I think it's back !!!!!!

Hi Everyone

Well I've not been on here for quite awhile

As I've been going though alot at the moment.

AnywAy the past month or so my pain level

Has got worse and mobility had decreased

In movement to walk so I've been gp a few times

And have increased meds.

This week had to go back to gp as the pain has not

Been under controll and has spread to my left hip

And into my lower back, yet again another increase

In meds and awaiting a ct scan as he thinks the cancer

May be back and has spread to other parts ,

I'm so scared just don't know when it's going to end.

Parents
  • Hi all

    Well it's been sometime since I updated you all

    As many of you know I have been fighting my hospital

    To change to new hospital, well finally I got to see my

    New doctor on Thursday,

    After 1 hour consultation ( unlike the 5 mins I used to get)

    I'm being sent for some emergency scans, he said

    That there is a big chance that the CANCER is returning

    And that's why ive got so many problems with my leg,

    My mobility has decreased, my leg now goes cold

    Completely and turns blue/ purple and pain increased.

    They are also going to scan my hip and lower back cos

    I'm having pain there to. As you can imagine I'm worried

    And scared of what the out come will be? Or am I gping

    To be left like this for rest of my life.

    I asked if he had a plan but he didn't want to go into

    Detail till results are in, so now yes it's a waiting

    Game and another roller coaster that never ends.

  • MLS .....

    I am sure you are worried and scared but thank goodness that at last someone is listening to you and being proactive to find out what is 'going on'.  Theres so little I can say to ease your fears, except that your friends here all love and admire you and we will be with you every step of the way!  Take care xxx

Reply
  • MLS .....

    I am sure you are worried and scared but thank goodness that at last someone is listening to you and being proactive to find out what is 'going on'.  Theres so little I can say to ease your fears, except that your friends here all love and admire you and we will be with you every step of the way!  Take care xxx

Children
  • Hi max, jules, brain, Lorraine,Debbie beaker

    Thank you so much for your kind messages

    It means so much, I really don't know what I

    Would of done if I hadn't have found the forum.

    This forum is truely a speaical place with speaical

    Kind and caring people.

    I'm still waiting for my scan appointment if ive not

    Heard by Wednesday will give them a reminder.

  • Hi LMS

    You are absolutely right about this forum being a help.  Hope you have your scan appointment through soon but you are right to give them a 'nudge' if you do not hear anything.  It will keep you in their sights.  Hope you have a peaceful weekend and take care of yourself. Sending hugs. Jules x  P.S.  Just read your reply to Lorraine and am so sorry you had such a long day at the hospital.  Am sure you are feeling pretty weary but let that beautiful family of yours give you some extra special TLC.  bigger hugs.Jules