hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
I was diagonised beginning of Dec. I'v had two ops also. One to remove a cyst, the lining of which turned out to be cancerous. Followed by a mx in January. Have just had my 5th of 6 chemos this week, and am too feeling a bit fed up and low, am putting this down to the nice weather we are having and not being able to go out, that and I'm on my low days at moment.
thanks for your reply. im so sorry youre going through it as well but maybe we can help each other. dont know anyone thats got this horrible disease which i am glad about. are you married with kids? sounds like im a week ahead of you in treatment. the most painfull part is my mouth n tongue but i cant walk more than a couple of mins now either. did have infection the week before last chemo though. if i walk more i cant move off the couch for a couple of days. must admit my mind is alert than has been since chemo. am taking anti depressants which has stopped some tears. just dont understand why im finding it so hard now with only 1 chemo left. got radio left n herceptin every 3 weeks til next year but that cant be as bad as chemo! know i lost sight of the fact its meant to be keeping me alive but thats not guarentee is it. hope youre feeling a bit better today n sunshine is cheering you up. lonie xx
thanks for your reply. im so sorry youre going through it as well but maybe we can help each other. dont know anyone thats got this horrible disease which i am glad about. are you married with kids? sounds like im a week ahead of you in treatment. the most painfull part is my mouth n tongue but i cant walk more than a couple of mins now either. did have infection the week before last chemo though. if i walk more i cant move off the couch for a couple of days. must admit my mind is alert than has been since chemo. am taking anti depressants which has stopped some tears. just dont understand why im finding it so hard now with only 1 chemo left. got radio left n herceptin every 3 weeks til next year but that cant be as bad as chemo! know i lost sight of the fact its meant to be keeping me alive but thats not guarentee is it. hope youre feeling a bit better today n sunshine is cheering you up. lonie xx
Hello Leonie my name is jane I am 46 with 3 nearly grown up children, I first had breast cancer in 2005 I had a lumpectomy and chemo and radio , then in 2008 i was diagnosed with secondary breast cancer in my spine and then in january it had spread to my lymph nodes and am back on chemo cycle number 6, sadly its not working and I am probably going to start another kind of chemo in july. I am telling you this because i want you to know that you are not alone there are many thousands of women like us battling every day. it's ok to feel peed off I get so angry some days and curse that it is me .....do only what you can on that given day , you need to rest if you don't you will set back your recovery. Be thankful for every day no matter how hard that day is - we are still here and every day I get to spend with my family is a blessing. I find a relaxation cd is helpful I know it sounds like bumkum but just spending 10 mins listening to it helps me and there is one on amazon specifically for healing cancer patients. I find peace in my garden so try and find time just for you even if its only a bath with candles and a book or mag or music. when i retired from work I didn't want my brain to go to mush so I have bought ipod touch and have downloaded games to keep my mind active. and lastly and this was the hardest thing for me it is ok to ask for help it will be readily given by those around you I really struggled with friends coming round to do jobs for me but i can't manage them anymore on my own .... look after yourself and remember a story i told my neice who struggled with self confidence issues - there was china man who walked across china and back again and when he was asked how he did it , he said "one step at a time " take care love jane xx
I just had to respond to your post. You are truly an inspiration, you really are. With all my heart I hope the change of chemo will work for you, you so deserve to fight this **** cancer. I empathise with you, I have gone through it twice b.c. twice.
So sad to hear about Rose. Knew she was going through it with her cancer. How awful for this to be happening to her! She is such a lovely lady n special to us all. Hope to hear from you soon n love you lots special lady. Thinking of you.
Thanks for my well wishes ladies, means a lot to have you there. I'm getting run down looking after charly 3 days a week but I promise I will get on here n write to our new messages. Miras I would love some advice on how to relieve my boob n arm. Will be back on soon.
I have just come on to catch up and I have just read the news on Rose, I just don't know what to say except she was a real great woman who helped me out many a time, she will definatley be missed by us all. If anyone is in contact with her family please let them know how we will all be thinking of them and my prayers are with them.
I just feel like I cannot say anything now so will speak to you all soon
Please get some difflam mouthwash for your mouth from either your dr or dentist its brilliant, use it neat for the pain and water it down to use when the pain has gone, its brilliant and really works, please spread the word , had to have two teeth removed before bone treatment could commence and it has helped me so much.
Thank you very much for your advise. But this was a while ago I had problems with my mouth. Luckily my mouth has healed now n I don't have any problems now. As for the difflam, it didn't help me when I had all the ulcers in my mouth or with infection. I just suffered!
Really appreciate your post. Hope you are managing ok. Look forward to hearing from you again.
This has been a rough couple of months for us all... The pain of losing Lou and Rose will never go away.... But we got to make what they taught us count.... and like someone said earlier... we are a team.... WE ARE A FAMILY... we stick together through the bad as well as the good.... We welcome new family member (Welcome to our family Maki... hope your surgery went well) And we share things..... who ever told me about the drug "Clonidine" Thank you so much!!!!!!! I now only have about 5 or 6 hot flushes a day, rather than 5 or 6 every minute..... Colly, if you are getting hot flushes, ask your doctor for these tablets... they are amazing... they have made the unbearable..... bearable..... BIG difference.
I am back to seeing a councillor again.... but that's good because she really does help.... I have an appointment to see a solicitor next week so I can get that waste of space husband of mine out of my life for ever.... and I am going to a friends wedding on saturday..... So things are getting better..... Slowly,... but they ARE getting better.
I knew I had something to tell you all...... a couple of weeks ago we had a red hot weekend, I was only out for a couple of hours...... AND I BURNED!!!!!!!!.... I never burn, I have only burnt twice in my life, and both times I was pregnant..... I was at the doctors the next day and happened to mention this....... but I know I'm not pregnant, i got sterillised 15 years ago...... and she pointed something out to me that I had never thought of...... I burnt when I was pregnant because my hormones were all messed up................ Now I am on the Tamoxifen and the Zolendex injections.... my hormones are all messed up again.... so for the first time in my life i have been out and bought some factor 15 sun tan lotion.... for myself.
I'm finally home. The op is done and I'M BACK. I had rough night but am pleased that this s**t is out. Now it is a stage 2. I am traying not to think about what will happen in two weeks time, traying to think positive. I've meet some lovely people in the hospital and it is amazing to see how brave we all are when the though gets going.
I hope everyone is ok. What have you all been up to?
Hi Caz, I hope you will have wonderful day at your friends wedding.
