Stay Strong

I have a busy day and come home to my lovely neighbour mowing my back lawn.  I chastise him and say  I would have got round to it, he knew I was struggling and came in whilst I was out.  These kindnesses make my day.  I think hubby is not looking well and voice my concerns.   Nope he says he's fine but a little niggle tells me otherwise.   I get up this morning and he admits he's not good..  appointment at Doctors and he has another infection.  I am being picked up by a friend to go to Wynyard Hall and gardens, the day is glorious and she has the soft top down,we arrive and I look like Bridget Jones after her ride in an open top car!  We have home made cake and coffee and meander the beautiful gardens looking at the pumpkins, sweetcorn and variety of flowers.  I suddenly spot a flower that hubby and I keep seeing  on our drives and it's driving him insane not knowing its name.  A lady hears us talking, takes a photo, Googles it and walks back to tell me, it's  called the common tansy. People are so thoughtful and kind!  Back home hubby laughs at the state of my hair, saying I look like I have been pulled through a hedge backwards,  charming!!  I tell him the plants name, lovely he says and promptly falls asleep on his sheepskin in the sunny conservatory.   Hopefully the antibiotics will kick in soon, I want my normal hubby back.

Parents
  • Hi Caz Please don't take this the wrong way but why are you starting a new post everyday. Why not update us on the same thread. Good friends and neighbors are such a strength during this journey.
  • Probably because I don't know how!  Give me a clue what to do. Caz

  • Hi to you, we have had a great time with the family,  it is so nice to have some fun! I hope you are doing ok. X

  • Hi Caz glad your hubbys treatment is going ok and you had a good time with the family. We arrived home Saturday so have been washing today. Had a great time went on 3 bike rides and a couple of short walks. Not bad considering just over 2 years ago I just finished chemo and radiotherapy. It's not an easy going through treatment and I'm sure its not easy for the partner. I told my husband " sorry love but this is the sickness and worse bit and if I get through then we are going all out on the better things". Which we are. X

  • So pleased you enjoyed yourself and that things are looking brighter.   My hubby said that he didn't think that I had signed up for this, I said I remember in sickness and health but hadn't banked on this much sickness! !  It's good that we can keep a perspective in between all the travails sent our way.   keep in touch.   Caz

  • It's a quarter to ten and hubby is still in bed, I go in and tell him if he doesn't get up I will jump all over him shouting Grandad get up and put your leg on!  This works and he drags himself out from under  the covers,  he is sad that he only has me left to talk to again after all the chat of the last six days.  Me I'm off to do some retail therapy, spending , it certainly takes my mind  off the boring day ahead!  I pop into M & S and treat us to some different food, moussaka,  cauliflower cheese, little summer fruit puddings and steaks and mashed potato for dinner tomorrow.   I am running out of ideas to tempt him to keep eating and think this will help, well I did until I arrive home to be advised that he now has an upset stomach and thinks it was the curry I made everyone, great another problem to deal with.  I give up.  Glass of wine, rhubarb shortbread biscuits and feet up, he can sleep it off on the sheepskin chair!   See you tomorrow. 

  • I get up early to do a fitness class when hubby asks me to go to the opticians with him because our Grandson gave him a massive hug and snapped them off at the arm!  He thinks my days are run around his timetable (which they normally are)and I stand my ground and tell him to go himself, see what he likes and I will come in my sweaty Betty gym kit afterwards.   This plan is accepted and I duly meet him later.  Chosen some new specs,  I agree with his choice, half price offer on so we all agree to go ahead.  Problem, his eyes might change until treatment is over so recommend we leave it til then!!  The old ones are fixed and the optician takes pity on us, puts the frames away and promises to keep the offer until we go back.  It is so thoughtful of people who do  not know you but help anyway when you mention cancer.   I don't think in the last six months that we have had one negative response when we explain our situation.  Back home, ambulance collects him and another countdown on the radiotherapy.   The ambulance service calls whilst he is out asking if a car will be OK tomorrow,  yes I say,  is that his daughter they ask,  no wife, oh you sound very young, I do try! !

  • Well I baste hubby like a Christmas turkey but have not used plain vaseline cream and he is on fire!  We have to go upstairs where we position him on a mat and wash him down.  No flannels or sponges allowed, no scrubbing just hands and soap, but now I have cold hands he moans making him shiver.  Crikey I am losing patience with the constant having to see to him no matter what I may be doing myself!!   Still only fifteen sessions left.  He then tells me that having seen himself in the three way mirrors at the hospital he is going on a diet, plus the fact his beloved grandaughter has told him he not only has a fat tummy but a fat bum! !  Glad I missed out on those observations! !  I tell him he needs to concentrate on getting better first, this is accepted and he eats all his tea (plus fruit loaf later when he thinks I'm not looking ).  Fourteen sessions to go.

  • Todayis a quiet day.  Chatting to neighbours in the sunshine,  hubby won't come out, he is becoming a little unsociable.   His mind is always on getting better,  getting through the treatments and coming out the other end with good results.   He has a review today so I am anxiously awaiting his return home.  I bump into my friend opposite and she is hanging out the flags as her daughter and fiance are moving to a new home today and she is getting her home back.  She has only been in this house a couple of years,  she left her hubby when the dog died and she realised she had no one to talk to anymore! !  She makes me laugh and we have a quick natter, thank goodness for good friends.  X

  • I am so cross with myself,  hubby had his review and said all is going well, this gave me the confidence to finally check the statistics on cancer survival, only to find that things have not changed in the past forty years and that the survival rate for stage 4 lung cancer at his age is only one to two years from diagnosis.  Is this true?  We have already gone six months through the treatment, where does that leave us?  Do I speak to our Mc Millan nurse and ask the dreaded question that neither of us have asked since diagnosis, or do I carry on being positive for him knowing he wants to live as long as possible.  Help me in this all of you, I am lost and afraid again.

  • Hi Carol. It is a question we want to ask too but like you don't want to hear the answer. When he was first diagnosed the consultant told us that if he had the treatment (radiotherapy and chemotherapy) he could have up to 5 years. I feel that is best case scenario , the uncertainty is what is driving us crazy. I try to keep positive with my husband but when I am alone my mind goes into overdrive and that is when I can't cope. This vile disease has taken over our lives, we are all in the same boat I fear. 

    Much love to you and yours, I haven't been any help in answering your question but I am thinking of you and hoping that you find some peace of mind. 

    Chris

  • Thank you Chris, I have tried so hard to stay positive and will take your five year survival rate as a goal to aim for.  I keep busy but you are right our alone moments take us to dark places.   Thinking of you and all in this daily struggle.   Csrol

Reply Children
  • Hi Caz

    I find it best to try and forget about the numbers and just get through one thing at a time - like the treatment.

     

    I was told 17% chance of survival but when is that calculated from. My gynaecologist counts from discovery so that's 3 years later this month. My Oncologist counts from the completion of treatment so that's 27 months. The doctor I usually see at my checkup counts from my last scan when everything was clear so that won't be 2 years until November.

    I know appointments and treatment take over your life but try to carry on as normal as possible around that.

    I am under Doctors orders to get on with my life go on holiday so that's exactly what I am doing. You don't know what is round the corner.

    river

  • Live in the moment.

    Well said river.

     

    Regards

    Taff

  • Hi River,  I think I am just going to do what I have been doing since diagnosis and live each day as fully as possible.   My Grandad died of lung cancer when I was expecting my first daughter and the image of his five and a half stone body in stripey pyjamas has stayed with me forever,  this was my first image when hubby was diagnosed, I couldn't bear that for him.  A holiday sounds marvellous our daughter is talking about sending us away after radiotherapy,  that would be lovely if I can persuade him to go!  Many thanks for your upbeat message.   Caz

  • Short and to the point Taff,  my kind of man!!

  • Hubby is upbeat and says he is feeling good.  The chemo seems to have worn off and he is moving around a little better, he has dressed nicely, but not shaved as it is white like his hair since chemo, I have to rub my hands over his chin so he can prove his point!  It's a beautiful day so he goes to Richmond to check his golf buggy,  people have been using it with his permission friends have told him and using his petrol.  Very annoyed he states, just because it hasn't moved for many months doesn't give them the right to use it.  I get a letter from Solicitors saying I am being sued for negligence after my minor bump before chemo the other week.  Great another problem to sort out, especially when I wasn't at fault! Talk about spoiling a good day.   Stay strong all of you out there.  X

  • We sleep in late, I am exhausted after moving the lawn, cutting back shrubs and sweeping the whole lot up.  We have decided our neighbours cat Dexter is deaf!   We have two cat scarers in the garden which has got rid of them all but him!!  He's  just a young gun and I'm wondering if his hearing hasn't developed fully yet, mind he seems to hear me shouting at him well enough.  Hubby is basted in vaseline with the usual my hands are cold.  Sunday Papers,  coffee and toast and he is strong enough to go for a beef baguette , roast tatties and gravy to one of our favourite village pubs.  We arrive to find an old lady asleep and tucked up with a blanket on the window seat, a little weird we both say quietly to each other! !  Turns out she's the land ladies ancient Grandma and has been brought out for a treat.  I nudge hubby and say that will be me in twenty years, when our grandkids want to go drinking but have to take me, we giggle and I tell him I'll be fine as long as they keep me supplied with vodka!  It's lovely to go out together again,  we eat and make our way home, cup of tea, fruit cake and in time for the Grand Prix, a normal day in our world of cancer.xx

  • Our grandaughter starts school today, they face time us to show her in her school uniform, blue and white gingham dress, matching headband and new shoes from us with red flashy sparkles in the heels for dark mornings to come.  Where has the time gone?   I can remember her Mummy starting school like it was yesterday.   Who knew all those years ago What life would throw at us.  Hubby is collected for his radiotherapy, nine sessions to go! We pray this is working so we can live a more normal life. I just sit down to have a quiet coffee and my neighbour knocks, he's come to cut the hedge, so my quiet time turns into raking the hedge cuttings up, getting a sweat on, thanking him for all his help.  What would we be without friends in this tough time, they are a blessing.   I am hoping for half hours peace before hubby returns and the moisturising starts again!

  • Well my half hour peace lasted until 5 pm by which time hubby still hadn't arrived home.  I call James Cook hospital and it is so late there is no one there.    I wouldn't normally panic but this cancer scares me to think the worst.  He finally turns up saying they had forgotten to put him on the first pick up so he had to wait,  I tell him to take his phone next time to save me worrying! !  He is coping well and there is no sign of any burning,  that's probably because I baste him like an oven ready chicken each day.  Our younger daughter calls,  she is safely back from Greece and has handed her notice in at work, final interview today for a job they interviewed her for on holiday, I ask if she wore her bikini for the first one!   She is beautifully endowed I say, no wonder she is in the final few.   Anyway they' re coming for their 12th wedding anniversary in 10 days time and we are really looking for to seeing them.  Sunday lunch out is on the cards and a few drinks!!  Hope you are all staying strong. Xx

     

  • Hubby is now suffering acid reflux ad the tumour is blocking his windpipe so they are targeting that area, he is coping so well that I keep having to remind myself the severity of the tumour.  I fear I am becoming a little too used to this feeling of everything will be OK and that the rug will be pulled from under our feet again.  Everything else slides off my back like water off a duck.  Car crashes,  people trying to sue me, people reversing into me and not leaving notes at the hospital, all these trials and tribulations are nothing compared to this fight with cancer.   I have to go now as my car is in for repairs again!  Another £75.00  we'll never see again.  Take care all of you out there, we are all fight for the same thing.  Caz