GP is ringing her tomorrow morning....letter just says he needs to discuss some test results with her. Bless her she says she is starting to get breathless again, I hope it isnt the fluid building up again. Mind you chances are it is I suppose.

Jacci

Hi

Have just caught up with your thread (internet access has been up and down).  Wish you and your Mum all the very best for her next appointment/discussion with the doc. and hope she can have a peaceful Christmas and be kept pain free.  (My hubby has cancer of the lung membranes  and I am aware of the breathlessness /pain problems that your Mum will be experiencing).  Do hope she can give her doc permission to discuss things with you which may make it easier for you to help her through any discussions that take place.  I usually go with my hubby for his hospital appointments (he knows only too well what is going on as he wanted to know right from the beginning(but does not find it easy to talk about from a very emotional point of view - diagnosis was nearly two years ago now and he has palliative care involving pain relief/regularly check ups)  as he prefers not to discuss things more than is necessary.  The only thing I would say is to take a notepad/pen both with the questions you/your Mum may have and also to jot down anything the doc may say so that you can refer to it afterwards (I find it helpful as very often its hard to take it all in at the time).  The forum is a very supportive place and its a good place to offload anytime you need to share your thoughts/emotions.

Take care.  Jules54

Just had Mum on the phone she had 2l fluid drained from her lung 2 weeks ago but she can tell its back so is going to call an ambulance( hospital told her to do that if it came back). Im in bed with this earache/headache/vertigo thing that I get from time to time so cant get to her, she lives about 2 hours away. I will make sure I get to hospital tomorrow, she is being so strong bless her and I feel less than useless today but will feel heaps better tomorrow when I can see her.This journey is a rollercoaster isnt it and ours is just starting.....Sorry Im in a moaning mood....

Take care all.

Jacci xx

Hi Jacci

Sorry to hear you are under the weather.  Hard enough dealing with the rollercoaster journey with your Mum when you are well!! She sounds lovely and sensible and will be in the right place to get the help she needs (better than worrying about her at home!!). Give yourself some TLC and you will feel a little better when you visit tomorrow as hopefully she will too.  Please moan when you need to (this forum is great at listening) and come back and let us know how you are both doing.  Jules xx

Thanks Jules...it does help being on here.

Take care,

Jacci x

Hi and welcome to this wonderful forum

I'm so sorry to hear about your mum,

I do hope that the appointment on the 8 th

Is good news, but if it isn't be sure you have

Plenty of forum friends who will be here for you

Anytime to listern . I was so glad to find this site

When I was diagnoised with a rare bone cancer

I don't know what I would of done without this

Wonderful site. I hope your mum feels better soon .

Hugs and here to chat . Takecare

Thanks so much Sunshine...I too had chondrosarcoma but it was in my wrist..Im fine now, hope you are too.

Take care,

Jacci x

Your welcome jacci, mine was primary chondrosarcoma

In my thigh ive had half my thigh bone taken

Away. You are the first person I've met when

Has had it. How are you now? Xxx

Mine was as well...Conxultant was very surprised as he has never met anyone with it in their distal ulna, it was a grade 1 so I was very lucky..I had it removed and a bone graft put in, I had it done in feb 2012 and yep Im fine, next check up in Feb, how are you?

Jacci x

Me I had half my thigh bone taken away with 11cm tumour

They replaced it with wires 20cm plus plate and 9

Pins . At the moment I can't walk and is going to

Be a long recovery I've been told. I have check ups every

Two months at moment until all healed then every

3 months. Where do u go for ur check ups?

I go to oswestry bone cancer tumour unit.

It's so nice to speak with someone who has been

Though what u have. ( I mean it in good way ) although

Wish it wasnt about cancer. This disease is very evil

And is like a roller coaster ride. I'm so glad you have recovered

And thank you for talking to me about it.

Hugs

Bless you,its not been easy for you has it Hun. Im fine cant put my weight on it but other thasn that have full mobility. I broke my wrist trying to open a window at work and it was found...turned out  when they looked at my xray I had been suffering stress fractures for prob years but I didnt know. I was fortunate I get private healthcare through my work so had it done privately. I still had to travel from Sussex to Herts to have it done, as you know there are not many Consultants that deal with it.

My man is quite confident it shouldnt come back, he has told me it wont spread and it wont kill me so I have to believe him. Hate the check ups because you cant help but worry then. I would rather mine came back though than to see my Mum suffering like she is...It would only be another op for me.You are right though its nice to speak to someone else as its so rare..about 80/90 people are diagnosed each year in UK with chondro I believe.

You take care and I hope your recovery goes really well, talk to me whenever you like Hun.

jacci xxx

Aw thanks Hun , I'm here when ever you want to

Talk , I do hope and pray your mum has some good

News at her appointment and she feels better soonx

Aw thanks Hun , I'm here when ever you want to

Talk , I do hope and pray your mum has some good

News at her appointment and she feels better soonx

Thanks Sunshine and I really hope all goes well for you too.

Jacci x