Hi all

Well it's been sometime since I updated you all

As many of you know I have been fighting my hospital

To change to new hospital, well finally I got to see my

New doctor on Thursday,

After 1 hour consultation ( unlike the 5 mins I used to get)

I'm being sent for some emergency scans, he said

That there is a big chance that the CANCER is returning

And that's why ive got so many problems with my leg,

My mobility has decreased, my leg now goes cold

Completely and turns blue/ purple and pain increased.

They are also going to scan my hip and lower back cos

I'm having pain there to. As you can imagine I'm worried

And scared of what the out come will be? Or am I gping

To be left like this for rest of my life.

I asked if he had a plan but he didn't want to go into

Detail till results are in, so now yes it's a waiting

Game and another roller coaster that never ends.

Hi all

Well it's been sometime since I updated you all

As many of you know I have been fighting my hospital

To change to new hospital, well finally I got to see my

New doctor on Thursday,

After 1 hour consultation ( unlike the 5 mins I used to get)

I'm being sent for some emergency scans, he said

That there is a big chance that the CANCER is returning

And that's why ive got so many problems with my leg,

My mobility has decreased, my leg now goes cold

Completely and turns blue/ purple and pain increased.

They are also going to scan my hip and lower back cos

I'm having pain there to. As you can imagine I'm worried

And scared of what the out come will be? Or am I gping

To be left like this for rest of my life.

I asked if he had a plan but he didn't want to go into

Detail till results are in, so now yes it's a waiting

Game and another roller coaster that never ends.

MLS .....

I am sure you are worried and scared but thank goodness that at last someone is listening to you and being proactive to find out what is 'going on'.  Theres so little I can say to ease your fears, except that your friends here all love and admire you and we will be with you every step of the way!  Take care xxx

MLS

Just like Max just wanted to say am hear to listen at any offloading/rant you need to have during the waiting period (always an anxious time).  Pleased that you have at least a new team who are listening and now pushing things along. Big virtual hugs Jules x 

HI Mylittlesunshine,

So pleased that you have at last got your wish and that you are at last being listened to. But I am sorry to hear that it may have returned and that you have to wait for scans. One thing we all agree on, waiting is always a stressful time but as Max and Jules have both said your forum friends are always here for you anytime.

Sending best wishes and hugs, Brian.

MLS, I have been reading up on your latest posts and my heart goes out to you. You are sure having a tough time of it and going through so much pain from your disease, but also having to deal with a health care system that doesn't always put the patient's needs first. As if you didn't have enough struggles, you needed to use your energy to try and get someone to help you. I hope now that finally, someone appears to be on track with getting things done, that you will get the services you need so that you will have some quality of life. As both Max and Jules have said, come on here as much as you need to, and you can rant and rave all you like; you have earned the right to do that. Let us know how you get along with your new doctor, and the results of your latest scans.

Take care and hugs to you from me.

Lorraine

I'm so sorry to hear that. As you well know, the waiting is always tough but I hope the doctor comes up with a treatment plan soon.

Debbie

X

Hi Sunshine, I'm so very sorry to hear all the troubles you have been having.  I hope things turn out not to be your worst fear......hopefully the tests will help give the doctors a better idea of how to treat what's going on.  Sending you peace and strength.xxx

Hi max, jules, brain, Lorraine,Debbie beaker

Thank you so much for your kind messages

It means so much, I really don't know what I

Would of done if I hadn't have found the forum.

This forum is truely a speaical place with speaical

Kind and caring people.

I'm still waiting for my scan appointment if ive not

Heard by Wednesday will give them a reminder.

Hi LMS

You are absolutely right about this forum being a help.  Hope you have your scan appointment through soon but you are right to give them a 'nudge' if you do not hear anything.  It will keep you in their sights.  Hope you have a peaceful weekend and take care of yourself. Sending hugs. Jules x  P.S.  Just read your reply to Lorraine and am so sorry you had such a long day at the hospital.  Am sure you are feeling pretty weary but let that beautiful family of yours give you some extra special TLC.  bigger hugs.Jules

Unfortunately after a trip to gp yesterday

I spent the day at the hospital being accessed

As I had heart failure last year due to heart

Condition which I didn't know I had,

When I went gp cos I thought I had high bp

With symptoms I got a shock high it was

And spent 9hours in assessment unit

Untill I ended up leaving as there was no

Rush for them to see me after 9 hours of tests

Seeing just bio ur and waiting 5 hours to see

Consultant that never turned up.

Will see how things go, this CANCER has

Started to take its tole on my body .

Hope you are all well and have a lovely weekend.

I plan to spend quality time with my beautiful

Who I love so much.

Dear MLS,

What a lot you have been going through.!!!

I am so sorry that not only have you suffered with so much pain and discomfort you have suffered with the negative side of the NHS.

I do hope you get some quality care from these people soon and as you say have a plan in place.

The weather here today is awful (strong wind and rain) but I hope it is better with you and that you are having a lovely weekend with your family.

Keeping fingers crossed for your improved  future care.

Hugs

Annabel. xx