Dearest Max

My heart goes out to you and the family at this time.  There are no words I can find to make you feel better but with your wonderful support to others on this foumm just needed to put in print that I will hold you in my thoughts and send virtual cuddles - wish they could be real ones.  Love and peace  Jules xxxx

I cant tell you how much you all mean to me and my hubby (you may see his name pop up soon!).  I have gone into a very strange mode - distant and quiet - think the body has shutdown from things for a bit!

I am seeing a gamma-knife specialist on Tuesday I think just to see if the brain lesion can be treated with targeted radiotherapy before I become symptomatic. The oncologist feels that I need rid of it to generally make what life I have left more comfortable.  I have made no decisions either way and wont until I see if it is worth pursuing and the risks are minimal.  The Prof is fine with whatever I decide but really does feel this could help me in the short term with pain and loss of ability, so I guess it must be a consideration for me.

Thank you for taking the time to talk to me especially with so many of you going through so much yourselves.  You are a wonderfully supportive lot x

I cant tell you how much you all mean to me and my hubby (you may see his name pop up soon!).  I have gone into a very strange mode - distant and quiet - think the body has shutdown from things for a bit!

I am seeing a gamma-knife specialist on Tuesday I think just to see if the brain lesion can be treated with targeted radiotherapy before I become symptomatic. The oncologist feels that I need rid of it to generally make what life I have left more comfortable.  I have made no decisions either way and wont until I see if it is worth pursuing and the risks are minimal.  The Prof is fine with whatever I decide but really does feel this could help me in the short term with pain and loss of ability, so I guess it must be a consideration for me.

Thank you for taking the time to talk to me especially with so many of you going through so much yourselves.  You are a wonderfully supportive lot x

Hi Max

My hubby was always quiet (as you know!).  You have time to process your way forward now and will find the right path for you and your family. We did all we could to keep hubby comfortable and, yes,it would have been easier if he had 'letme in' but this was his way and I loved and respected the man's dignity (though you all know how frustrated it left me).

Its at times like these that I wish the PM service was currently available but just know that your forum mates wish you, and of course your  husband and family , peace within yourselves at this reflective time. You are in my thoughts as you continue to make decisions with the dignity you have always shown.This virtual connection is an amazing resource.  Comforting hugs to  you and yours (and of course we will welcome hubby too in due time).  Jules x

Hi Max, you have been on my mind constantly ever since I heard your latest news. I wish there was something I could say, but words fail me right now. Just know that I am thinking about you and I look forward to hearing what the next step is for you on this journey. I see that you are seeing the specialist tomorrow. I will watch for your post after that, and hope that something can be done to alleviate some of what you are experiencing. Virtual hugs are around you my friend.

Lorraine

Hi Max how are things hope you are well had a bad few days myself  but ok just age 82  regards george xxx

MyLittle Sunshine .... didnt get your email, please try resending it.  Hope you are ok and the complication is resolvable.  Please let me know. 

Hi to my forum friends - hope you are al doing ok and will let you all know when I hear about the MDT meeting. x  Keep safe all x

Hi Max,

I too had a similar side effect to that drug a couple of years ago when I did the splits and broke my bubic bone. It made me feel like I was on a differnt planet and only took them for a few days, eventually reverting to paracetamol.

Wishing all the very very best for your meeting, sending love and hugs, Brian

Hi Brian .... certainly not good that you broke bones, but I am well impressed that you did the splits!!!! x

Hi Kathy .... Good to hear from you!  I have been a rubbish sleeper a few years now and that's after taking a sleeping tablet.  Nice to have time to browse the days events though and do the crossword!  The MDT meeting about me is Wednesday so hopefully I will hear then or Thursday.  Having read about cyberknife a lot now, it really seems quite common and easy to go through so I am not so terrified as I was - just another little hurdle to keep me comfy as long as possible!  How are you my lovely? X