Hi Pippin24. Thank you so much for sharing this thread. It has been really helpful. I was diagnosed on Saturday with Stage 3 Tripple Negative in the left boob. I have had a MRI this week and meeting with oncology Friday. (Feeling very nervous and overwhelmed). I really hope everything goes well for you, and if you feel you can please keep us update.

Hi MadhatterC, so sorry to hear about your diagnosis, it is a scary time. It sounds like things are moving forward quickly for you, as your MRI and oncology appointment are so soon. I was diagnosed on 18th January, had MRI and CT scan straight away. Had to wait a couple of weeks for oncology appointment, and also for treatment start date. I think it's all the waiting that is so stressful, but I know it's important for them to gather all the information, before deciding what treatment will be needed. My chemo is first with Herceptin (Im HER2 positive) followed by radiotherapy, then mastectomy, Will then be on hormone blockers for 5-10 years. Do you have any idea yet what order your treatment will be in?

Hi Pippin24, all I know at the moment is Chemo, surgery and radiotherapy. There is also a genetics test true to being triple negative. 

Hope you don't have too long to wait. Always here for a chat. Xx

Hello Pippin, glad to hear the side affects are ok, it is very frustrating when you want to sleep but you can't. I can recommend podcasts and audiobooks. 

I had my first Oncology appointment today. The size has increased go 7.2cm now and they are worried about lumps on the lymphomas. So now booked in for a full body and head ct scan next week. Chemo will start on the 26th March. It 4 3 weeks cycles of carboplatin, paclitaxel and also Zoledronic acid and the  straight on to EC and paclitaxel for another 4 3 week cycle. Also been told.i will have a picc line and a wig referral. Feeling like life sucks big time at the moment. But I am pushing myself to try and remember how lucky I am with my beautiful daughter and my husband is really trying his best bless even though I am very agitation today. 

But any tips on what I should start to be buying and packing to take with me. Please shout. X

Hi MadhatterC, good to hear you now have a date for chemo to start, I felt better once I new a date. When I went into chemo suite , the guy asked me if I was moving in! I had a small holdall which contained, blanket (which I didn't actually need), kindle, phone, headphones. Also took water and a few snacks. Good that they are doing a full body and head scan, I had these too. They did find a couple of nodules on my lung and a cyst on my liver. They didn't seem too concerned though, as said they've seen a lot of nodules since covid. Going to re scan in 3 months, so obviously still a worry in the back of my mind. Great that you have a lot of support, I too have a good support system. I've been told my request for a port has now been agreed, so just waiting for a date. I'm hoping it will be before next treatment. If I have to wait too long, it won't seem like it's worth bothering to have it done. Good luck with the picc line and choosing your wig. I felt a lot better once I had my wig and hats at the ready. Please do keep in touch to let me know how you're doing, feels less lonely when sharing experiences. Xx

HI Pippin,

I'm delighted to hear that your your request for a port has now been agreed, although it would have been better if this could have been done before your chemo started. I hope that you get it soon, before it becomes a pointless exercise.

Kind regards,

Jolamine xx

Hi Jolamine, it was really good to hear that the port has been agreed. But unless it's put in before next treatment, I'm not sure it will be worth going through it. They said if I didn't hear something within a week I should chase it up, so might give a ring on Monday. Feeling quite good so far, with no sickness. Have been quite tired, but more to fo with sleep loss due to hot flushes and coming off hrt. Having a few constipation issues also, so might  seek advice on this fairly soon. Have been going for a walk daily and feeling quite positive, with how it's going so far. Early days I know. Xx

Hi , I have just been reading back over this thread, as it's always useful. Noticed I made a  mistake on order of my treatment. Like you mine is chemo, surgery then radiotherapy  xx

Hi , I have just been reading back over this thread, as it's always useful. Noticed I made a  mistake on order of my treatment. Like you mine is chemo, surgery then radiotherapy  xx