Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  •  Hi Ian

    got the tinned pineapple had half a ring and it seems to work ok nit all afternoon but at least a few hours of decent feeling mouth maybe a tad dry 

    tablets yep I took the slow route to reduce them maybe u could do it a bit quicker I had been in them since August until early December.

    glad youve got reading  back ,it’s so strange how we lost the ability maybe too much other stuff going in ,you’ll have to let me know who u read always in look out for new authors 

    pillows we are so much alike I spend half my life buying them and moaning !! Think onky pillow I was happy with was from my childhood a big thick flock pillow if u remember t hem lol. At min am using box pillows will be interested in what u think if the bamboo pillow ?

     

    hope you have a quiet weekend

    hazel ps didnanither 20 k this morning 

  • Hi Dave mega imoressed re football well done .

    food will eventually come back to yiu it’s early days yet. As long as you are getting enough calories from the high calorie drinks you seem to be doing ok .

    forvdry mouth have you git biotene gel rub it in well all over gums before bed get dentist to prescribe it and dr to prescribe bioxtra mouth rinse use rinse first then gel. You can also use the gel at night plus online from mouth ulcer company xymelts are quite good put one on gums and melts in night giving yiu a moist mouth 

     

    just a few tios

    hazel just settling down to watch the boys  managed to bike 72 km this week temp today 23 degrees keeping nexk well covered up though 

  • Hi Hazel,

    havnt managed to supermarket for pineapple but defo gonna try Got some Lucozade sport drinks for a change from water and they are really nice and a change from all the water.

    Reading..I read such a wide varied selection but as long as its non fiction.mainly biography/autobio/crime/true stories..have lierally over a thousand ebooks on kindle/gadget..err helps if you know how to obtain them online lol..Often New York times non fiction bestsellers is a good source for me.

    Pillows lol...just a quirk of mine and my quest. Got these pillows below from amazon and first impressions are really good. nice and comfy/soft but very supportive. Impressed so far but only one night so will see how i get on. Ive been ordered to do a pillow purge from the house.

    Makimoo MP2 Super Soft Queen Size Bamboo Fiber Pillow 2 Pack

    Nice you are having warm weather and relaxing and enjoy your well earned rest and well done with your biking - great stuff

    catch laters

    ian

  • Hi Laura

    any advice on how to secure the RIG?  Husband's skin is getting very sore from the tapes (two sorts tried, super sticky!)  Its been in a week, apart from a pulling feeling and this it seems to have been ok

    Thanks

  • Hi Laura

    Sorry to hear side effects kicking in now.

    is Mick on Caphasol tablets or do you get in liquid form? I still use them and was advised better than most mouthwashes by advanced nurse practitioner.

    I put one tablet in 50ml water and just swirl and gargle couple times. make sure not swallowed.

    I have also been using Difflam from the get go and was prescribed both and have on repeat prescription.
    Its more refreshing than the caphasol and leaves nice minty taste in mouth. I prefer the Difflam to Caphasol but I have used both and still do daily. I vary between taking Caphasol and Difflam and sometimes both at once.
    Using both should help and might be an idea to get hold of and try. You will get from the dept while your having treatment then from GP thereafter. I also use just Blistex for lips but there maybe something on prescription if really bag but I find this to be ok. Worth a try.

    Didint try baking soda but others have and may attest to further.

    Wishing you both well

    oh forgot - I used Bonjela for a while for my gums as they have always been a bit tender.
    spoke to my GP last week and he presribed me Daktarin sugar free 2% oral gel - miconazole
    says its for fungal & associated bacterial infections of the mouth & throat.on the packet

    kind regards

    ian

  • Hi Laura my nurses stressed that it was very important that I used Bicarb and Salt mouthwashes, not in the same bottle by the way, they advised me to alternate with these every 2 hours minumum and up to every hour, also after eating. I used Difflam too as instructed, I got my maybe three ulcers during the treatment? so it worked for me.

    Dave 

     

  • Hi Laura week 2 is good I had a radiation burn the full length of my right side of tongue from weekn3 up to weekn10/11 post radiotherapy. Was prescribed gelclair which worked to a point try n get it prescribed as it’s £74 for a weeks worth. 

    I found baking powder dried me out but works for some. My oncologist onky believed in saltwater mouthwashes so no difflam or caphosol for me. 

    Taste buds again I was lucky and didn’t loose mine totally sometimes it’s a mixed blessing as there was so much food because I could taste it just couldn’t eat it. Whereas others who couldn’t taste can eat more. 

    Good luck with week 3 and keep posting 

     

    hazel

  • Hi ian

    goid kuck with pineapple let me know what u the knwhen u get some. Lucozade ummm forgot about that last time I tried it it was a no no.

    i have over 700 books on my kindle also varied tastes like u ,plus I do download. Oops ..

    love the pillow quest  will look when we get home. 

    Anither 22 km ride in glorious sunshine

     

    catch up later

    hazel

  • No Elbie the salt and Bicarb are kept in separate bottles, we used leftover water bottles. 

    One teaspoon of salt per bottle and one teaspoon of Bicarb per bottle.

    Dave

  • Thanks Hazel, 23 degrees sounds perfect Im well jealous, 

    What about Ole and the boys again? another great result