I think it's back !!!!!!

Hi Everyone

Well I've not been on here for quite awhile

As I've been going though alot at the moment.

AnywAy the past month or so my pain level

Has got worse and mobility had decreased

In movement to walk so I've been gp a few times

And have increased meds.

This week had to go back to gp as the pain has not

Been under controll and has spread to my left hip

And into my lower back, yet again another increase

In meds and awaiting a ct scan as he thinks the cancer

May be back and has spread to other parts ,

I'm so scared just don't know when it's going to end.

Parents
  • Hi all

    Well it's been sometime since I updated you all

    As many of you know I have been fighting my hospital

    To change to new hospital, well finally I got to see my

    New doctor on Thursday,

    After 1 hour consultation ( unlike the 5 mins I used to get)

    I'm being sent for some emergency scans, he said

    That there is a big chance that the CANCER is returning

    And that's why ive got so many problems with my leg,

    My mobility has decreased, my leg now goes cold

    Completely and turns blue/ purple and pain increased.

    They are also going to scan my hip and lower back cos

    I'm having pain there to. As you can imagine I'm worried

    And scared of what the out come will be? Or am I gping

    To be left like this for rest of my life.

    I asked if he had a plan but he didn't want to go into

    Detail till results are in, so now yes it's a waiting

    Game and another roller coaster that never ends.

  • MLS, I have been reading up on your latest posts and my heart goes out to you. You are sure having a tough time of it and going through so much pain from your disease, but also having to deal with a health care system that doesn't always put the patient's needs first. As if you didn't have enough struggles, you needed to use your energy to try and get someone to help you. I hope now that finally, someone appears to be on track with getting things done, that you will get the services you need so that you will have some quality of life. As both Max and Jules have said, come on here as much as you need to, and you can rant and rave all you like; you have earned the right to do that. Let us know how you get along with your new doctor, and the results of your latest scans.

    Take care and hugs to you from me.

    Lorraine

  • I'm so sorry to hear that. As you well know, the waiting is always tough but I hope the doctor comes up with a treatment plan soon.

    Debbie

    X

  • Unfortunately after a trip to gp yesterday

    I spent the day at the hospital being accessed

    As I had heart failure last year due to heart

    Condition which I didn't know I had,

    When I went gp cos I thought I had high bp

    With symptoms I got a shock high it was

    And spent 9hours in assessment unit

    Untill I ended up leaving as there was no

    Rush for them to see me after 9 hours of tests

    Seeing just bio ur and waiting 5 hours to see

    Consultant that never turned up.

    Will see how things go, this CANCER has

    Started to take its tole on my body .

    Hope you are all well and have a lovely weekend.

    I plan to spend quality time with my beautiful

    Who I love so much.

Reply
  • Unfortunately after a trip to gp yesterday

    I spent the day at the hospital being accessed

    As I had heart failure last year due to heart

    Condition which I didn't know I had,

    When I went gp cos I thought I had high bp

    With symptoms I got a shock high it was

    And spent 9hours in assessment unit

    Untill I ended up leaving as there was no

    Rush for them to see me after 9 hours of tests

    Seeing just bio ur and waiting 5 hours to see

    Consultant that never turned up.

    Will see how things go, this CANCER has

    Started to take its tole on my body .

    Hope you are all well and have a lovely weekend.

    I plan to spend quality time with my beautiful

    Who I love so much.

Children