Hi ladies

I just want to wish you all a Happy and as Healthy a New Year as possible - bring on 2012.

Its good to drop in and see what others are up to - scan and more treatment (fingers crossed!) in January for me.

Best wishes

Sue x

Hello everybody, may I join you and introduce myself?  I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site.  I  am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel.  However, my hospital MDT  wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb.  I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome.  Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"

The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK

Best wishes, Hazel. X

Hi Hazel,

I have just read your post and I am sorry your going through this yet again. I have not been on the site for a while and was only thinking yesterday I must post something.

Please don't let some of our stories scare you as we are all in the same boat and we all manage to get through the treatments. I feel for you having to wait until the 22nd. You are probably thinking constantly about the results and it seems unfair that we have to wait that long. Whatever the outcome though there is always treatment you can have.

Hopefully the other ladies will come back on site now we have a new lady.

Love always Eileen xxxxxx

Hello to all you beautiful ladies - just woke up after 3 days of chemo hell and thought I would say hi..

Much Love

Tony xxxx

Hi sleeping beauty,

Gosh it must have been harding going to knock you out for 3 days. Which chemo are you on Tony ?

Anyway lovely to have you back.

Love always Eileen xxxx

Hi Hazel,

welcome to our little group, we have been quiet for a while, I haven't been on the computer much lately, life just gets in the way sometimes lol.

I just hope that being able to chat to someone about your symptoms will be as helpful to you as it is to me, I have always found great comfort knowing there is somewhere here to talk to, other than always bogging down my family with my concerns.

Eileen I hope you are doing good and Tony it is good to see your post, sorry that chemo is taking its toll on you. Haven't heard from Jackie, I am hoping that all is well with her too and the others of our group

Hugs to all

Dot xxxxxxxxx

Thank you Eileen and Dot for your warm welcome! 

I just wish I could get some treatment started, horrible as it may be, to relieve me of some of the constant nagging of these tumours - I seem to have been waiting forever, 2 steps forward and one step back, having this scan and that scan, this test and that test!  Roll on 22nd! 

Sorry to moan, but I know you all know what it's like, that's the best thing about this site.

Love to all, Hazel x

Hi Eileen,

I am on Irinotecan and Avastin every 3 weeks,

T xx

Oh Hazel,

That sounds so familiar what you have said. I remember actually knowing I had a 6cm tumour in my ovarie but because I thought I had something wrong with my bowel and it was the bowel specialist who found it I had then to be transferred to gynecology for more tests, then they sent me to another hospital for a biopsy as it was in a very funny place, very close to the bowel. This was early January 2010 and I wasn't diagnosed officially until March 10th. It is the waiting that is very very hard.

Once you know what you are dealing with then it becomes easier. I think we all feel the same about that. ( it's the not knowing )  You feel like the tumour is taking over your body.

Keep coming on the site and let us know how you are feeling as we are a very close friendly group.....

Love to you Dot hope your keeping well.Hi to Sharon, Jackie, Mary, and everyone else.

Love as always Eileen xxxx

Oh Hazel,

That sounds so familiar what you have said. I remember actually knowing I had a 6cm tumour in my ovarie but because I thought I had something wrong with my bowel and it was the bowel specialist who found it I had then to be transferred to gynecology for more tests, then they sent me to another hospital for a biopsy as it was in a very funny place, very close to the bowel. This was early January 2010 and I wasn't diagnosed officially until March 10th. It is the waiting that is very very hard.

Once you know what you are dealing with then it becomes easier. I think we all feel the same about that. ( it's the not knowing )  You feel like the tumour is taking over your body.

Keep coming on the site and let us know how you are feeling as we are a very close friendly group.....

Love to you Dot hope your keeping well.Hi to Sharon, Jackie, Mary, and everyone else.

Love as always Eileen xxxx

Thanks, Eileen.  Our circumstances seem very similar - I too thought it was a bowel prob until a colonoscopy proved otherwise, and gastroenterology consultant suggested something on ovary was pressing on bowel causing the pain (he could feel something there which my GP had dismissed as "probably muscle").  After MRI & CT  arranged by ge consultant confirmed cancer, was transferred to gynae for more tests, and now I may be transferred again to breast clinic if biopsy shows that to be primary site.  I am praying that won't happen, or if it does they"ll get move on - it's been 5 months since all this started.

Love Hazel. x

Hi Hazel,

I was thinking last night I didn't start my treatment until the 13th April and was worried sick that by the time they had started it that it would have spread everywhere.  My Gp was treating me for irritable bowel for weeks until my friend who is a nurse got me in to the bowel clinic and then everything was like a roller coaster. I didn't have pain just couldn't stop going to the loo. The same thing is happening again as this cystic mass is pressing on the bowel so I am not actually going properly just awful bits coming out. I told my Dr and he sent me for a scan which showed that my bowel has stools in it. I have tried to tell him that it's because the bowel is distorted but they don't listen. I have been like this for 7 weeks now but get the scan results on Thursday. I just wish they would listen to us when we tell them things aren't right.

Anyway enough waffling from me. I hope everything will be alright for you and have everything crossed for you..

Love Eileen xxxx

Oh Eileen, you poor girl, you have been through it!  I'll be keeping everything crossed for you as well, and hope they do something as a result of your scan.  Don't hear you moan about your own probs much, you always seem to be reassuring other people, so if you want a good waffle I'm here any time!

Incidentally, I was wondering why your username is "Redlizzie" - now I understand why "red" from your reply to Laura, but why "lizzie"?  (Ignore me if I'm being too nosey!)

Love, Hazel x

Ha Ha Hazel,,,,

My partner would disagree with you on that moaning thing.... I never stop ....

The red is because I support Manchester United and yeas I had red hair... The Lizzie is funny really. I used to work with a girl called Diane a few years ago and we got on so well ( still do actually ) we are always laughing and one day in work we were talking about Jim McDonald who was in Coronation Street. He use to always say to his wife Liz ( In a northern Ireland  accent ) Catch yourself on now Elizabeth. Your probably thinking I am mad as anything. We starting saying it to each other in the accent and it stuck I call her Liz, all her kids call me Liz and people think we are crazy... Life is for laughing and not taking yourself too serious I think.

Love Eileen xxxxx

Ps ask away xxxxxx

Ah well, that's what partners are for, to have their ears bent!

Brilliant, you and your mate remind me of when I was at work and we used to have a good giggle most if the day!  Daft but happy!

Hazel x

Hi  Ladies hope your all keeping well avnt been on here for a while.a warm welcome to Haze.

this site is the best ever! always here to help and make you feel at ease.im a bit down at the

minute so im gonna have a moan!.had my last check up nov. everything was ok went yesterday

and my ca 125 is on the rise again so im waiting to have ct scan and see wots going on then what?

can anyone enlighten me.just got my hair to a decent length too! anyway enough of me moanin!

take care all BIG HUGS [julygirl 58] sharon xxxxxx

Hi Sharon,

Sorry to hear your CA125 is up again did they say what it was up to ?

It's the dreaded scan results I know just how scared I am when I go for mine. I don't really chat to people at my hospital as it's like a cattle market but nobody ever looks scared ( I suppose we all cover it up well ) So you have to wait for the appointment then prob another week for results.  They way I look at it though Sharon is they are on the ball with the checking, so if it has come back again it's early stages that can be hopefully zapped with more chemo..

My chemo hasn't worked so I start another more aggressive one on the 1st March.  I am worried that if this doesn't work then it is not good, but for now I live in hope and carry on laughing....

Keep coming on to have as much moaning as you want to.

Love always Eileen xxxxx

Hi Eileen, thanks for cheering me up a little bit anyway!, when i had my check up in nov

it was 17 now its 86 i feel fine no aches or pains anyehere.im the same i hate going for

ct scans because im scared of the results this bloody disease! no doubt the scan will

be in a couple of weeks il keep you posted.

lots of love sharon xxxxxxxx

Hi again Sharon,

Your count is low really as mine never went that low. When it came back in July it was  over 100 and then got to 200 and with the 5 chemo's I have just had it hasn't gone down. I wouldn't worry too much about it ( easier said I know ) but I am sure it won't be as bad as you think. Keep those posotive thoughts.

xxxxxxxxxxxxxxxxxx

Hi Sharon, sorry to hear that your count has gone up but as Eileen says they are on the ball and hopefully are just being careful, I think we all have that dread when we go for our scans, I tell myself that all is good and stick with the positive approach until they tell me anything different. It works for me. If you remember I had a bad diagnosis and the chemo seemed to sort it out, so chin up hugggggggggs.

It is hard trying to deal with this disease and my prayers are always with you all.

Dot xxxx