during one part of our journey or another. Good to have a site like this to share our experiences. Think there will always be niggles and worries about things moving forward, to be expected after going through so much anxiety I suppose. Keep me posted on how things are going for you. Xx

  • Hi NGS, just wondered how you have been feeling?

  • How are you doing today Pippin? Hope you're still managing to cope well. Are you still feeling ok? Really hope so!

    and yes hope you're doing ok too NGS...Big hugs to you both. xx

  • Hi Greeny80, I'm doing great thanks. Now finished all my anti sickness meds, so just on injections now. So far have had minimal side effects, slight sore throat and a little constipation, also a little tiredness at times. I have been napping a bit some afternoons and in the evening. Hope you're feeling OK at the moment, I know it's not long until your chemo starts. Hopefully you're feeling ready and prepared to beat this thing. Xxk

  • So happy to hear you’re doing well still! That’s great…and it’s good you’ve have time for some naps and rest. Your body will be working overtime internally! 

    im doing well. I’m having my port inserted tomorrow and then yes I start a week on Tuesday. Feeling positive and will just try to take one day at a time and really hope I can get away with relatively light side effects!…but I think I’m feeling as ready as I can be..

    Hope the treatment continues to go well

  • I didn't realise you were having a port, please let me know how it goes. Mine has been agreed, but still no date yet. Going to contact someone tomorrow to try and chase it up. If it's not done before next cycle, not sure it'll be worth having done. Good luck for tomorrow. Xx

  • Hi Greeny,

    I'm glad to hear that your port is being fitted and that you will then be all ready for your chemo to start next week. I hope that you get through your treatment with the minimum of side-effects.

    Please keep in touch and let us know how you get on. As you know, we are always here for you.

    Kind regards,

    Jolamine xx

  • Hey Pippin, Just back from theatre and now the proud owner of a port!! It was all very painless and quick..really hope you get a date soon. You’ve got another 2 weeks until your next round don’t you? 
    Hope you’re feeling ok again today. Xx

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