GP is ringing her tomorrow morning....letter just says he needs to discuss some test results with her. Bless her she says she is starting to get breathless again, I hope it isnt the fluid building up again. Mind you chances are it is I suppose.

Jacci

Hi

Have just caught up with your thread (internet access has been up and down).  Wish you and your Mum all the very best for her next appointment/discussion with the doc. and hope she can have a peaceful Christmas and be kept pain free.  (My hubby has cancer of the lung membranes  and I am aware of the breathlessness /pain problems that your Mum will be experiencing).  Do hope she can give her doc permission to discuss things with you which may make it easier for you to help her through any discussions that take place.  I usually go with my hubby for his hospital appointments (he knows only too well what is going on as he wanted to know right from the beginning(but does not find it easy to talk about from a very emotional point of view - diagnosis was nearly two years ago now and he has palliative care involving pain relief/regularly check ups)  as he prefers not to discuss things more than is necessary.  The only thing I would say is to take a notepad/pen both with the questions you/your Mum may have and also to jot down anything the doc may say so that you can refer to it afterwards (I find it helpful as very often its hard to take it all in at the time).  The forum is a very supportive place and its a good place to offload anytime you need to share your thoughts/emotions.

Take care.  Jules54

Your welcome jacci, mine was primary chondrosarcoma

In my thigh ive had half my thigh bone taken

Away. You are the first person I've met when

Has had it. How are you now? Xxx

Mine was as well...Conxultant was very surprised as he has never met anyone with it in their distal ulna, it was a grade 1 so I was very lucky..I had it removed and a bone graft put in, I had it done in feb 2012 and yep Im fine, next check up in Feb, how are you?

Jacci x

Me I had half my thigh bone taken away with 11cm tumour

They replaced it with wires 20cm plus plate and 9

Pins . At the moment I can't walk and is going to

Be a long recovery I've been told. I have check ups every

Two months at moment until all healed then every

3 months. Where do u go for ur check ups?

I go to oswestry bone cancer tumour unit.

It's so nice to speak with someone who has been

Though what u have. ( I mean it in good way ) although

Wish it wasnt about cancer. This disease is very evil

And is like a roller coaster ride. I'm so glad you have recovered

And thank you for talking to me about it.

Hugs

Bless you,its not been easy for you has it Hun. Im fine cant put my weight on it but other thasn that have full mobility. I broke my wrist trying to open a window at work and it was found...turned out  when they looked at my xray I had been suffering stress fractures for prob years but I didnt know. I was fortunate I get private healthcare through my work so had it done privately. I still had to travel from Sussex to Herts to have it done, as you know there are not many Consultants that deal with it.

My man is quite confident it shouldnt come back, he has told me it wont spread and it wont kill me so I have to believe him. Hate the check ups because you cant help but worry then. I would rather mine came back though than to see my Mum suffering like she is...It would only be another op for me.You are right though its nice to speak to someone else as its so rare..about 80/90 people are diagnosed each year in UK with chondro I believe.

You take care and I hope your recovery goes really well, talk to me whenever you like Hun.

jacci xxx

Aw thanks Hun , I'm here when ever you want to

Talk , I do hope and pray your mum has some good

News at her appointment and she feels better soonx

Thanks Sunshine and I really hope all goes well for you too.

Jacci x

Hi Jules,

Sounds like you had a lovely time, you and your hubby deserved to be spoiled. It's all over so quickly though. My Christmas was all about making memories as well! although muy Mum wqas feeling too ill for Christmas dinnershe did enjoy present opening and lots of Christmas tv. My first stab at cooking Christmas dinner for myself and my dad wwent very well so I'm feeling a little pleased with myself !

Wishing you and your hubby all the best for the new year.

Helen xx

Hello Jacci,

I'm sorry to hear that your Mum is in hospital. She will be well looked after though. Make sure you are looking after yourself and that you get yourself properly better before you go rushing around! This journey is a rollercoaster and I remember how daunting it is being at the start. If it's any comfort I can promise that there are good days as well as bad one and small things you and your Mum do will be 100 times more special.

Take Care and feel free to moan anytime you want :-)

Helen xx

Thanks Hope, feel much better today, the only positive I can take from all this is that Mum and I had a bit of a strained relationship. TBH she often didnt want me to visit and I could never understand why. This rotten thing has already made us much much closer, and I do have

some lovely memories from Xmas.

Take care.

Jacci x

Hi jacci

How is your mum doing? Is she in hospital ?

How are you coping ?? Xx

Hi jacci

How is your mum doing? Is she in hospital ?

How are you coping ?? Xx

Hi, she is waiting for the ambulance now, she decided to wait as long as she could as she knows they dont really have drs there at the weekend.I will go and see her tomorrow after work. Im coping but obviously extremely worried about her. I cannot believe this fluid has built up again so quickly. Bless her she is a very strong individual, really not looking forward to 2014 as I know its going to bring bad tidings.

On the plus point that awful head/dizzy thing I had yesterday has gone so I am going to be able to see her tomorrow and visit her as long as she is in hospital and then help her once she is back home.

Hope all ok with you Hun.

Jacci x

That's seems a good idea, as your mum is right

She would only sit there all weekend without

Being seen by a proper doctor who would know

Her history and treatment needed.

Many of time this has happend to me .

Glad yor feeling better today Hun, nothing worse

When you have a bad head.

Today was lovely my husband was off and he took

Me and the kids shopping and then out for a meal.

It was just nice to forget for a few hours and to enjoy

Family time when I can. Hugs to you xx

Glad you have had a lovely day, how old are your children?its nice to be able to be normal sometimes isnt it?

Jacci x

Yeah it is Hun , my children our 4, 7,11

You are very young then to get chondro, I was diagnosed at 51, my boys are 25 and 22! Im 53 now.

What lovely ages your children are though, I would love mine to be younger, you do worry more when they are older believe you me!

Take care and speak soon Hun.

Jacci x

Hi jacci

How is your m doing?? How are you coping x

Hi, she is still in hospital , on oxygen 24/7. They have said she may have a collapsed lung and for some reason are going to do another bronchoscopy on Tuesday next. They were going to do it this Tuesday but cancelled it.then they told her she might be able to go home tomorrow! She is 82, can't breathe properly and is in quite a fragile state worrying she may have cancer....I'm so cross. She is in a lot of pain as well and painkillers don't seem to be helping, bless her she was in tears tonight. So really we are no further on, hope all ok with you Hun.

Jacci xx

Aw jacci I'm so sorry to here this about what your

Mum is going through.

Sometimes these doctors make me so mad.

Surely they won't be able to send her home when

She is needing oxygen 24/7 and in alot of pain.

Hugs to you and your family x x

Hi Jacci

So sorry to read that your Mum not doing so well and do hope they will soon be able to get her pain under control. I know from years back when my Dad was in hospital, he hated to make a fuss and rarely told the nurses how he really felt so we acted as go-between (sadly behind his back!) so they adjusted his medication and eventually found the right levels to keep him comfortable without being totally out of it.  They certainly did not consider sending him home whilst on full time oxygen but I do have a n elderly friend now who has oxygen at home more or less 24/7 as she preferred to be at home and our local hospital arranged for district nurses to call to help monitor her situation.  She also has mini oxygen tank so she can be taken out in her wheelchair when she feels up to it.

  Hope the bronchoscopy can get to the bottom of the problem and she can be made more comfortable soon.

Look after yourself too.  Jules xx  

Hi Sunshine and Jules, well Mum does have a collapsed lung, they havent mentioned her coming  home again thank goodness and bronchoscopy is happening on Tuesday.she is in a lot of pain,its worse at night and they have been giving her tramadol but it isnt helping.They did give her morphine one night as well but that didnt help either.

Dont know whats happening regarding the consultant appt on the 8th now as I cant see they will have the bronchoscopy results by then. I will ring the lung cancer nurses on Monday to find out.I cannot believe this has been going on since Sept23rd....well I can spend longer with her for the next couple of days as its the weekend so thats something.

Take care all xx