hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
Sorry I havnt been on much but Ive been on a wee break, I came back on yesterday then read about Rosie! I signed out again coz I really didnt know what to say, Everything I wanted to say had already been said So all I can add is RIP Rosie, You will be so missed xxxx
Well I finshed chemo 4 weeks ago and tomorrow Im in hosp for pre op assesment b4 my op on 14th July...not that Im scared rite? Nah Im bricking next week girls.
I have cleaned out wardrobes Drawers ( no not the wearable ones, although I now own some new ones lol and the old ones must go!!!) Im now onto windows n blinds!!!! I will do anything rather than sit and think about this *** disease. On Thursday I have planned that I will go up loft and clear that out ( I have some pretty summer things up there thaI havnt been able to wear, but Ive lot so much weight they will fit me now lol lol )
Anyway Ladies ...Upwards and onwards Sending much love to everyone
Strange as it sound but I feel quite ok today. More like my self. I just got back from meeting the surgeon who will operate on Thursday. I must say I can't wait to have this crap out of me.
I hope you all had a good day today, the rain is slowly creeping but I dont mind. The day was lovely, worm and sunny. Hubby was the one responsible for feeding us tonight so we had pizza, chips and green salad with feta cheese yummy. The kiddies are in bed watching Horid Henry. I will watch tv for a bit and then getting ready for work tomorrow.
How was your day today? What did you do?
PS
I came across this song and I thought I should share it with you
glad you're feeling positive today, let me introduce myself, I'm Colette or Col to my friends, I'm 46 with 2 grown up daughters of 23 and 21, I had a lumpectomy in May 2010, 6 sessions of chemo then 7 weeks of radio and ive been back at work since beginning of march, I have a very supportive partner, dont get me wrong this last year certainly took its toll on our relationship but we're back to normal now and im feeling very well, I also had all lymph nodes removed, I also am on Tamoxifen which is a pain as its put me into an early menopause, so the hot flushes are a pain.
Positive mental attitude, good luck with op, ask anything you want and i'll try and answer xxx
Thank you for joining my little world, well not so little now after having all this briliant people on line to talk to.
I am very happy to hear that you are feeling well. Like you I am also lucky to have my hubby who is very supportive. My kiddies are 8 and 5 still little to understand what is going on, saying that I explained to CJ what is happening but he knows that mummy will be ok.
I am positive but I do have my low moments. I just hope and pray that the c didnt spread.
Have a lovely day and I hope we will stay in touch
I had my follow up today and yup - tamoxifin. Not looking forward to taking them but as border line 4/8 i am going to give them a try. The doctor i saw today was really really lovely and there was nothing clinical about my visit, which made it so much easier for me. I have been thinking a lot lately about the things that I went through, physically and emotionally and realised that it really is a journey. So, welcome Maki to our wonderful world of journiers, where through anger tears and frustration you will find the hidden pockets of the most warm, beautiful people who will help you to reach the other side.
Maki, when my grandaughter (5) wanted to know why nanny was unwell, we tried to explain it in a different way to the norm. We pressed hard on her arm and told her that pressure can hurt. We then showed her a caterpillar wrapped in its pupus and told her that nanny had a sort of caterpillar that was trying to make a nest. The nest was not nice to have inside and if it grew it would press harder on nannys chest so the doctor had to take it away. With regards to the chemo, we told her that the medicine to stop the 'sort of' caterpillar making more nests, would make nannys hair come our becasue the caterpillar thing likes making the nest with hair. And the good thing was that when the caterpillar had gone, the hair would come back, and that's how we would all know that nanny was okay. It was the same priniciple for rd safety. We used to tell the kids that if they were silly enough to go into the road there was a chance they would be hit by a car. We told them not all broken things can e fixed and we didn't want them to be all broken and have to go in the dusbin for the dustman. Guess who NEVER goes in the road haha!
You will find your way I promise, even when there are times you wonder how that can be possible. Just accept though, that all of your feelings are normal, highs lows and everything in between, and accept them for what they are, a journey and come see us when you need support or a moan or even jsut a scream or laugh.
Please get some difflam mouthwash for your mouth from either your dr or dentist its brilliant, use it neat for the pain and water it down to use when the pain has gone, its brilliant and really works, please spread the word , had to have two teeth removed before bone treatment could commence and it has helped me so much.
Thank you very much for your advise. But this was a while ago I had problems with my mouth. Luckily my mouth has healed now n I don't have any problems now. As for the difflam, it didn't help me when I had all the ulcers in my mouth or with infection. I just suffered!
Really appreciate your post. Hope you are managing ok. Look forward to hearing from you again.
This has been a rough couple of months for us all... The pain of losing Lou and Rose will never go away.... But we got to make what they taught us count.... and like someone said earlier... we are a team.... WE ARE A FAMILY... we stick together through the bad as well as the good.... We welcome new family member (Welcome to our family Maki... hope your surgery went well) And we share things..... who ever told me about the drug "Clonidine" Thank you so much!!!!!!! I now only have about 5 or 6 hot flushes a day, rather than 5 or 6 every minute..... Colly, if you are getting hot flushes, ask your doctor for these tablets... they are amazing... they have made the unbearable..... bearable..... BIG difference.
I am back to seeing a councillor again.... but that's good because she really does help.... I have an appointment to see a solicitor next week so I can get that waste of space husband of mine out of my life for ever.... and I am going to a friends wedding on saturday..... So things are getting better..... Slowly,... but they ARE getting better.
I knew I had something to tell you all...... a couple of weeks ago we had a red hot weekend, I was only out for a couple of hours...... AND I BURNED!!!!!!!!.... I never burn, I have only burnt twice in my life, and both times I was pregnant..... I was at the doctors the next day and happened to mention this....... but I know I'm not pregnant, i got sterillised 15 years ago...... and she pointed something out to me that I had never thought of...... I burnt when I was pregnant because my hormones were all messed up................ Now I am on the Tamoxifen and the Zolendex injections.... my hormones are all messed up again.... so for the first time in my life i have been out and bought some factor 15 sun tan lotion.... for myself.
I'm finally home. The op is done and I'M BACK. I had rough night but am pleased that this s**t is out. Now it is a stage 2. I am traying not to think about what will happen in two weeks time, traying to think positive. I've meet some lovely people in the hospital and it is amazing to see how brave we all are when the though gets going.
I hope everyone is ok. What have you all been up to?
Hi Caz, I hope you will have wonderful day at your friends wedding.
