Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
Gosh, I have been so poorly and unable to function at all. I thought the news had just struck me in a very strange way but it seems that the 30/500 Co-codamol I was prescribed on the 9th (took for 5days) just affected me very badly - I couldnt keep awake, thoroughly confused etc. Has anyone else reacted on high dose co-codamol? Wont be taking them again ha ha!
I saw a lovely lady consultant on Tuesday who wants to do cyberknife treatment on the brain tumour asap. There is an MDT meeting on Wednesday, so I should find out if I can have it then. If so, there are 3/4 appointments to plot the treatment and make the mask, then radiotherapy is given in one dose - so it will probably be around 3 weeks away. Meanwhile I am on steroids to help any swelling in the brain.
I definitely think I would like the treatment if it is offered because where my tumour is it could imminently affect my mobility, sight and speech. I dont want to be incapacitated for what may be months. So now we have all got to pray that the treatment is offered and is done in time! Surrendering my driving licence today was a sad feeling and I am feeling a little sorry for myself particularly as where I live (a small village) there is very sparce bus activity! My looks and independence are now just memories but when I see my lovely family and friends all rallying round to support me I feel very blessed to still be with them!
Thank you all so very much once again - your messages mean the world to me.
Just a little PM for Jo (Meerkat) if she reads this: I hope you are feeling okay after your op and will look forward to a quick one-liner email to know how you are when you feel up to it! I have been thinking about you and sending love.
