Really Bad News !

Had really bad news today.  I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X

Parents
  • Dear Max

    I haven't been on this site for a while but like others I felt very emotional on hearing your news.  I am glad there is something that can potentially be done about the brain tumour, so fingers crossed with that.  It is very difficult to deal with feelings of hopelessness so this is at least something on the horizon.  It sounds as though you are getting a lot of support which is great, even though this means accepting increased dependency.

    As you know I've not escaped lightly either although I am just one year into this journey.  I feel ok though the last scan at the beginning of December showed up something "suspicious" - possible enlargement of a lymph node under my arm - worse case scenario is the cancer is gaining in resistance to the Paclitaxel.  So I am having another CT scan at the end of next week in case we need to change the treatment.  I hope not because I have settled into the routine, but who knows, cancer is certainly snapping at my heels too.

    I know this pales into insignificance by comparison with the progression you are seeing.  I want to say you have a special place in my heart and I am praying for you.  You are an inspiration and I hope you can squeeze out the quality of life you need for a long time yet.

    Hugs,

    Gill

Reply
  • Dear Max

    I haven't been on this site for a while but like others I felt very emotional on hearing your news.  I am glad there is something that can potentially be done about the brain tumour, so fingers crossed with that.  It is very difficult to deal with feelings of hopelessness so this is at least something on the horizon.  It sounds as though you are getting a lot of support which is great, even though this means accepting increased dependency.

    As you know I've not escaped lightly either although I am just one year into this journey.  I feel ok though the last scan at the beginning of December showed up something "suspicious" - possible enlargement of a lymph node under my arm - worse case scenario is the cancer is gaining in resistance to the Paclitaxel.  So I am having another CT scan at the end of next week in case we need to change the treatment.  I hope not because I have settled into the routine, but who knows, cancer is certainly snapping at my heels too.

    I know this pales into insignificance by comparison with the progression you are seeing.  I want to say you have a special place in my heart and I am praying for you.  You are an inspiration and I hope you can squeeze out the quality of life you need for a long time yet.

    Hugs,

    Gill

Children
No Data