Hi Laura,

Good luck to Mick and keep us posted on his journey.

Wish him all the best and hope side effects kept to a minimum but all rooting for him.

Dave

well done completing treatment and will keep positive for you on recovery

Same wishes to all on this journey, no matter the stage you are at. 

kind regards

ian

Hi Ian

well,allmthose sleep deprive day nights have paid off just been given the All clear it’s such a surreal feeling hope I can be of inspiration to others .see oncologist in 12 months in meantime lovalmENT every 3 months

hope you are doing ok ,

Hazel

The mouth claggy  is your saliva buds are waking up but producing a thick stream nitbye usual water. Someone told me try fresh or tinned pineapple so off tonfind that today or pineapple or papaya juice to try and water it down

h

Thanks Hazel

Im gonna try the pineapple..anything worth as shot as mouth is gross lol as you will know

and yup im gonna re assess work but im hoping if i get get some more fuel in the body i'll pick up a bit.

Re morphine
Ive got 30gm tablets but also got 10mg tablets as well..thats what they gave me and I was on 40mg twice a day plus oralmorph.

Ive cut down on the 30gm and like yo usay am trying to trick body and doing slowly. I only very occasionaly use the oral morph now.
Point I was making re GP as well was I have so much prescribed on repeat
They give me a months worth of tablts and 1300ml of oralmorph so I defo dont need all that oralmorph.
I'll do slowely but trying to phathom out your med adive above lol..your kidding right!....lol stick to pineapples

Anyways its not all doom and gloom...im still breathing, enjoying my reading again and still positive.

Glad your enjoying your holiday and some warm weather and fish and chips..impressive re the bike as well so your doing great. I would imagine between the biking and warm weather you will be getting a good sleep as well.I have another 2 pillows from Amazon coming today and trying the bamboo filled thing..Ive been on a quest for years trying to find the ultimate pillows, but not found yet and I just keep going , but trust me Im getting plenty sleep its unreal.

Enjoy rest of holiday and will keep in touch..Week 10 is on schedule to be amazing !

regards
Ian

Hi guys, wee update from me but first off, Ian i really hope things pick up for you, i have been greatly helped by your input, and from Hazel. 

Im now at 18 done, 15 to go, which if machines behave is 3 weeks. Still on solids, saliva ok bit yucky, mucositis sores last a day then go with mouthwash and manuka spray....so far at least. Im  managing a walk daily and press ups, 3 litres of water. On fentanyl patch but ive not had pain yet, im sure its in the post but!  So,   best wishes guys, will  update again soon seeking more help if things start breaking down. 

Quick update from me Im now two weeks post treatment and doing well, Im only taking Pregabalin twice a day, my mouth is healing, skin now good and almost healed, swallowing no problem and I even managed two 3 mile walks and a game of 5 a side football although I took it easy and feel well down on fitness which is no surprise.

Downsides are Iv got no appetite but eating small meals and things still taste strange, mouth still dry especially at night, overall I can’t complain.

Dave

Good to see the pair of you doing so well.

Dave - you sound amazing after 2 weeks post playing footie, not too many meds and managing small meals - great stuff

Keep rocking guys

ian

 Hi Ian

got the tinned pineapple had half a ring and it seems to work ok nit all afternoon but at least a few hours of decent feeling mouth maybe a tad dry 

tablets yep I took the slow route to reduce them maybe u could do it a bit quicker I had been in them since August until early December.

glad youve got reading  back ,it’s so strange how we lost the ability maybe too much other stuff going in ,you’ll have to let me know who u read always in look out for new authors 

pillows we are so much alike I spend half my life buying them and moaning !! Think onky pillow I was happy with was from my childhood a big thick flock pillow if u remember t hem lol. At min am using box pillows will be interested in what u think if the bamboo pillow ?

hope you have a quiet weekend

hazel ps didnanither 20 k this morning 

Hi Dave mega imoressed re football well done .

food will eventually come back to yiu it’s early days yet. As long as you are getting enough calories from the high calorie drinks you seem to be doing ok .

forvdry mouth have you git biotene gel rub it in well all over gums before bed get dentist to prescribe it and dr to prescribe bioxtra mouth rinse use rinse first then gel. You can also use the gel at night plus online from mouth ulcer company xymelts are quite good put one on gums and melts in night giving yiu a moist mouth 

just a few tios

hazel just settling down to watch the boys  managed to bike 72 km this week temp today 23 degrees keeping nexk well covered up though 

Hi Hazel,

havnt managed to supermarket for pineapple but defo gonna try Got some Lucozade sport drinks for a change from water and they are really nice and a change from all the water.

Reading..I read such a wide varied selection but as long as its non fiction.mainly biography/autobio/crime/true stories..have lierally over a thousand ebooks on kindle/gadget..err helps if you know how to obtain them online lol..Often New York times non fiction bestsellers is a good source for me.

Pillows lol...just a quirk of mine and my quest. Got these pillows below from amazon and first impressions are really good. nice and comfy/soft but very supportive. Impressed so far but only one night so will see how i get on. Ive been ordered to do a pillow purge from the house.

Makimoo MP2 Super Soft Queen Size Bamboo Fiber Pillow 2 Pack

Nice you are having warm weather and relaxing and enjoy your well earned rest and well done with your biking - great stuff

catch laters

ian

Hi ian

goid kuck with pineapple let me know what u the knwhen u get some. Lucozade ummm forgot about that last time I tried it it was a no no.

i have over 700 books on my kindle also varied tastes like u ,plus I do download. Oops ..

love the pillow quest  will look when we get home. 

Anither 22 km ride in glorious sunshine

catch up later

hazel

Thanks Hazel, 23 degrees sounds perfect Im well jealous, 

What about Ole and the boys again? another great result

Thanks Hazel, 23 degrees sounds perfect Im well jealous, 

What about Ole and the boys again? another great result

Oops Dave don’t really mean to make you jealous !!!! Just watching millwall v Everton in the sleet brrrr. Last nights game was brill we are just getting better and better .need a petition to keep Ole ,John says he could be the next Ferguson for us ,long term. He’s got the drive and determination loved the after talk last night baby faced  assassin!

will,soak up some rays for up whilst  staying hydrated and factor 50 over nexk

Hazel