Today the hospice nurse visited!

It was with mixed emotions that I saw the hospice nurse today.  

As I live alone I have decided that I will end my daysin the local hospice and the wonderful nurse was so helpful.  She will be coming back next week and has given me homework - put my affairs in order by the time she comes again.  She is organising prescriptions for all the things I now have to buy myself, a wrist alarm in case I need help, visits to complementary therapies at the hospice and attendace allowance.  She said I can go to their daily get togethers where they do art classes etc with lunch.  She put my mind at rest with the pain relief saying that if it gets too bad they will take me in for a week and sort me out.

I just have to say how relieved I am, and can now stop crying wondering what was going to happen to me.

  • Pauline big hugs sent to you.   I hope they sort your pain relief out soon.

    River xx

  • Darling, I am so sad and upset for you, knowing that you are frightened of what is happening, but I think you will be much more comfortable and safe in the hospice.  I hope a bed is available soon and that you will only be in for a while.  I know that you are in a very dark place at the moment, dear Pauline, but be assured that I am with you in thought like all these other ladies on here, and hope you can feel our love coming to you.  God bless.  

    Hazel xxx

     

     

     

     

  • Hi Pauline

    Know this is never an easy time as 'facing the inevitable' as you put it is something we would rather not have to think about.  What I will say is that to be the most comfortable you can be and have caring and knowledgable staff to support you should make it just a little easier and you will not be alone.  Both my Dad and my best friend found such peace when at the hospice both for pain relief and towards the end of their illnesses (my best friend visited our local hospice many times during her long journey and called it her holiday home! (she had a wicked sense of humour)).  There were no restrictrictions of family/friends visiting (unless you asked not to be disturbed). As many use hospices for respite care I hope you will soon be offered a bed to  help you manage your symptoms and in the meantime your forum buddies are here to listen any time you want to chat.  Sending a big hug to a brave lady and keeping you and your family in my thoughts. Jules xx

  • Hi Lorraine, 

    thank you for your kind, insightful words. There are certainly days when I feel 'less brave' 

    My pain relief regime is constantly being monitored amd adjusted and I feel very supported by my palliative care team. It goes without saying that the support on the forum is also another great source of comfort and it's lovely to see 'old forum buddies' pop up to say hello. 

    I hope you're as comfortable as you can be as I know you have your daily challenges to contend with. 

    Take care, sending hugs across the miles, with love, Jo xx

  • Dearest Pauline, 

    I'm certain a spell in the hospice will be beneficial, not only from a pain relief point of view, but also there will be staff (physios) who will be able to help you with your other difficulties. 

    I hope you can feel the love and support coming through on your thread. We're all there for you and hope there will be a bed soon. 

    Take care lovely forum friend, sending love and hugs, Jo xx

  • Jo, I do hope you are managing.  You must be going through so much.  As soon as there is a bed at the hospice I will go because living a life full of pain isnt living is it.  I am glad that you seem to be getting lots of help. I think the hospice staff have more experience of cancer pain and therefore more able to help.  

    Yes, Jo, I can always feel the love and caring from people on this forum,its part of what keeps me going.

     

    Love and prayers to you. xxI

  • Hi Pauline,

    I agree 100% with what you said about hopsice's being good at pain relieife. They got my mothers sorted in no time at all. The hospital kept giving her painkillers that made her feel far worse whereas the hospice got it right first time. Plus the care was far better as there were more nuses. Whem My mother was in hospital, the nurses were ioverworked and she didnt get her meds on time but in the hospice it was so differnt.

    Take care brave lady; sending big hugs, Brian.

  • Hello, Pauline, the love is still coming your way, bless you.

    Hazel xxx

  • Hi, Hazel, thank you so much.  I told everyone not to visit yesterday as I was going to make sure I took ALL my pain meds and sleep all day.  My daughter popped in a couple of times, quietly, but other than that I did sleep a fairly pain free day.  Up now waiting for my daughter in law and hoping meds work soon.

    Sadly the cancer has taken a turn for the worse and I will need a scan very soon.  Bit frightened now but the hospiceis there and they make me feel safe.  You are right Brian, I didnt get my medication on time in hospital and it made the pain worse by stressing me out waiting for hours.

    Love to all and I hope you are all managing your battles well.  Prayers said for everyone.  x

  • Hi Pauline

    Pleased that you managed a good pain free sleep and that your current medication is helping. Hopefully the hospice nurse will be able to keep a good eye on your pain relief.  The palliative team that visited hubby were very on the ball if hubby mentioned breakthrough pain as they were concerned that this should not be happening.  They found a level of medication that kept him pain free as long as he took it regularly and he had liquid morphine available for top up as and when required (thankfully rarely need this) but did sleep a great deal which gave him respite from the underlying concerns surrounding his illness.

    Sending love and prayers your way and in my thoughts.  Jules xxx