Hi Suze, I'm sorry to hear about your diagnosis, it is a scary time. It's good to talk to others on this site and share worries and concerns. I'm 61 and was diagnosed with breast cancer on 18th January. Had all the usual tests and now waiting for oncology appointment on14th February. Will be on chemo and Herceptin, then mastectomy, followed by radiotherapy. I wish you well on your forward journey always here if you need to chat. Xx

Hello Pippin

Thank you so much for your message especially as you are on a similar path to me but a bit ahead. Now you have some idea of your journey, did you get all the information you needed at your diagnosis and did it help to have your treatment pathway explained ? I'm told that the waiting to know that  is one of the hardest parts - my sister says I'm a control freak (meant in a nice way though) and not knowing or being able to plan things is part of why I'm so very anxious. 

I hope all goes well for you at your next stage and would really love to hear from you again, such messages are a lifeline for me from someone who is on a similar pathway.

Sue xxx

At appointment when I wad told I had breast cancer, they weren't able to say exactly which way round treatment would be. Initially I thought it would be surgery, possible chemo and then radiotherapy. However, results came back that I'm HER2 positive, also apart from 2 lumps, cancer cell have been found in other tissue in the breast. Was then told chemo first with Herceptin (apparently the wonder drug), full mastectomy, then radiotherapy. I am seeing oncologist on 14th February, to find out what chemo I need and for how long. Not sure how long it takes from this appointment, to actually starting any treatment. I'm still waiting for ct scan results to see if it's spread (nervous about this one) and further biopsies. Hope this doesn't delay start of treatment. The waiting is definitely the hard bit, think I'll feel better once treatment has started. Sorry, to hear your son also has cancer issues and is so far away. Would be nice if you could facetime or just chat on the phone, he'll know what your going through. Would be happy to post updates and share experiences on this journey. I hope you get some more answers very soon. Xx 

Dear Pippin, thank you so much for sharing, you must be so anxious, at the moment you only know so much. You sound so articulate and strong, a real example to me. I'm having a bad day and dont want to call friends/my son (he does know and has been very supportive) as theyve heard it all and can't really add anything, despite wanting to be there for me. Hearing from you is such a help, please do let me know your progress, post updates and share as often as you like, I'll be here and thinking of you. Sending love xx

Thank you. You could also call your care team for support, the nurses are so lovely. I'm actually going to phone today as having a bit of a panic, after reading some of the literature I was given. I am so anxious about ct scan results, the waiting driving me mad! Xx

I'm the same I had my pet scan on Thursday and I'm so terrified of what it's going to show , can't sleep or constraint on anything , I've my lung biopsy on Friday , I know exactly what your going through , sending love and hugs x

Thank you DEF, I've just phoned and left a message for my breast cancer nurse, hopefully they will be able to give me a bit of reassurance. Just need my ct scan results to confirm that it hasn't spread anywhere else.. I hope you don't have to wait too long for your results either, the waiting is just awful!

Hi pippin did U get any answers , hope your feeling a bit more positive , I've had a terrible teary day ,I want to stay positive but until I know all results I'm finding it so hard , ,I pray you have got the best results possible from your nurse x  

Hi DEF, it's been an emotional couple of days. MDT meeting today discussed my scan results and Breastcare nurse phoned me this afternoon. My scan show no evidence of secondary breast cancer, which is such a relief. There was a couple of small nodules on my lung(apparently not uncommon) and a small cyst on my liver, which they're not concerned about. They will re-scan me in another 3 months. The second lot of biopsies they did last week on breast tissue shows low grade cancer cells. This makes no difference as having a mastectomy rather than lumpectomy. Must admit I did have a good cry today, but now feel much better. Hope to get a better night's sleep than last night.  Next step is oncology appointment 14th February, hopefully will find out when treatment is expected to start. Hope you get results on your PET scan soon, it is so stressful waiting for results. Hope all goes well with your biopsy on Friday, please let me know how it goes. Xx

Hi DEF,

I shall be thinking of you on Friday and I hope that all goes as well as it can.

Kind regards,

Jolamine xx

Hi DEF,

I shall be thinking of you on Friday and I hope that all goes as well as it can.

Kind regards,

Jolamine xx