Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Wow Ian! I've just logged on to see if you've posted today and I'm thrilled to bits for you! I'm covered in goose bumps! What fantastic news! Here's hoping that everyone else shares equally good news in the weeks/months to come. Keep posting your updates too!

  • Thank you Louisabel and I have had so many kind comments after posting news.

    I do hope that, similar to some others on here who have also posted good news, that many others follow in the coming weeks/months as you say.

    As for keeping on posting updates, I think it's probably right that I now start to dilute and only post if something crops up or post the occasional random update. I still have fatigue and no great appetite but really want to focus on helping others now rather than myself.
    Will always be around to help anyway I can so please keep posting and updating your hubbys progress and ask away if you feel we can help in anyway.

    ian

  • Hi Ian

    I am doing a bit of catch up after getting home from hospital yesterday,and just read your good news!

    Having a wee chat with a fellow patient, she said to me ,someone is watching over you.Those few wee words lifted my spririts.

    I hope to see you posting here for a long time to come. xx

  • Hi Clara

    Thank you Clara and I hope you are doing ok. Please keep me posted on your progress chum.

    As for someone watching over me, I was so very close to my grandmother and it was her birthday yesterday and Ive been saying shes had a hand in this. Just a weird co incidence.

    and I'll definately be posting on here but just not about myself evey week repeating fatigue symptoms, but certainly want to help as many other people as I can.

    take care you

    Ian

  • Did I say that l won't update anymore lol !

    Ok as I want to put in my blog I wanted to have a last update, I guess for closure both here and in my blog.

    I'm not going to keep repeating fatigue and appetite and that will sort itself in time.

    Rationale for my blog and last word for closure is how I feel after receiving news and some of the reaction.
    Described to Hazel in PM that it's like being on a roller coaster with so many twists and turns, ups and downs, always having an appoitment , something always to do and continuous monitoring by support team and GP etc. Then it's like you then hit the buffers at the end the end of the ride and then told , that's it get off. 
    A lot of reaction has obviously been great, but there are many who are also saying today great, back to work/holiday/off meds and I should be absolutely fine now.
    Truth is body still recovering and I will be back  at work, back holiday, weekend breaks and health club with  bike and swim once I am good and ready. Simple as.
    So just a little flavour as while its great news and I realy hope to hear more here shortly, there may well be others, who like me will still have an ongoing recovery period, even after scan news.

    So posted just now as normally post weekly update every Friday then others update so now over to others and I hope to read all of the normal updates each week and keep the thread going for continuous support and help.
    I hope this can still be a place for all new/others to come here and not only see the journeys/blogs but also get the similar support and help that we have given each other.

    So over and out and onwards and upwards

    Ian

  • Hi Dave  hope recovery still going well

    3 little words Ole ole Ole  what a game  well dome Rashford ! What pressure 

     

    Hazel x

  • I didnt see that coming Hazel... Ole can do no wrong and with 10 players injured.

    Im still doing well thanks just this lack of saliva that is annoying but I cant complain as its still very early days for me, Iv got a new saliva spray today which is ok short term and definatley an improvement.

     

    Dave  

  • Hi Dave

    dont think anyone did including the by studio team Rio was like a big kid. Onwards n upwards Ole is so unassuming it’s a privilege to watch n listen to him. 

    What saliva spray have u got now ive had AS SPRAY  now usingca spanish one bucal butvto be honest all like fish oil in taste n smell n dont last long. Have u git scan date date ?

     

    h x

  • The spray is called Glandosane its ok for 10-15 mins better than nothing, no letter about my scan date yet Iv got the 18th April for results so it should be about the 4th April, i`ll give it untill the end of this week and will contact them if iv not heard anything.

     

    Dave

  • Hi Dave 

    nit heard of that one .i do have saliva it’s just thick . my parotid  gland o right side took a battering from radiotherapy and it’s that gland that makes thin saliva so my left one is ok but the other glands make thicker  normaly it all mixes without us noticing .its suprising what info we learn so a small long a inhave water am fine mune is worst at night. Small,price to pay though .mwonder  whinwe will get bet it’s Cityb!!! LOL