Cancer and Addisons

Hi all I've been on forum for quite a few years now.

Haven't noticed anyone with both.unless I've missed it .

But thought I'd let people know what's going on with me lately ,

Beginning of the year my PSA (cancer count) rose up quite fast and quite high ,so oncologist put me on New meds, nearly three months ago since then My blood pressure is going mad mainly low so oncologist and Addisons specialist told me to increase my fludrcortizone, for my heart,from 1 1/2 to 2tablets a day, about two weeks later,no improvement so doctor and oncologist tell me to increase to 3 tablets day a week later phone call from Dr stop extra tablet my sodium levels have dropped dangerous levels so i carry on with low BP , spoke to Addisons specialist this morning explained everything everything he told me I should never have increased dose to 3and those tablets would not decrease my sodium levels,its more than likely that My new cancer meds are making My Addisons meds metabolize to fast in my body so they don't last long enough to do there job properly,at last something is making sense.

Now hes arranging a all day blood test at hospital so I have to Go early have tablets with blood test either side by about an hour, morning, lunch and evening,to see if meds are going out of My body to quickly.

Then at least I should know one way or the other than hopefully someone will figure out what to do..

Sorry if I'm ranting a lot but three months of being told one thing then another im getting rather fed up,fed up is rather mild to what I actually think, but thought id keep it clean,.

Hope everyone is keeping safe,keeping positive and keeping fighting.

Billy

  • Hi  booked bone scan 17th a good neighbour sitting with Brenda while im out. 

    Could do cutting grass but it's always to wet. Red sky this morning shepherd's warning  old saying i remember. Red sky at night shepherd's delight. 

    Got a quick shop today Brenda having a craze on corned beef, hope she's not expecting, she loves it warm with sauce, never usto like corned beef before. 

    Enough talk my tummy rumbling ready for breakfast. 

    Love all Billy xxxx 

  • Hi all got booked for ct scan this Saturday evening, arranged with neighbour to sit with Brenda as I'll be gone at least 2 1/2 hours with travel. Then waiting for bone scan and results then what oncologist is going to do to get my cancer down again, good job i feel ok so far. 

    Hope all my friends are keeping going and feeling as good as possible. 

    Love to all Billy xxxx 

  • Hi all.  Ct and bone scan done, still don't like being checked with giger counter and hearing it clicking away. Scan gent wanted to check my arm after main bone scan as something showing where needle went in, so trying to Stand still against machine arm stretched out palm up and not move for 5 minutes definitely achey arm after 2.but managed it. 

    Roadworks near hospital and plenty of diversions, right pain getting there and back home. 

    Just waiting again,!!!! .always worst thing always will be..

    Thinking of all my good friends and hoping things are going as good as possible and any bumps are small ones. 

    Take care keep safe warm and sure. 

    Love Billy xxxx 

  • Hi BillyGoat

    Yes you have been on this chat forum for some time now, I remember you've replied to me a few times  I joined in 2020 when I was diognosed with breast cancer.  I do read a lot of your replies to people's post on here,and you come across as a very strong man,who has good advice and I must admit, I admire your strengh . I do hope that you get this sorted out,as I know from experience how frustrating it is when one is told different things  by different doctors/ oncologists etc. You really don't know which way to turn or who  to believe sometimes. Ecspecialy when there is differences on oppinions as to what medications will be best  for you. I do hope this gets sorted out for you Billy. In the meantime I'm wishing it gets sorted quickly. Good luck with it all Billy positive vibes  much love and good wishes are sent your way .X

  • Morning all my friends and fellow sufferers..

    Up early here struggling to sleep back pain right in middle of spine last 36 hours, don't know if I've moved wrong or something more sinister, had pain's here before but. 

    Painkillers help but not for long see what im like this afternoon might phone oncologist. Brenda finally agreed to have a perm been trying to get her to have one for months and she's finally agreed for this morning..

    I'll update when i know more after all only 5.30 yet, nearly time for painkillers again. 

    Billy 

  • Hi Billy,

    I feel for you with your back pain, I'm keeping my fingers crossed you've just pulled a muscle and it's not something more sinister.  You definitely need to get it checked out. Mind you, it could be a result of having to stand with an outstretched arm for five minutes.  I think anyone's back would hurry after that.

    Let us know how it goes.  Glad Brenda's having a perm.  It always does a lady good to have a new hairdo.

    Lots of love

    Christine xxx

  • Hi Christine, updated message  actually face to face with oncologist and a week before original appointment, suppose to have phone call from nurse about my back.  So still waiting but not so long. 

    Billy xxxx 

  • Hi Billy,

    Wow! You've done well to get a face to face! It took me three years to get one at the Breast Clinic.

    Still keeping fingers crossed for you.

    Love

    Christine

  • Got a call about my back plenty of questions about my working and back problems then a now, she seems definite it's cancer related and offered radiotherapy one session to try to ease pain. 

    Love Billy xxxx 

  • Hiya,

    That sounds promising! A quick zap of the rads sounds like a good idea! I hope it works!

    I had my knees injected today and for the first time with this doctor, it really hurt. The doctor said it's because the arthritis is so far gone there isn't the same space in the joint for the needle to go in without touching something that will hurt. The local anaesthetic has worn off now so I'm feeling it again. Hopefully I should be like a spring lamb by weekend!

    Good luck with your treatment.

    love

    Christine xx