Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
My heart goes out to you and the family at this time. There are no words I can find to make you feel better but with your wonderful support to others on this foumm just needed to put in print that I will hold you in my thoughts and send virtual cuddles - wish they could be real ones. Love and peace Jules xxxx
I cant tell you how much you all mean to me and my hubby (you may see his name pop up soon!). I have gone into a very strange mode - distant and quiet - think the body has shutdown from things for a bit!
I am seeing a gamma-knife specialist on Tuesday I think just to see if the brain lesion can be treated with targeted radiotherapy before I become symptomatic. The oncologist feels that I need rid of it to generally make what life I have left more comfortable. I have made no decisions either way and wont until I see if it is worth pursuing and the risks are minimal. The Prof is fine with whatever I decide but really does feel this could help me in the short term with pain and loss of ability, so I guess it must be a consideration for me.
Thank you for taking the time to talk to me especially with so many of you going through so much yourselves. You are a wonderfully supportive lot x
My hubby was always quiet (as you know!). You have time to process your way forward now and will find the right path for you and your family. We did all we could to keep hubby comfortable and, yes,it would have been easier if he had 'letme in' but this was his way and I loved and respected the man's dignity (though you all know how frustrated it left me).
Its at times like these that I wish the PM service was currently available but just know that your forum mates wish you, and of course your husband and family , peace within yourselves at this reflective time. You are in my thoughts as you continue to make decisions with the dignity you have always shown.This virtual connection is an amazing resource. Comforting hugs to you and yours (and of course we will welcome hubby too in due time). Jules x
Hi Max, you have been on my mind constantly ever since I heard your latest news. I wish there was something I could say, but words fail me right now. Just know that I am thinking about you and I look forward to hearing what the next step is for you on this journey. I see that you are seeing the specialist tomorrow. I will watch for your post after that, and hope that something can be done to alleviate some of what you are experiencing. Virtual hugs are around you my friend.
My dear max
How are you? I did email you did u get it?
Sorry ive not been around but got some
Complication at moment will see doctors
Monday so will see what gona happen?
Love n hugs to you xxxx
My dear max
How are you? I did email you did u get it?
Sorry ive not been around but got some
Complication at moment will see doctors
Monday so will see what gona happen?
Love n hugs to you xxxx
I too had a similar side effect to that drug a couple of years ago when I did the splits and broke my bubic bone. It made me feel like I was on a differnt planet and only took them for a few days, eventually reverting to paracetamol.
Wishing all the very very best for your meeting, sending love and hugs, Brian
Hi Max, you are such a night owl!! I will be thinking of you today (my time) and tomorrow your time. You will be in my prayers for your specialist appt. you have so many virtual friends rooting for you, you special lady. Bigs hugs, love Kathy xx
Hi Kathy .... Good to hear from you! I have been a rubbish sleeper a few years now and that's after taking a sleeping tablet. Nice to have time to browse the days events though and do the crossword! The MDT meeting about me is Wednesday so hopefully I will hear then or Thursday. Having read about cyberknife a lot now, it really seems quite common and easy to go through so I am not so terrified as I was - just another little hurdle to keep me comfy as long as possible! How are you my lovely? X
Hi Max, I am doing pretty well I think. Garden, pets, assisting with wedding arrangements keeping me busy. Mum (88) and 2 of my 5 siblings arrive March 8th for 19 days (for the wedding). Getting the 2 spare rooms ready is also a challenge. I have so much stuff to box up and place in shed. As hubby was ex miner and worked away we basically have 1 room devoted to protective equipment, flash jackets, men's work shirts etc a lot unused and still unwrapped. Will store till son has time and inclination to go through, take what he wants then I can pass the rest of the gear on. I will keep the riggers gloves and jackets, will keep me warm while sitting outside in winter. I am getting very excited at seeing my family again, travelling from Scotland. We will talk till the cows come home, laugh and probably shed a few tears and no doubt drink gallons of tea. Still doing admin re superannuation accts but will get there . eventually. Everything is doable. I am most fortunate in my family and friends and count my blessings. Hope you are keeping warm over there, the weather looks shocking. Xxx
Thanks for note on my thread and just wanting to let you know that am keeping you in my thoughts and hope the outcome of MDT chat/info will be what you need to hear to keep you comfy and within the arms of your loved ones.. Take care brave lady. Huge Hugs Jules x
Hi Max, you have been on my mind and certainly in my prayers every day. You are one brave lady and such a support and inspiration to everyone on this forum. I look forward to hearing the results of the MDT meeting on a plan for your treatment. I'm not familiar with a cyberknife procedure so can you enlighten me? This entire cancer journey for me is mind-blowing and I seem to learn something new about it every day.
Be kind to yourself and just know that we're all out here rooting for you.
Hi Max .hope you are well, you are one fantatic lady and we all love you to bits ,I am not to well but at 82 my life is comming to a end ,take care lots of love george xx
