Cmml

I have recently been diagnosed with CMML it came as a massive shock as I've always felt quite healthy , the only thing I've ever had was appendicitis, it was only found during a blood test , I find myself waking in the middle of the night wondering how is this going to affect my life, although I'm 71 years old I am quite active and enjoy gardening, walking, and I'm wondering if this is going to shorten my life , its worrying me more that I would like to admit 

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  • Hi  I was diagnosed with cmml in April 2021

    I'm still in shock lay awake at night wondering what's going to happen.

    I was offered no treatment am on " watch and observe" program .

    Have bloods checked periodically.

    I'm told it's a slow growing cancer.

    Although  only diagnosed two years ago specialist said I've probably had a lot longer 

    I'm 71  

    Just plodding on lol

  • Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

  • Hi strawbs sorry to hear about your appointment cancelled, they didn't say why? I get my results 18 may hopefully no changes ,fingers crossed, exiting news about your daughter, congratulations, well stay positive and take care xx

  • Hi strawbs just a quick catch up hope your well ,any news on your cancelled appointment,  went for my blood results Monday, no real change ,just the same questions, bruising, bleeding etc, I've non of that so no problems there , so hope you are well , keep safe xx

  • Hi Amisparticus.

    Hope your well.

    Got an new  haematology app last week 

    Went for bloods 

    Results show they are stable so all  . X x

  • That's good news ,well done , hope everything is well with you and your family, I'm well just hoping for a bit more good weather look after yourself take care xx

  • Sent a private message.

    Don't know if you got.

    Had bloods etc Tuesday and all stable.

    Hope your ok X X x

  • Hi strawbs got your message, good news your bloods all stable ,I've a blood test end of September, keeping my fingers crossed but I feel ok no bleeding or bruising so hopefully everything is okay, how are you keeping otherwise, have you still getting trouble with your chest infection,  how are your family all good i hope, im off to France for a week soon, never been to France looking forward to it, hopefully the weather is good, well take care keep well xx

  • Hi Amisparticus.

    Haven't heard from you for awhile.

    Did you have your bloods checked in September?

    Hope all is good with you.

    Take care

    Julia x x

  • Hi strawbs sorry I haven't been in touch , I'm good, I did have a bit of a chest problem but the doctor said it was just muscular problem, but everything is good now, I got the results of my blood test, the doctor actually phoned me which worried me for a minute but he said it was good news my blood count had actually gone up, so I pleased with that, he didn't give me any specifics, just asked the usual questions, bruising, bleeding, how my energy levels were ,but I feel pretty good, sometimes I get a bit tired late afternoon but I just pack up anything im doing and leave it for another day, how are you keeping, when are your blood tests due, did your chest infection clear up ok, I'll not leave it so long next time, take care xx

  • Hi strawbs how are you keeping, hope you had a good Christmas  haven't heard off you for a while hope you are well, did you get my last post,about 2 months ago? We had a nice quiet Christmas nothing too stressful, as I said my bloods were up doctor was pleased so was i ,but I seem too run out of energy if im doing anything like lifting or carrying stuff, let me know how you are ,have you blood tests booked, mine booked for April, hope to hear from you soon, take care xx

  • Hi Ampispartacus did reply to your previous text think I sent via email not on cancer chat site.

    I've just done the same and when logged on here my message not here.

    I'll write again

    Was in bed Christmas day.

    First time I've never had a Christmas dinner on Christmas day

    Picked up a virus couple weeks ago and can't shift.

    Started antibiotics so hoping for an improvement.

    Glad you had good Christmas 

    Hope 2026 will be a good year for you and family.

    My next bloods in March.

    Take care X X x

Reply
  • Hi Ampispartacus did reply to your previous text think I sent via email not on cancer chat site.

    I've just done the same and when logged on here my message not here.

    I'll write again

    Was in bed Christmas day.

    First time I've never had a Christmas dinner on Christmas day

    Picked up a virus couple weeks ago and can't shift.

    Started antibiotics so hoping for an improvement.

    Glad you had good Christmas 

    Hope 2026 will be a good year for you and family.

    My next bloods in March.

    Take care X X x

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