Hi ladies

I just want to wish you all a Happy and as Healthy a New Year as possible - bring on 2012.

Its good to drop in and see what others are up to - scan and more treatment (fingers crossed!) in January for me.

Best wishes

Sue x

Hello everybody, may I join you and introduce myself?  I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site.  I  am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel.  However, my hospital MDT  wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb.  I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome.  Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"

The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK

Best wishes, Hazel. X

Thank you all for your kind words. Mary is feeling quite good again today so she shall go to the ball! Seems the chemo is working for her at last.

My daughter and her boyfriend are staying at the hotel and said she can rest in their room if she needs to. We will see how it goes, even if we have dinner then come home it will be nice. Will let you know how we get on.

Best wishes,

John

Hi John, Mary hope you have a lovely time this evening il be thinking of you both

you deserve it take care. sharon xx

Jackie, thanks, but I don't think there has been any confusion as I have to take my steroids 12 hours and 6 hours PRE chemo, not after.   The domperidone is 2 tabs 3 times a day for 5 days.

However, as I said, will do as you say and take when I get home next time.

Today I've had awful stomach cramps, so I'm seeing it in my mind's eye as the treatment battling it out with tumours! 

My cousin's daughter is a gynae onc nurse specialist - I just found out the other day when I told them my news, so how lucky am I to have her at the other end of a text or e-mail?  She reminded me this morning that stomach cramps are quite a common after effect - not that that stops them being so incapacitating!

Still, I'll know what to expect next time.

Love Hazel xxx

John so pleased for you both.

Haze isn't it amazing how different the same treatments are! on the carbo/tax I took steroids for 3 days following chemo, on my present carco/dox I take the day before, day of and day after chemo! My Domperidone is one or two tabs up to four times a day! never had stomach cramps before but have had for the last few weeks i do find that peppermint caps help, though not all the time lol good news that you have a personal onc/gyn nurse to clear things up for you, the more reassurance given the better we feel!

Take care

Jackie

Thanks Ladies, we had a nice evening and also managed a couple of dances. There was a professional photographer there so I took the opportunity of having a family photograph taken - Mary and I with our three children plus one girlfriend and one boyfriend, lovely picture! Left at about 11.15, so not bad really.

Lovely day today, we had our lunch in the garden then watched the second half of the Rugby. Mary not feeling great, but a lot better than she was last week.

I hope everyone is ok, it's very quiet on here today.

Best wishes,

John

Aww! sounds like  you had a lovely evening and i bet the photo will look lovely too!

yes weathers been really nice today spring always makes you feel better dont you

think. take care both. sharon xx

Hello, John, so pleased you had a good evening.  Sorry I've not been on much, still feeling quite rough from 1st chemo - nausea and very bad stomach cramps.  Better soon, I hope!

Love to both, Hazel xxx

Hi Sharon,

yes we got the photo on the night and it is really nice, I'm tempted to scan it and put in my profile.

Hazel,

Sorry to hear you're still having problems, hopefully the next lot of chemo may help. No need to apologize for not posting, everyone understands how you feel.

Best wishes to all,

John

Hi John, Mary you should sounds lovely! well im back at hospital tomorrow for my ct scan

dont it get to feel like your second home!.then back on the 29th to see what theve got to say.

il keep you posted.big hug to you both take care. sharon xx

Hi Sharon,

Have scanned and uploaded the family pic, and it's been approved. Our two boys are far left and right, our daughter is next to me. Our youngest insisted on wearing his Mum's Daffodil pin, so I wore mine too even though we were supporting a different charity.

Good luck tomorrow, will keep my fingers crossed for the 29th, all the waiting makes it worse.

Hope everyone else is feeling better soon.

John

x

Hi Sharon,

Have scanned and uploaded the family pic, and it's been approved. Our two boys are far left and right, our daughter is next to me. Our youngest insisted on wearing his Mum's Daffodil pin, so I wore mine too even though we were supporting a different charity.

Good luck tomorrow, will keep my fingers crossed for the 29th, all the waiting makes it worse.

Hope everyone else is feeling better soon.

John

x

Hi, John,

I'm still feeling a bit rough, but I just had to send a quick message to say what a super, happy photo!  One to treasure, and Mary looks really lovely - well you all look good really, but Mary particularly so given what she's going through.

Love to all,

Hazel xxx

Hi All.

Not sure what I have missed or what I have told you as I have been so poorly again. My sickness has at last eased off and that is such a releif. I am still having the bowel trouble and I can't do anything while I am like this. Everytime I move I have to run to the loo and a watery clear jelly comes out. I have been taking my laxatives but they are giving me stomach cramps so have stopped them and will carry on with the prunes ect.. If it's not one thing it's another.

I will try  and catch up with blog today. I think Hazel, Jackie, Mary are all having chemo ??? Sharon I think you are going for scan or results. ? Laura, Dot, I think are ok..... Anyway glad to be back on site and feeling so much better.... It is funny how ill and low we can get and the bounce back....

Love as always Eileen. xxxxx

Lovely photo John, glad the  night went well. Hope you feel better soon Haze. Good luck with ct scan Judy.

take care

Jackie xx

Eileen, I'm so pleased to see you back, have been thinking of you a lot.  Sorry you have to go through all this each week, I feel ill enough and I've only had one so far - I'm already sick of stomach pain and feeling sick, so gawd knows how you and the others must feel! 

Jackie, thanks, hope you're getting through yours from Fri OK?

Sharon, hope ct goes OK.

Love to all, Hazel xxx

Hi Eileen, aww! poor you hope your feeling better soon

yes ct scan was this morning results on the 29th.

take care sharon xx

Hi Everyone hope your all doing ok x

Thank you Hazel,

yes I love the photo and have already got copies for the family. Sorry to hear you're feeling a bit rough, Mary is not so good now either. Probably over did it at the weekend, partying and gardening. I came home from work just after mid day because she was getting a bit upset with the stomach pains. She says it feels like the wind pain she suffered after her big op. I gave her two peppermint capsules and got her to have a soak in the bath, which helped a little but still uncomfortable.

Hi Eileen, Sorry to hear you're still suffering and hope you can get a break somewhere soon. Just to clarify, we booked our Florida flights when Mary was well, I don't think I would have done so right now, too much of a risk. Infact I am already thinking that we may have to cancel because it will cost a fortune to insure Mary, many companies won't even touch you if you're on chemo. Not sure we could go to America uninsured, Europe maybe but America would cost us a fortune if Mary became ill. That's a conversation we haven't had yet

Sharon, glad you got that over with today, keeping everything crossed for a good result.

Has anyone tried Activated Charcoal tablets / capsules? I bought some today for her to try. Supposed to be very good for absorbing gas and for the digestive system. I did check with her nurse first, because I read somewhere that it could interfere with other meds, but she felt they would be ok in moderation.

Best wishes,

John

x

John,

Oh, poor Mary, I SO know the feeling - as do most of us on here, no doubt.  But, I know I've said it before, and I'm going to say it again, she is so lucky to have you, John!   Please give her my love, and I hope the charcoal does the trick for her.

Love Hazel xxx

Hi,

It is strange how we are all full of wind this time around. I am because of the laxatives. I always have peppermint cordial in the house and have that with hot boiled water, it does the trick everytime.

Jackie I feel so sorry for you having to sit around there half the day as Hazel says drinking that muck.. We are just not up to getting dressed and going out, well I know I am not. One my clothes are so uncomfortable with my tummy swollen and I think what is the point when I am not going anywhere....

Good luck anyway and I will be thinking of you.......

Love always Eileen xxxx

Hi All

Fortunately feeling much better this morning so CT not feeling so problematic! yes i do have the stuff to drink, I've always quite liked it before lol thou never had it so close to chemo and taste is vile at the mo lol. As I am feeling better think I may be able to drive that far which means much less hanging around, my friend has a meeting due to finish at 3.30 and is going to phone me to see if I still feel up to it. She was going to pick me up at 12! that would have left me at the hosp for around 71/2 hours, would probably have been ok but can't find charger for Kindel!!! would prefer to drive myself as its less restrictive but will see how it goes.

John, have never tried the charcoal but have been living on peppermint caps! never had this problem till this time round and could do without it thanks very much! its at best most unpleasant and certainly leaves you feeling not to know what to do for the best. However so far today it is gone!!!!!!

Eileen clothes are not a problem for me as I don't have normal symptoms! abdo feels bloated with the wind pains but have no swelling or fluid therefore clothes fit ok (or would if I could stop putting on weight lol)

Haze - glad to hear you are coming out the other side, I had forgotten how nasty it makes you feel! my friend says my expectations this time are to high and I didn't feel any better last time, I just thought I did lol think she's probably right plus the boast from the steroids on Fri and Sat did make me feel better so I expected it to continue which of course it didn't lol

Take care all

Jackie

xx

Hi Jackie, Hope your day was OK after all.  Glad you're feeling better, it's such a relief isn't it?  I am fine today, just my usual heavy bellyache which I've grown used to, sort of, and have been shopping in the sunshine - a treat to get out after being stuck inside for days.

Eileen, poor thing, don't reckon you get much chance to do anything in between tortures, do you?!  Hope you are a bit better anyway, bless you.

Lots of love, Hazel xxx