hi i too would like to talk about breast cancer.

hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x

Parents
  • Hi everyone its been a long time since Ive been on AGAIN because the computer has been playing up AGAIN and its made me very  . could do with a new one but this time of year its an expense we can't afford! I've been reading back a few posts but it will take me forever to catch up so wondered if you could all just update me on how you are all doing!! Its lovely to be back in the community I've been on a bit of a rollercoaster last two months and am waiting for the straight jacket to arrive lol!! Seriously does anyone else get really angry!! My anger has been uncontrollable at times with me even smashing a wall and it has really upset me!!

    Please be intouch

    LOTS AND LOTS OF LOVE TO YOU ALL

    Louise

  • Hi Louise

    Sorry to hear you are having problems with your computer and your emotions.I dont get angry because I find it just leaves me feeling worse in the long run,plus my last treatment has damaged my heart so at the moment I cant get stressed.Waiting to see the heart specialist in 2 weeks and when he gives me a magic pill I will be fine.You have been through so much for so long.Can you have some sort of therapy or a massage or reiki treatment to help?Being on here should help to unload so rant away and let us help.No more wall hitting!!!

    Stay strong

    Rose xx

  • Hi Caz, all my love coming your way, you must be devastated by the way your husband has acted, no point in us all saying he's not worth it, but he's not babe honestly, what goes around comes around, just try and stay strong and positive and im sure you will be fine.It will be a long slog re surgery but you'll get there in the end, obviously a big decision as to what procedure to choose, unfortunatley ive no idea, maybe some of the other girls could advise on that.

    My treatment finished today, so now its onwards and upwards for me, hopefully try and get back to some kind of normality and back to work in a couple of months. If you have facebook add me and we can talk privately colette jameson (barbour).

    Love Col xx

  • Congratulations Colly ,at last the end is in sight.Take it easy though as it takes a long time for recovery/Hope your side effects all clear soon,some sunny weather needed now to boost your recovery.Well done,you have come through so well and helped so many others on your way.

    All best things to you,

    Rose xxx

  • Oh darling Caz,

    I really thought he would have second thoughts and change his mind but these revelations are so bad.I cannot even begin to think of what to say to you,you have so much hurt to deal with,but at least I suppose you now know that it is definitely over and not your fault but the betrayal is beyond comprehension. Grieve for him as you would any loss but dont let them destroy your life any more.

    I had the first option you mentioned.It is not a very painful procedure and you can choose the size to stop at .I think it will be better that you are having both done together as matching one to a natural breast is not easy and mine are different sizes especially now that I have lost weight.It may be an idea to look at the recons on the other BCCt cancer forum as the girls there have a variety of different ops .

    How is you daughter bearing up?She must be such a godsend to you now.

    Keep posting sweetheart,we are always here for you.

    Stay strong,

    Rose xxx

  • Hi to you all I was going to star a new thread but you all know my situation and probably noticed that I  haven't been on forquite a few weeks. When things are running smooth I tend to not login as much which now makes me feel a little selfish because I haven't been there for all of you and I do apologise for that and hope that you can forgive me!

    I will try to keep it short and will just try to bring you up todate bbut you will have probably gathered at the end of it there is a little bit of bad news.

    Anyway had a lovely Christmas and Nigel proposed to me on Christmas day it was so lovely and even though we have spoke about marriage unexpected. The ring was tied round one of our dogs necks with a tag asking me to marry him. I was so emotional and all four children were crying and Oliver  said we can be a proper family!! (Nigel is stepdad to Sophie Alice and Oliver after my first husband died nearly 5 years ago) isn't it funny how little ones think things that we don't realise. So a lovely Christmas was had by all and we were away for my birthday and the New Year and were so confident that 2011 was going to be exciting and relatively healthy.

    Then at the back of my mind I knew I had my results from I scan I had on the 5 January. I'd had the scan because I had been having a lot of pain in my right leg and they just wanted t check what was happening. Well the results hav shown a change in my liver. The consultants words were a subtle change but in the wrong direction. I have been taking tamoxifen since september and have also had two zoladex injections and when this was started he was confident that he could keep the mets under control for  good time we are only 3mths down the line and already a progression. Iam going to be starting chemo again on wednesday but this time tablet form and side effects are not as intense. Again the consultant is confident that this should do a good job and even though I haven't been given a timescale I'm finding it hard to get back to my positiveness and to get my head round it. I've felt very low and scared and therefore here I am!!!!

    I send my love to you all wether you are in a good or bad place and again apologise for not being on giving support to you all. Its made me realise how much I need you all!!!!!!!

    Love Lou

    n

  • Oh Lou,

    Stop appologising,you were one of the first people to support me on here and its not how often you come here just as long as you do !

    Not good news but dont forget the wonderful things happening with these chemos now..On Ovarian cancer Dot had the wonderful news before Christmas that the mets to her lung has gone with her latest chemo so a new blast may be what you need to zap this thing.Not what you want but hopefully the end result will be worth it.You have been through so much I kinow more treatment is daunting but You WILL DO THIS.What chemo will you be on?

    Wonderful news about the proposal,thank goodness for these fellas even though we give them a hard time sometimes.

    Let us know how thing are and all the luck in the world to you and your lovely family.

    Rose xxx

  • hi lou

    like rose said there is no need to apologise cos i am sure you have helped many people on this site and we all need a little time out so dont worry about it and i am sure your positiveness will return, that was a nice touch from nigel with the dog and i bet there wasnt a dry eye in the house so i hope you have a great future together and it just the inspiration you need so once again good luck to you all.

        jeff        hugz to you all x

  • oh lou im so sorry to hear your news. something so nice happens n then this brings back all the worry again. im glad the tablet form wont make you as bad as the other chemo. but so unfair you have to go through it again. you will have to let us know how long you will have to take it for n how it makes you feel. will you keep your hair this time? im so sorry. good luck starting your new treatment, am sure we all will be thinking of you n wishing you well. congratulations to you n yours, really do wish you all the very best.

    love leonie xxxxx

  • dear caroline

    can only imagine how you must be feeling. im so sorry he has treated you this way n at a time when you feel so alone anyway. some people are so selfish n to tell you what he did is so awful. as if you needed any more guilt about getting ill n anymore pain to go through. i hope your councillor is a good one n helps you put your life back in perspective. we will be there for all the other times. wishing away some of your pain n sending you some proper, heart felt love to you n your daughter. as for 'it', what comes around goes around n i hope you will be strong enough to tell him to get lost when it does.

    love leonie xxxxx

  • Hello Ladies and Gentlemen

    Hope this finds you all well and in good spirits. Well as you all know I have now finished my treatment but I always keep up to date on the chat.

    Firstly I would like to talk to Caroline as I have been where you are, I found out a month after my operation that my husband had been playing away from home, he tried to deny it but he was caught red handed so he moved out, we were trying to sort things out until the day I went on a weeks holiday with my sister's he moved in with her and all I got was phone calls, texting etc, It got so bad I had to involve the police in the end, who charged her with harrassment as I was recieving really abusive texts i.e I hope you die from cancer etc etc, so I do understand. I must say this was going on whilst I was having chemo. All I will say to you is time is a great healer you may not think it now as I didnt but you do find the strength from somewhere and learn to lean on your family and friends a bit more they will understand believe me. Caroline if you would like to talk privately please let me know and I will give you my e-mail address. I am sending you one almighty hug as I know you need it and keep your chin up.

    Tony how are things with you, I always seem to miss you when I am on line, what have you been up to.

    I have an appointment on the 28th (2 weeks tomorrow) with my oncologist, a follow up after all my treatment but I am going to ask him for a scan as I would like to know that I have got rid of the horrible thing, but I must say it's the best I have felt in a very long time. Did you all have scans after your treatment finished as I am unsure what should be happening now.

    Take care all you lovely people

    Love Linda (Littlesis)

  • Hi Littelsis, nice to see you back, I too have just finished my treatment on monday past, 6 fec and 6 weeks of radio, just waiting on oncologist appt. I dont know about where you are, but ive been told you dont have a scan, as when i had lumpectomy they have removed the cancer the treatment is  precautionary measure, they usually only scan if they havent operated first, its just check ups with oncologist, breast doctor and mammograms, I found this hard to comprehend but thats the way it works, i was told if i wanted a scan i would need to go privately, hopefully the chemo has killed off any wee cancerous cells that were floating about. Hope this helps. Colette x

Reply
  • Hi Littelsis, nice to see you back, I too have just finished my treatment on monday past, 6 fec and 6 weeks of radio, just waiting on oncologist appt. I dont know about where you are, but ive been told you dont have a scan, as when i had lumpectomy they have removed the cancer the treatment is  precautionary measure, they usually only scan if they havent operated first, its just check ups with oncologist, breast doctor and mammograms, I found this hard to comprehend but thats the way it works, i was told if i wanted a scan i would need to go privately, hopefully the chemo has killed off any wee cancerous cells that were floating about. Hope this helps. Colette x

Children
  • Hi everyone

    I do read all messages even though I don't send anything usually. I completely understand about wanting a scan. I finished my radiotherapy recently following a lumpectomay a mastectomy 6 months of TAC and 3 weeks radiotherapy. I read an awful lot on the internet comcerning my particular breast cancer ( lobular 111A). In America ir seems common practice for breast cancer patients to have a PET scan at the end of their treatment. I discussed this with a nurse who came to my home to give the chemo (so lucky this service available). She told me to 'go for it'. I must admit I am not the easiest of patients and made quite a deal of this at oncology. Anyway the outcome was I had the PET scan which not only shows up tumours but highlights any 'hotspots'. The downside is there is a high incidence of 'false positives'. I told the oncologist that I was happy to take that risk. Anyway I finally had the scan and was recently given the results - all clear! Now I know this is no guarentee that the cancer won't come back but at least I feel a bit more positive going forward. I would say to anyone that feels as I did to make sure you try any way you can to get the scan your 'mental' state needs - never mind your body!

    Good luck and all the best to every person on this site

    Jan

  • Caroline, cant say anything that will take away your pain or feelings of betrayal...I am just remembering the fighter that first came on to this site and the one that has battled through whatever has been thrown at you (which has been alot).  Cancer on its own is enough, breakdown of a relationship is enough, the two together will feel like a mountain that you just cannot climb....however do what you need to do to get through this, easy for all of us to *** off your partner and so easy for me to send the boys round but that will not get YOU through this...Caroline not much I can say so will send you a big Tony bear hug, just for you <<<<HUG>>>>.

    Linda, I am doing okay...went back down that dark tunnel and the evil irene (Irinotecan) and Avastin mix is giving me all sorts of problems but hey when life gives you lemons....

    Jan, absolutely 100% true, be an official nuisance to get that scan then you have all the facts - WELL DONE FOR THE RESULTS SO FAR!!!

    Much Love to all you luvverly ladies...

    T xxx

  • There is so much i would like to say having caught up on the posts, but i would only ramble.

    Caz, I know right now life seems a ***, but please believe that it is true, that only can you move forward when the cr*p is out of your life. we have to go through the sh*t to reach the other side, and you must allow yourself time to grieve, be angry and let all those horrible emotions shine on through. These are part of the healing process. These things make you stronger, more aware of things and will eventually lead to a completely new and different life. I know this because i have been there. And someone once said to me, there is nota better hand to take than that of someone who has been there. Through each experience we learn and are able to help others. It may seem little consolation, but to the person who needs understanding and a hug, it can mean the world. It is true some people cannot handle the range of emotions and effects of this horrid disease, especailly as we seem to lose our sexuality because we feel so mixed up, scarred, hair loss and so on and so on. However,  there are always people who are not afraid of the superficial, not afraid of what life throws at them and these are the people we should surround ourselves with. I can more than understand where you are coming from and hope that you will come here more often and rant and rave, cry and scream and know that we are ALL here for you.  It seems like a long road you have to go down, but the others here are so right when they say suddenly it happens quickly and you wonder where the time went. Take one day at a time and give yourself short term goals for where you want to be in a month, two months, and do the things you always thought you never had time for. Join a dating site just for fun - see how many people you can make friends with- it is the inner person that counts and i am only just learning that.  I know you might feel not up to it, but you know I can tell you from expereince, most of what you have lost is confidence and the only way to regain it is to take it by the horns and ride the bull so to speak. Take control of the things you can - like making new friends, letting people flirt with you - the real you - not the one who worries about her boobs and a shallow ex, but the warm crazy funny beautiful and supportive Caz that I have come to know on here. take up a new hobby, do everything you can to completely change your routine.

    sending you two arms to hold you tight and give you strength.

    sara x

  • Hi Colly, your treatment seems to have flown by. I hope you are feeling okay, the worst is over so roll on the spring! You have been a god send to me with your advice! xx

  • Aw Sara how lovely of you to say that, im doing grand, feel fab, just cant wait for my hair to grow a bit more, leaving it for another month then getting it coloured, Radio was a breeze compared to chemo, not be long now, time flies by, honestly cant believe i had my op 8 months ago. Look after yourself x

    ps hope all you girls & tony are well xx

  • Gosh Colly

    What a beautiful picture of you, and I hope that when we all finally meet up, your hair will be just the same as on the picture, well maybe not quite as long anyway just to say hi to everyone and Caz im so sorry to read your posts, but it sounds like your on the way up now the anger has set in, harness it cos it will give you the strength you need to cope, your daughter sounds lovely, allow her to help you heal.

    Sara its good to hear you doing so well and well done lilsis. We are all coming out of this slowly but surely and for that I am truly grateful.

    I myself am doing really well, back to work and training 5x a week...good old Claire Nasir is helping me shift those unwanted pounds and I can finally get into my jeans.

    I have an appointment on 3rd Feb with surgeon to discuss the reduction of the other breast to bring it in line with my reconstructed one, Im really excited about that, just one more stage closer to getting me back to normal.

    I am sending you all heaps of love and well wishes

    Lee xxxxxxxx

  • Thanks Lee, you look stunning in your pic, and your hair is gorgeous. My hair is growing so fast, went to a house party last night without the wig, everyone sais I suited the really short hair, only prob is, itc coming through salt n pepper lol so hopefully another month or 2 I'll get it coloured. Starting back beginning of april and signing back up to the gym this week, dont think I'll manage 5 times per week but certainly 2 or 3, my feet still really sore as are my arms, so hopefully this chemo feeling should be gone soon. Hope everyone is well. lots of love coming your way xxx