Thanks Laura  your turn will come , it’s not easy a month still having to work round quick naps ,just near that in mind for Mick later ,the radiation tiredness  is a pain and it just hits yiu ,my naps are now down tom20 mins but at one point it’s was 90 mins a time.

will soak up a few rays doe u although neck is covered as it’s all babybskin now going to be a challenge when John whinis a sun worshippers want a beach day !!!! Burkini spring season to mind !!!!!!

hazel

Oops Dave don’t really mean to make you jealous !!!! Just watching millwall v Everton in the sleet brrrr. Last nights game was brill we are just getting better and better .need a petition to keep Ole ,John says he could be the next Ferguson for us ,long term. He’s got the drive and determination loved the after talk last night baby faced  assassin!

will,soak up some rays for up whilst  staying hydrated and factor 50 over nexk

Hazel

Thanks Laura, that’s good advice and reassuring

Hello all

Thread been quiet and I hope find everyone all good.

End week 10 post treatment and would say a little better i guess.

Baby steps at work. Monday was ok and around 4 hrs.
Tues/Wed working from home and did around 5 hrs or so from early morning but slept in afternoons for around 2-3 hours so Im thinking even mental work is adding to fatigue. Thurs/ Fri annual leave.
Got consultant and support team appt next Tues and will see what they say around the fatigue etc. as its getting slightly better but boy its still there. Part I think as well is still not having appetite and have upped the Ensures to 4 a day now plus small meal at night and mandatory curly wurlys.
I have no doubt I will get a kicking at consultant appt as Im sure Ive lost quite bit weight since last appt so will need to see what they say. Hoping at least the ensures and meal still enough for minimum intake.
Mouth still claggy and glue in morning..wouldnt say mucas but more like sticky and unpleasant. Still drinking plenty water to help and also still use my regular caphasol tablets and Difflam mouthwash.
Meds - I have cut morphine by half now and am on 30mg tablet in morning and 10mg at night with 1 oral morph a day  and occasionaly 2.
Soluable paracetamol have cut by 4 times a day to 2.
Done on own without any advice so again will see what consultant says as feel Im ok with what im doing and no side effects or pain. Dont want to completely stop until told but would rather start thinking about moving to codine now and get off morphine totally.

All in all feel im overall good although I dont think im ready for 5 full days a week yet by any shake of imagination. I'm ok home working in peace then sleep so am going to have to assess work situ.
Still got leave to take and taking baby steps but I can only do what my body can do and if I cant do full time , I may have to go off again for little longer recovery period. Maybe im going back too early and expecting too much as I think my brain is overtaking my body.
Pretty much status quo with fatigue the biggest factor as although no real appitite feel the ensures and small meal plus drinks is at least the minimum fuel intake i should be having,

Ignore me as I ramble on but its like writing to myself and i intend to go back over my journey thread and put together better as a summary once i start to dilute the thread updates.

Hope all ok and Hazel still enjoying your holiday

kind regards

Ian

 

Hi to everyone Im 3 weeks post treatment today, meds are just the pregabalin, my skin on the neck has healed up, still doing the mouthwashes and Diflam, My appetite has started to come back slowly I had three meals yesterday Porridge, Pakoras for lunch and Carbonara for evening meal all went down well, I played football twice this week and we did two walks.

My mouth is still dry but slowly getting there and Im drinking plenty, I havent had alcohol for three months and Im wondering how that will go when I get the urge to try it...:) Still some healing needed at the back of my throat as It still looks ulcerated but the area is slowly shrinking.

Dave

Hi Dave well done on week 3 

still here in Spain hime Thursday for 15 days then back bringing car fir 8 weeks oops sorry !,

great news re food pasta n me dontvreally agree .

keep drinking thecwate4 I still have the claggy glue one min bone dry the next mouth. Also had a touch of cold which has been interesting snot doesn’t make it to my nose for what ever reason I sneeze it out of mouth not pleasant at all !,

managed to find a feed of Man U v Burnley games Ole wasn’t a happy bunny at 2-0 down which began was good to se how much he cares. Was a good fight.back. 

Keep up doing what u are doing spring on its way n lighter nights will make such a difference we can all beat this disease positive mental attitude goes a long long way

everyine have a decent weekend keep warm I will soon be joining u in U.K. brrrr

hazel 

Well done Dave and Ian, been chatting to Hazel on chat link here, really shows 3 people all very different post treatment, thanks helps me no end, i must  take it as it comes. Im 23 down 10 left after today, doing ok deffo a bit extra mucus and odd tastes. 

Dave

WT*

you are putting me to shame..you must be some kind of human dynamo after 3 weeks eating 3 meals and playing football and long walks.
Shows we are all different tho and im really pleased for you and recovering so well after such a short space of time. Hope it keeps up.
As for alcohol ive not a had a drink for 232 days and intend to keep it that way and stay t total.but again each of us different. 

Ian

Agree Graeme in that its good you have 3 different perspectives so you shouldnt be worried if you dont fall exactly into anyones set pattern and will just be down to you, Im hoping your fine like Dave but you can see from Hazel and myself that it might take little longer but still an expectation so take it as it comes as you say.
Ian