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Her2 positive

GOLDILOCKS
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Hi 

I have just had a lumpectomy 1cm lump found , operation was a success and all markers fine apart from her2 positive. 

I have looked at statistics and with chemo the difference is 2 per cent , I am so undecisive as to what to do as really what I need is herceptin  I believe but I am not allowed to have this without chemo.

My head is telling me one thing and my gut telling me another

I would like to hear from people with the her2 positive diagnosis who 

1 had chemo 

2 who decided not to have chemo 

As with or without there are still no guarantees 

I have been researching and still keep coming back to the 2 percent on the statistics 

Undecisive if one of the nurses could also comment  I would appreciate  it. I've had so much information  in such a short space of time and my care has been the great from NHS,  just this decision is a very hard one .

Thanks 

Parents
  • Offline

    Hello,

    I was Her2+ ....for me personally I really needed to know I had everything possible to avoid reoccurrence. 
    lumpectomy

    chemo

    herceptin

    rads

    hormone inhibitors 

    bisphosphonates

    Of course I do realise this still may come back but at least I'll never look back and wonder if I could have done more.

    Good luck in your decision making love, I know how hard it is x

Reply
  • Offline

    Hello,

    I was Her2+ ....for me personally I really needed to know I had everything possible to avoid reoccurrence. 
    lumpectomy

    chemo

    herceptin

    rads

    hormone inhibitors 

    bisphosphonates

    Of course I do realise this still may come back but at least I'll never look back and wonder if I could have done more.

    Good luck in your decision making love, I know how hard it is x

Children
  • Offline in reply to Marlyn

    Hi 

    Thank you for your reply , the decision was taken out of my hands and I will not be having chemo as my heart was below the recommended  percentage by one so decision made , I do feel relieved and my son who has been my rock is happy that I am not going through the chemo as he attended every appointment. 

    I feel so much better today catching up on some sleep and await my bone density and radiotherapy  appointments  

    I know it can return at anytime ,

    Good luck and thanks again for your reply 

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