Hi Pauline, I'm so sorry for all that you're going through. I know you are having a really rough time of it and living alone certainly adds to the challenges you face. Just know that all of us here on the forum are keeping you in our prayers and certainly wish you some peace, now that you have some meds to help out somewhat. Try to be kind to yourself in as much as that is possible and arap yourself in the love and caring that we send to you every day.

Sending hugs

Lorraine 

Hi Jo, your courage is an inspiration to all of us, but I'm sure there are many days when you're not feeling as brave as it appears. Many of us here know the struggles you face each and every day as many of us are on the same road, albeit at different levels. I think you were one of the first forum members to respond to me when I first joined this forum and your warm welcome meant more that you will ever know. Be kind and gentle to yourself and I hope those around you will be also. Many of us here have come to know you, not in person of course, but certainly from our conversations on here. Just know that you are in our thoughts and our prayers.

Take care my friend and sending you love and hugs.

Lorraine

Hi, all, well I am coping a bit better pain-wise at the moment but still have body tremors and incredible weakness in my legs.  Does anyone know if this is a normal occurance. I did spend 6 weeks in hospital, hardly moving because of so much medication,  I wasn't eating and my blood sugar (I have type 11 diabetes) went quite low for me,  4 - 5.  My hospice nurse said the tremors can sometimes be caused by diabetes.  The weakness is something I don't know if I can get rid of by trying to walk a bit, but I am scared of falling, something I have done a few times and then cant get up. I have lost 4 stone now and thought I would be able to cope better, having been quite overweight before.

Thanks for reading all this waffle but I trust your ooinions,. Thank you. x

Hi Pauline

You are one amazing lady and Iam pleased that the medication is helping with your pain.  Really cannot answer question as to whether the tremors are normal or not as no medical knowledge but I would imagine after spending so long confined to a hospital bed it would be natural to feel extremely weak.  Have  you spoken to your hospice nurse about your concerns. One thing I do know about Type 2 Diabetes (my Mum has it) is that nerve endings can be extremely sensitive and when you lose weight sometimes any medication you may take needs adjustment.  When my hubby got really weak he got wobbly and needed to hold on to move around indoors, used a stick outside (though it took a friend to persuade him!) and would have coped a little better if he had used a frame (with seat for resting) to help support himself.  I am sure you are still recovering from the extended hospital stay and virus but hope  you will see little improvements day to day.  Sending hugs and you can waffe all you like - we all do at times  ha ha.  Jules xx

Hello Pauline, 

I am so pleased that the new meds are helping with the pain.  As Jules said, you are bound to have some muscle weakness after your long stay in bed in hospital, added to which you have not been able to eat properly.  Please don't be cross with me but I'm going to suggest that you ask the nurse if you could stay at the hospice for a while until you are safe on your feet - they may have a physio there who could help get you moving again. I don't know how hospices work, but I can't bear the thought of you being on your own and falling over when you have been so brave all this time.   Maybe Jo (meerkat) could advise on what the hospice can do?  

Please take care, Pauline, you are always in my thoughts.

Love, Hazel xxx

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Hi Pauline,

We havent spoken for a while but I have been reading this thread and like the others think you are a very brave lady.

I think Hazels Idea is a good one. My mother went in a couple of times to a local hospice and they were absolutely briliant. They sorted out her pain care where the hospital couldnt. She was a bit reluctant to go in the first time as I feel she was worried she might not get back out. But hopsice's do let people in for short time care to sort out pain or to help with mobility problems. Please do ask your hospice nurse.

Hope you dont mind me writing this but like Hazel feel you should not be on your own until your feeling more mobile. Best wishes and kind thoughts being sent to you by first class post ha ha, Brian

Hello Pauline,

How are things with you now sweetheart?  Sending my love and hugs and keeping you in my thoughts as ever.

Hazel xxx

Hi  Pauline, I know this is a really difficult time for you. I wish there was something I could say to comfort you, but I know under the circumstances, the reality is there that all of us will face one day, some of us sooner rather than later. My heart goes out to you. I pray that the days ahead for you will be peaceful and that your pain will be under control. Just know that all your forum buddies are out here wrapping you in our virtual arms and holding you close. Whenever you feel up to it, come on here and gather strength from us here to help you through this next chapter in your journey.

Sending you hugs and prayers.

Lorraine  

Hi Pauline I'm sure I speak for everyone when I say all I want to do is make you better and free of pain. The nurses and doctors must realise you need to be taken in and see how things go. I really hope the pain can shift and you can relax. I honestly can't imagine what your going through but I hope you know I'm here for you and so is everyone else. If I could swap bodies with you for a little while so you could even feel better I would without thinking. It upsets me that your frightened but your such a strong woman and I have no doubt about that. Your in my thoughts dear. Take care Pauline -Diane xx