Hi Laura,

Good luck to Mick and keep us posted on his journey.

Wish him all the best and hope side effects kept to a minimum but all rooting for him.

Dave

well done completing treatment and will keep positive for you on recovery

Same wishes to all on this journey, no matter the stage you are at. 

kind regards

ian

Hi Ian

well,allmthose sleep deprive day nights have paid off just been given the All clear it’s such a surreal feeling hope I can be of inspiration to others .see oncologist in 12 months in meantime lovalmENT every 3 months

hope you are doing ok ,

Hazel

Good to see the pair of you doing so well.

Dave - you sound amazing after 2 weeks post playing footie, not too many meds and managing small meals - great stuff

Keep rocking guys

ian

 Hi Ian

got the tinned pineapple had half a ring and it seems to work ok nit all afternoon but at least a few hours of decent feeling mouth maybe a tad dry 

tablets yep I took the slow route to reduce them maybe u could do it a bit quicker I had been in them since August until early December.

glad youve got reading  back ,it’s so strange how we lost the ability maybe too much other stuff going in ,you’ll have to let me know who u read always in look out for new authors 

pillows we are so much alike I spend half my life buying them and moaning !! Think onky pillow I was happy with was from my childhood a big thick flock pillow if u remember t hem lol. At min am using box pillows will be interested in what u think if the bamboo pillow ?

hope you have a quiet weekend

hazel ps didnanither 20 k this morning 

Hi Dave mega imoressed re football well done .

food will eventually come back to yiu it’s early days yet. As long as you are getting enough calories from the high calorie drinks you seem to be doing ok .

forvdry mouth have you git biotene gel rub it in well all over gums before bed get dentist to prescribe it and dr to prescribe bioxtra mouth rinse use rinse first then gel. You can also use the gel at night plus online from mouth ulcer company xymelts are quite good put one on gums and melts in night giving yiu a moist mouth 

just a few tios

hazel just settling down to watch the boys  managed to bike 72 km this week temp today 23 degrees keeping nexk well covered up though 

Hi Hazel,

havnt managed to supermarket for pineapple but defo gonna try Got some Lucozade sport drinks for a change from water and they are really nice and a change from all the water.

Reading..I read such a wide varied selection but as long as its non fiction.mainly biography/autobio/crime/true stories..have lierally over a thousand ebooks on kindle/gadget..err helps if you know how to obtain them online lol..Often New York times non fiction bestsellers is a good source for me.

Pillows lol...just a quirk of mine and my quest. Got these pillows below from amazon and first impressions are really good. nice and comfy/soft but very supportive. Impressed so far but only one night so will see how i get on. Ive been ordered to do a pillow purge from the house.

Makimoo MP2 Super Soft Queen Size Bamboo Fiber Pillow 2 Pack

Nice you are having warm weather and relaxing and enjoy your well earned rest and well done with your biking - great stuff

catch laters

ian

Hi ian

goid kuck with pineapple let me know what u the knwhen u get some. Lucozade ummm forgot about that last time I tried it it was a no no.

i have over 700 books on my kindle also varied tastes like u ,plus I do download. Oops ..

love the pillow quest  will look when we get home. 

Anither 22 km ride in glorious sunshine

catch up later

hazel

Thanks Hazel, 23 degrees sounds perfect Im well jealous, 

What about Ole and the boys again? another great result

Oops Dave don’t really mean to make you jealous !!!! Just watching millwall v Everton in the sleet brrrr. Last nights game was brill we are just getting better and better .need a petition to keep Ole ,John says he could be the next Ferguson for us ,long term. He’s got the drive and determination loved the after talk last night baby faced  assassin!

will,soak up some rays for up whilst  staying hydrated and factor 50 over nexk

Hazel

Hello all

Thread been quiet and I hope find everyone all good.

End week 10 post treatment and would say a little better i guess.

Baby steps at work. Monday was ok and around 4 hrs.
Tues/Wed working from home and did around 5 hrs or so from early morning but slept in afternoons for around 2-3 hours so Im thinking even mental work is adding to fatigue. Thurs/ Fri annual leave.
Got consultant and support team appt next Tues and will see what they say around the fatigue etc. as its getting slightly better but boy its still there. Part I think as well is still not having appetite and have upped the Ensures to 4 a day now plus small meal at night and mandatory curly wurlys.
I have no doubt I will get a kicking at consultant appt as Im sure Ive lost quite bit weight since last appt so will need to see what they say. Hoping at least the ensures and meal still enough for minimum intake.
Mouth still claggy and glue in morning..wouldnt say mucas but more like sticky and unpleasant. Still drinking plenty water to help and also still use my regular caphasol tablets and Difflam mouthwash.
Meds - I have cut morphine by half now and am on 30mg tablet in morning and 10mg at night with 1 oral morph a day  and occasionaly 2.
Soluable paracetamol have cut by 4 times a day to 2.
Done on own without any advice so again will see what consultant says as feel Im ok with what im doing and no side effects or pain. Dont want to completely stop until told but would rather start thinking about moving to codine now and get off morphine totally.

All in all feel im overall good although I dont think im ready for 5 full days a week yet by any shake of imagination. I'm ok home working in peace then sleep so am going to have to assess work situ.
Still got leave to take and taking baby steps but I can only do what my body can do and if I cant do full time , I may have to go off again for little longer recovery period. Maybe im going back too early and expecting too much as I think my brain is overtaking my body.
Pretty much status quo with fatigue the biggest factor as although no real appitite feel the ensures and small meal plus drinks is at least the minimum fuel intake i should be having,

Ignore me as I ramble on but its like writing to myself and i intend to go back over my journey thread and put together better as a summary once i start to dilute the thread updates.

Hope all ok and Hazel still enjoying your holiday

kind regards

Ian

 

Hi to everyone Im 3 weeks post treatment today, meds are just the pregabalin, my skin on the neck has healed up, still doing the mouthwashes and Diflam, My appetite has started to come back slowly I had three meals yesterday Porridge, Pakoras for lunch and Carbonara for evening meal all went down well, I played football twice this week and we did two walks.

My mouth is still dry but slowly getting there and Im drinking plenty, I havent had alcohol for three months and Im wondering how that will go when I get the urge to try it...:) Still some healing needed at the back of my throat as It still looks ulcerated but the area is slowly shrinking.

Dave

UHi ian

noted  u wrote at 0230 any consolation I was awake n sipping warm peppermint tea !

i over did it yesterday’s ,we went bird watching with a couple of friends one who is really keen saw a beautiful golden eagle who soared above us John got dood photos .then we went out for meal. I had spanish eggs too spicy cod in batter perfect chips difficult cheese cake n coffee.  But then we had agreed months ag to  pick up friend at Alicante  which normality would have been ok 2115 picks up. Bad weather in U.K.  delayed them 90 mins so eventually for in bed 0030 up at 0230 !

my mouth is still horrid it’s like u say  claggy you can’t explain to anyone  unless thy are experiencing it how bad it is. This morning I’ve gargled with warm water and baking powder it seems to have eased it .biking ive cut ut shirt this week after battling a head wind on Sunday for 15 km. the radiation tiredness is really difficult it’s such a fine line. 

Ensures are fine uo them I was on 5 at your stages my weight for last 10 weeks has been stable not lost any neither gained any. Well done on tablets baby steps I ve had a bit if cold so been on beechams cold tablets  hoping when it’s gone won’t need paracetamol. Am sure consultant will be pleased. Have u got scan date yet ?

re work early days brain willing body not

home Thursday for 15 days then sail out for 8 weeks. Ouch sorry 

hazel x

UHi ian

noted  u wrote at 0230 any consolation I was awake n sipping warm peppermint tea !

i over did it yesterday’s ,we went bird watching with a couple of friends one who is really keen saw a beautiful golden eagle who soared above us John got dood photos .then we went out for meal. I had spanish eggs too spicy cod in batter perfect chips difficult cheese cake n coffee.  But then we had agreed months ag to  pick up friend at Alicante  which normality would have been ok 2115 picks up. Bad weather in U.K.  delayed them 90 mins so eventually for in bed 0030 up at 0230 !

my mouth is still horrid it’s like u say  claggy you can’t explain to anyone  unless thy are experiencing it how bad it is. This morning I’ve gargled with warm water and baking powder it seems to have eased it .biking ive cut ut shirt this week after battling a head wind on Sunday for 15 km. the radiation tiredness is really difficult it’s such a fine line. 

Ensures are fine uo them I was on 5 at your stages my weight for last 10 weeks has been stable not lost any neither gained any. Well done on tablets baby steps I ve had a bit if cold so been on beechams cold tablets  hoping when it’s gone won’t need paracetamol. Am sure consultant will be pleased. Have u got scan date yet ?

re work early days brain willing body not

home Thursday for 15 days then sail out for 8 weeks. Ouch sorry 

hazel x

Hi Hazel,

Sorry to hear of cold...something Ive been dreading as enough to cope with but so far so good touch wood,.

Getting wee bit better but defo baby steps re work and Im certainly not like SuperDave and still sleeping for Scotland.

and great your back in sun again....oh the joys of retirement huh lol
ian x

Hi Ian deffo think I got the cold as off all painkillers especially the codeine which suppresses cold apparently. Went to pharmacy over here git a saline spray use 3 times a day €6 euros and am nearly rid of it. 

Latest on gunk omg something came out if my mouth this morning that a Great Dane woukd have been proud to have hanging out if it’s mouth !

agree super Dave  keep going. 

Hazel xx