I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Hello everybody, may I join you and introduce myself? I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site. I am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel. However, my hospital MDT wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb. I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome. Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"
The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK
Thanks, Eileen. Our circumstances seem very similar - I too thought it was a bowel prob until a colonoscopy proved otherwise, and gastroenterology consultant suggested something on ovary was pressing on bowel causing the pain (he could feel something there which my GP had dismissed as "probably muscle"). After MRI & CT arranged by ge consultant confirmed cancer, was transferred to gynae for more tests, and now I may be transferred again to breast clinic if biopsy shows that to be primary site. I am praying that won't happen, or if it does they"ll get move on - it's been 5 months since all this started.
I was thinking last night I didn't start my treatment until the 13th April and was worried sick that by the time they had started it that it would have spread everywhere. My Gp was treating me for irritable bowel for weeks until my friend who is a nurse got me in to the bowel clinic and then everything was like a roller coaster. I didn't have pain just couldn't stop going to the loo. The same thing is happening again as this cystic mass is pressing on the bowel so I am not actually going properly just awful bits coming out. I told my Dr and he sent me for a scan which showed that my bowel has stools in it. I have tried to tell him that it's because the bowel is distorted but they don't listen. I have been like this for 7 weeks now but get the scan results on Thursday. I just wish they would listen to us when we tell them things aren't right.
Anyway enough waffling from me. I hope everything will be alright for you and have everything crossed for you..
Oh Eileen, you poor girl, you have been through it! I'll be keeping everything crossed for you as well, and hope they do something as a result of your scan. Don't hear you moan about your own probs much, you always seem to be reassuring other people, so if you want a good waffle I'm here any time!
Incidentally, I was wondering why your username is "Redlizzie" - now I understand why "red" from your reply to Laura, but why "lizzie"? (Ignore me if I'm being too nosey!)
My partner would disagree with you on that moaning thing.... I never stop ....
The red is because I support Manchester United and yeas I had red hair... The Lizzie is funny really. I used to work with a girl called Diane a few years ago and we got on so well ( still do actually ) we are always laughing and one day in work we were talking about Jim McDonald who was in Coronation Street. He use to always say to his wife Liz ( In a northern Ireland accent ) Catch yourself on now Elizabeth. Your probably thinking I am mad as anything. We starting saying it to each other in the accent and it stuck I call her Liz, all her kids call me Liz and people think we are crazy... Life is for laughing and not taking yourself too serious I think.
Sorry to hear your CA125 is up again did they say what it was up to ?
It's the dreaded scan results I know just how scared I am when I go for mine. I don't really chat to people at my hospital as it's like a cattle market but nobody ever looks scared ( I suppose we all cover it up well ) So you have to wait for the appointment then prob another week for results. They way I look at it though Sharon is they are on the ball with the checking, so if it has come back again it's early stages that can be hopefully zapped with more chemo..
My chemo hasn't worked so I start another more aggressive one on the 1st March. I am worried that if this doesn't work then it is not good, but for now I live in hope and carry on laughing....
Keep coming on to have as much moaning as you want to.
Your count is low really as mine never went that low. When it came back in July it was over 100 and then got to 200 and with the 5 chemo's I have just had it hasn't gone down. I wouldn't worry too much about it ( easier said I know ) but I am sure it won't be as bad as you think. Keep those posotive thoughts.
Hi Sharon, sorry to hear that your count has gone up but as Eileen says they are on the ball and hopefully are just being careful, I think we all have that dread when we go for our scans, I tell myself that all is good and stick with the positive approach until they tell me anything different. It works for me. If you remember I had a bad diagnosis and the chemo seemed to sort it out, so chin up hugggggggggs.
It is hard trying to deal with this disease and my prayers are always with you all.
Hi Sharon, sorry to hear that your count has gone up but as Eileen says they are on the ball and hopefully are just being careful, I think we all have that dread when we go for our scans, I tell myself that all is good and stick with the positive approach until they tell me anything different. It works for me. If you remember I had a bad diagnosis and the chemo seemed to sort it out, so chin up hugggggggggs.
It is hard trying to deal with this disease and my prayers are always with you all.
