Hi ladies

I just want to wish you all a Happy and as Healthy a New Year as possible - bring on 2012.

Its good to drop in and see what others are up to - scan and more treatment (fingers crossed!) in January for me.

Best wishes

Sue x

Hello everybody, may I join you and introduce myself?  I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site.  I  am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel.  However, my hospital MDT  wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb.  I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome.  Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"

The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK

Best wishes, Hazel. X

Hi Hazel,

I did notice the time of your posts, sorry to hear you are feeling so awful, I hope you're a bit better by now.

Mary had another good day today (that's 2 in a row!!), just a bit tired. We actually went out for a curry tonight, although she didn't eat much it was good for her to have an evening out, first time for weeks. Hopefully she'll be good again tomorrow and we will get to go to the Ball, party frock at the ready so keep your fingers crossed for us.

Jackie, Glad to hear you got of to a good start, that's promising. Thanks for the advice on anti-sickness tabs. Apart from the day after chemo, Mary had only been taking her Doms when she felt nauseous so like Hazel perhaps we are doing it wrong too.

Best wishes to everyone, especially those who are feeling awful at the moment.

John

Hi Everyone, hope your all ok.Eileen hope your feeling better now big  hugs to you.

John and Mary fingers crossed you feel better tomorrow [you shall go to the ball!]

Dot nice to hear from you its been a while. Hazel, Jackie, and anyone ive missed

have a nice weekend lots of love sharon xxxxxx

Hi, Jackie,

I did know that I had to take the domperidone regardless of whether I felt sick or not as prevention is easier than cure, but they told me to start them next day so thought it best to do as I was told.  However, I"ll do as you suggest next time and take a couple when I get home!

Hope you're OK yourself.

Love, Hazel xxx

Hello, John,

Thanks for your concern.  I wasn't too bad yesterday after all, managed a bit of shopping, but just felt very tired all afternoon and evening, so had an early night and slept quite well for me!  Feel reasonable this morning, so far!

I hope Mary stays well enough to wear her posh frock this evening and that you both have a lovely time!

Love to you both,

Hazel xxx

Hi all

Haze as an ex nurse I don't always get the same advice as they assume I already know! however injection or tab, any anti sickness will only last a max of 6 hours, so can see no good reason for the advice you were given and as I've come to no harm doing it 'my' way think it would be worth trying! I take mine pre breakfast, lunch, supper and bed (usually about 1/2 hour before each) I only take one unless I'm feeling a tad nauseous then I take 2, I usually stop them on day 3 or at least only take them as and when i feel a need lol I wonder if you advice got mixed up with the steroids cos you usually don't take them till the day after chemo?

John i absolutly hate being sick or worse feeling sick so do everything in my power to prevent it! it works for me as descibed above and I really hope this can help others, feeling sick drags you down and makes everything harder to deal with. So, is Mary well today for the ball, have my fingers crossed and hope to hear it was a great time!

Managed to do a little more today (not a lot so far but hey) before the gut ache kicked in, its not as bad as pre chemo but am taking it easy at the mo and will try again once it goes. Thinking it must be the extra steroids 'shrinking' the tumours as probably a bit early for the chemo! as I finish them today, tom should be interesting lol

Take care

Jackie xx

Thank you all for your kind words. Mary is feeling quite good again today so she shall go to the ball! Seems the chemo is working for her at last.

My daughter and her boyfriend are staying at the hotel and said she can rest in their room if she needs to. We will see how it goes, even if we have dinner then come home it will be nice. Will let you know how we get on.

Best wishes,

John

Hi John, Mary hope you have a lovely time this evening il be thinking of you both

you deserve it take care. sharon xx

Jackie, thanks, but I don't think there has been any confusion as I have to take my steroids 12 hours and 6 hours PRE chemo, not after.   The domperidone is 2 tabs 3 times a day for 5 days.

However, as I said, will do as you say and take when I get home next time.

Today I've had awful stomach cramps, so I'm seeing it in my mind's eye as the treatment battling it out with tumours! 

My cousin's daughter is a gynae onc nurse specialist - I just found out the other day when I told them my news, so how lucky am I to have her at the other end of a text or e-mail?  She reminded me this morning that stomach cramps are quite a common after effect - not that that stops them being so incapacitating!

Still, I'll know what to expect next time.

Love Hazel xxx

John so pleased for you both.

Haze isn't it amazing how different the same treatments are! on the carbo/tax I took steroids for 3 days following chemo, on my present carco/dox I take the day before, day of and day after chemo! My Domperidone is one or two tabs up to four times a day! never had stomach cramps before but have had for the last few weeks i do find that peppermint caps help, though not all the time lol good news that you have a personal onc/gyn nurse to clear things up for you, the more reassurance given the better we feel!

Take care

Jackie

Thanks Ladies, we had a nice evening and also managed a couple of dances. There was a professional photographer there so I took the opportunity of having a family photograph taken - Mary and I with our three children plus one girlfriend and one boyfriend, lovely picture! Left at about 11.15, so not bad really.

Lovely day today, we had our lunch in the garden then watched the second half of the Rugby. Mary not feeling great, but a lot better than she was last week.

I hope everyone is ok, it's very quiet on here today.

Best wishes,

John

Thanks Ladies, we had a nice evening and also managed a couple of dances. There was a professional photographer there so I took the opportunity of having a family photograph taken - Mary and I with our three children plus one girlfriend and one boyfriend, lovely picture! Left at about 11.15, so not bad really.

Lovely day today, we had our lunch in the garden then watched the second half of the Rugby. Mary not feeling great, but a lot better than she was last week.

I hope everyone is ok, it's very quiet on here today.

Best wishes,

John

Aww! sounds like  you had a lovely evening and i bet the photo will look lovely too!

yes weathers been really nice today spring always makes you feel better dont you

think. take care both. sharon xx

Hello, John, so pleased you had a good evening.  Sorry I've not been on much, still feeling quite rough from 1st chemo - nausea and very bad stomach cramps.  Better soon, I hope!

Love to both, Hazel xxx

Hi Sharon,

yes we got the photo on the night and it is really nice, I'm tempted to scan it and put in my profile.

Hazel,

Sorry to hear you're still having problems, hopefully the next lot of chemo may help. No need to apologize for not posting, everyone understands how you feel.

Best wishes to all,

John

Hi John, Mary you should sounds lovely! well im back at hospital tomorrow for my ct scan

dont it get to feel like your second home!.then back on the 29th to see what theve got to say.

il keep you posted.big hug to you both take care. sharon xx

Hi Sharon,

Have scanned and uploaded the family pic, and it's been approved. Our two boys are far left and right, our daughter is next to me. Our youngest insisted on wearing his Mum's Daffodil pin, so I wore mine too even though we were supporting a different charity.

Good luck tomorrow, will keep my fingers crossed for the 29th, all the waiting makes it worse.

Hope everyone else is feeling better soon.

John

x

Hi, John,

I'm still feeling a bit rough, but I just had to send a quick message to say what a super, happy photo!  One to treasure, and Mary looks really lovely - well you all look good really, but Mary particularly so given what she's going through.

Love to all,

Hazel xxx

Hi All.

Not sure what I have missed or what I have told you as I have been so poorly again. My sickness has at last eased off and that is such a releif. I am still having the bowel trouble and I can't do anything while I am like this. Everytime I move I have to run to the loo and a watery clear jelly comes out. I have been taking my laxatives but they are giving me stomach cramps so have stopped them and will carry on with the prunes ect.. If it's not one thing it's another.

I will try  and catch up with blog today. I think Hazel, Jackie, Mary are all having chemo ??? Sharon I think you are going for scan or results. ? Laura, Dot, I think are ok..... Anyway glad to be back on site and feeling so much better.... It is funny how ill and low we can get and the bounce back....

Love as always Eileen. xxxxx

Lovely photo John, glad the  night went well. Hope you feel better soon Haze. Good luck with ct scan Judy.

take care

Jackie xx

Eileen, I'm so pleased to see you back, have been thinking of you a lot.  Sorry you have to go through all this each week, I feel ill enough and I've only had one so far - I'm already sick of stomach pain and feeling sick, so gawd knows how you and the others must feel! 

Jackie, thanks, hope you're getting through yours from Fri OK?

Sharon, hope ct goes OK.

Love to all, Hazel xxx

Hi Eileen, aww! poor you hope your feeling better soon

yes ct scan was this morning results on the 29th.

take care sharon xx

Hi Everyone hope your all doing ok x