I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Hello everybody, may I join you and introduce myself? I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site. I am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel. However, my hospital MDT wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb. I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome. Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"
The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK
I have just read your post and I am sorry your going through this yet again. I have not been on the site for a while and was only thinking yesterday I must post something.
Please don't let some of our stories scare you as we are all in the same boat and we all manage to get through the treatments. I feel for you having to wait until the 22nd. You are probably thinking constantly about the results and it seems unfair that we have to wait that long. Whatever the outcome though there is always treatment you can have.
Hopefully the other ladies will come back on site now we have a new lady.
welcome to our little group, we have been quiet for a while, I haven't been on the computer much lately, life just gets in the way sometimes lol.
I just hope that being able to chat to someone about your symptoms will be as helpful to you as it is to me, I have always found great comfort knowing there is somewhere here to talk to, other than always bogging down my family with my concerns.
Eileen I hope you are doing good and Tony it is good to see your post, sorry that chemo is taking its toll on you. Haven't heard from Jackie, I am hoping that all is well with her too and the others of our group
I just wish I could get some treatment started, horrible as it may be, to relieve me of some of the constant nagging of these tumours - I seem to have been waiting forever, 2 steps forward and one step back, having this scan and that scan, this test and that test! Roll on 22nd!
Sorry to moan, but I know you all know what it's like, that's the best thing about this site.
That sounds so familiar what you have said. I remember actually knowing I had a 6cm tumour in my ovarie but because I thought I had something wrong with my bowel and it was the bowel specialist who found it I had then to be transferred to gynecology for more tests, then they sent me to another hospital for a biopsy as it was in a very funny place, very close to the bowel. This was early January 2010 and I wasn't diagnosed officially until March 10th. It is the waiting that is very very hard.
Once you know what you are dealing with then it becomes easier. I think we all feel the same about that. ( it's the not knowing ) You feel like the tumour is taking over your body.
Keep coming on the site and let us know how you are feeling as we are a very close friendly group.....
Love to you Dot hope your keeping well.Hi to Sharon, Jackie, Mary, and everyone else.
I have not heard of that one. I hope you manage to get through it.. I am finding it tough going and have only had 5 cycles but my veins are so poor now that I dread the canula going in and they always have about 3 attempts, so I am like a pin cushion.
I am now on my second lot. The first lot have me Irinotecan for 17 and Avastin for 14 sessions...It was quite a lot for my poor little body to take so I had to have a break for 3 months....and now on Number 2...A bit of a pain as it didn't give me this much trouble the first set so muct still be in my system.
Oh well we will see how it goes and yes I know all about the pin cushion scenario!!
Thanks, Eileen. Our circumstances seem very similar - I too thought it was a bowel prob until a colonoscopy proved otherwise, and gastroenterology consultant suggested something on ovary was pressing on bowel causing the pain (he could feel something there which my GP had dismissed as "probably muscle"). After MRI & CT arranged by ge consultant confirmed cancer, was transferred to gynae for more tests, and now I may be transferred again to breast clinic if biopsy shows that to be primary site. I am praying that won't happen, or if it does they"ll get move on - it's been 5 months since all this started.
Thanks, Eileen. Our circumstances seem very similar - I too thought it was a bowel prob until a colonoscopy proved otherwise, and gastroenterology consultant suggested something on ovary was pressing on bowel causing the pain (he could feel something there which my GP had dismissed as "probably muscle"). After MRI & CT arranged by ge consultant confirmed cancer, was transferred to gynae for more tests, and now I may be transferred again to breast clinic if biopsy shows that to be primary site. I am praying that won't happen, or if it does they"ll get move on - it's been 5 months since all this started.
I was thinking last night I didn't start my treatment until the 13th April and was worried sick that by the time they had started it that it would have spread everywhere. My Gp was treating me for irritable bowel for weeks until my friend who is a nurse got me in to the bowel clinic and then everything was like a roller coaster. I didn't have pain just couldn't stop going to the loo. The same thing is happening again as this cystic mass is pressing on the bowel so I am not actually going properly just awful bits coming out. I told my Dr and he sent me for a scan which showed that my bowel has stools in it. I have tried to tell him that it's because the bowel is distorted but they don't listen. I have been like this for 7 weeks now but get the scan results on Thursday. I just wish they would listen to us when we tell them things aren't right.
Anyway enough waffling from me. I hope everything will be alright for you and have everything crossed for you..
Oh Eileen, you poor girl, you have been through it! I'll be keeping everything crossed for you as well, and hope they do something as a result of your scan. Don't hear you moan about your own probs much, you always seem to be reassuring other people, so if you want a good waffle I'm here any time!
Incidentally, I was wondering why your username is "Redlizzie" - now I understand why "red" from your reply to Laura, but why "lizzie"? (Ignore me if I'm being too nosey!)
My partner would disagree with you on that moaning thing.... I never stop ....
The red is because I support Manchester United and yeas I had red hair... The Lizzie is funny really. I used to work with a girl called Diane a few years ago and we got on so well ( still do actually ) we are always laughing and one day in work we were talking about Jim McDonald who was in Coronation Street. He use to always say to his wife Liz ( In a northern Ireland accent ) Catch yourself on now Elizabeth. Your probably thinking I am mad as anything. We starting saying it to each other in the accent and it stuck I call her Liz, all her kids call me Liz and people think we are crazy... Life is for laughing and not taking yourself too serious I think.
