Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
Hi Max what sort of a day have you had flower, I have had two walks with RIA but with pain ,pills dont seem to work.We are at Karls sunday for a curry meal home cooked could be 10 of us .Life just has to go on ,but like you I think why me .I have worked in our community for many years RBL.health council.PTA chair and more .But no regrets life as been good .thinking of you lass XXX
Hi George. Good to hear from you. Sorry to hear you are in pain - I hope your doctor can help you with that. I have had a quiet day - took the dog on the beach and popped out for a chilli this evening with my hubbie and now watching TV. The family are all away this weekend so we will maybe pop out for a drive tomorrow - I would like to do some gardening but its a bit too chilly and I am more tired than usual. Hope you and the family have a good day and speak soon x
Really like the sound of that walk along the beach - bet its doggies paradise at this time of year and peaceful too. Hope you make the drive out today (and maybe a pub lunch en route!). Thinking of you and hubby brave lady. Hugs Jules xx
Hello Max ,I hope you enjoy your drive out ,and that the weather is good for you ,wrap up warm ..The weather here in Cornwall is sunny then dull and we have been promised rain lovely ,not ,and its 7.5degs ..Dogs love the beach dont they Rusty has a runthen says hi to other dogs then spends the rest of the time sniffing around too many lovely smells ha ha ...Take care Max and have a lovely day together ...Hugs ...Sueanne Xx
See from your posts on other threads that despite your own difficult journey you are still thinking/helping others during the early hours.Guess your mind is too busy to rest just now and just wanted to let you know I am keeping you in my thoughts. My sleep pattern is still all over the place (overthinking everything is not helping!!) and I too find solace (not sure this is the right way of putting it though!!) in being able to chat to others on such difficult journies as being alone with thoughts is not easy. Be kind to yourself, much love and hugs, Jules
I haven't been on this site for a while but like others I felt very emotional on hearing your news. I am glad there is something that can potentially be done about the brain tumour, so fingers crossed with that. It is very difficult to deal with feelings of hopelessness so this is at least something on the horizon. It sounds as though you are getting a lot of support which is great, even though this means accepting increased dependency.
As you know I've not escaped lightly either although I am just one year into this journey. I feel ok though the last scan at the beginning of December showed up something "suspicious" - possible enlargement of a lymph node under my arm - worse case scenario is the cancer is gaining in resistance to the Paclitaxel. So I am having another CT scan at the end of next week in case we need to change the treatment. I hope not because I have settled into the routine, but who knows, cancer is certainly snapping at my heels too.
I know this pales into insignificance by comparison with the progression you are seeing. I want to say you have a special place in my heart and I am praying for you. You are an inspiration and I hope you can squeeze out the quality of life you need for a long time yet.
