Hi lee thanks for your support, god how do you cope having to go through all this again, so do you not need radio this time round? I too have to have tamoxifen for next 5 years, my oestrogen levels are quite low and oncologist wasn't going to give tamoxifen but she decided she is. Thanks again babe x

hi Lee Colly and all

sounds like everyone has had woobly emotional week.

my hair strarted to fall out monday and now has gone evn though i knew it was goin to happen it was still freaky looks bloody awful but part of process i gues 2 fantastic friends took me back to wig shop 2day and i bought a longish red one (i had short red bob) decided if this gonna happen may as well have a change (but i am scared iam going to look like a drag queen )my husband loves it and they r very honest friends so hope it looks ok i am wearing it at this moment trying to get used to it !!

i was begining to wonder if i should be having chemo (only had one 2nd one monday )as i had no spread to nodes but surgoen said i was fit enough to have everything chemo and radio after so i opted for it all .i hope that will cut chances of having to face all this again . it must be a nightmare to face it again !!

take care everyone love and hugs and thanks for bein there have fun weekend in sunshine lots love nina xxxxxx

Hi Ladies,

I have just got a phone call that has knocked me onto my backside and have come in here for a bit of advice.

I was told by my surgeon that I don't need radiotherapy.... then a week later I was told by my registrar that I wouldn't need chemo...... Brilliant news!

My breast care nurse (Barbara) rang today to see how I was because I was a pile of snot and tears when I went in on Tuesday.

She told me that the surgeon and registrar shouldn't have told me me that I wouldn't be having chemo and radiotherapy because that is not their decision whether or not I have the treatment.... That choice will be made next Tuesday by my oncologist.

So I still might have to have chemotherapy and or radiotherapy.... I find out on Tuesday.

Why do they do that.... why raise my hopes?

I just want to cry again

love Caz xx

Hi Caz,

I was told by my gynae/fertility nurse in March this year that I was the wrong age for ovarian cancer - how wrong was she?! It's sometimes so confusing weeding out the truth from the opinion!!! Ask yourself who you trust more? One person has to make the decisions on the way forward for you otherwise this whole situation is more distressing than it should be. What kind of system do your care team have in place? I have only seen the same consultant all the way, even though he has had meetings about me (MDT meetings) with other departments................maybe the doctors and nurses can do the same for you? Whatever happens I hope everything turns out ok for you and your family. Keep smiling

Yorkie1 xxxxx

dear darlin Caz

you really have had a a **** time of all this .firtsly u are extremely vunerable at the moment so everything they say is hard to take especially when you keep getting different views!

your breast care nurse seeems to be sensible and the oncologist IS the bvest person to give u all the information but ultimately how much if any more treatment will be your descion to make he will advise u and give you best odds (soory i know that sounds harsh )but that is why we all have these horrible treatments to beat the odds of this horrible disease!! and we are all here with u fighting all the way.

i hope u dnot mind (and i actually wrote something similiar on your blog the other day sorry to repeat if u have already read it ) but i want to remind u of something you said to me when i first joined this group. the oncologist said i had no node spread and gave me my chances of survivial with different treatments basicially radio and tamoxefen added 8% and adding chemo another 4% my question was 4% worth all the anx and pain i would put myself and my family thru? lots of people gave me good advice including u and u said when my time comes if i am offered it i would do anything for even a 1% chance . that really helped me because at the end of the day we want to do everything to stay with the people we love u helped me so much make the descion . i am having 2nd chemo mon and yes its tough and yes my hair fell out this week but these things are temp and we can get thru them .

if u do need radio/and or chemo you can do it because you are giving yourself the best chance of beating this once and for all. you dr should not have said that it may be right and you dont need it but if you do YOU CAN do it and we will all help u

i hope u dont mind me going on but you have been thru so much i wanted to help like you helped me

lots love nad hugs nina

Hi Colly

You get through this because you have too, and thats it!! none of us are the kind to just give up, so let the battle commence.

I cant have rads this time round cos Ive already had it just over a year ago in the same place so the scar tissue is too vulnerable at the moment.

Nina it is hard loosing your hair I know it knocked me sideways, but as you have said it is only temporary and you get the chance to experiment with styles that you would never have done before.

Night time is the worse for me, I seem to be taking more off these days than ever before...false boob, wig, eyelashes he he I often wonder how my husband copes with this alien wondering into the bedroom..

Caz I feel like weeping for all the pain you are suffering right now but Nina is right if they come back and say you have to have chemo and or rads then so be it, lets blast this thing once and for all, I wish I had had chemo last year then maybe it would not have come back like it did, they told me I didnt need it and they were wrong so make sure you pin them down and get the answers you need and want. Take a deep breath and put one foot in front of the other noone can ask any more of you. Im thinking of you constantly and send you my prayers for strength and courage.

Love to you all

Lee xx

Hi Caz

I think you have gone through a horrible time, there have been so many changes along the way, you must be feeling very unsure about the professionals that are supposed to be looking after you?

Have you had your pathology report or been told the results and have they told you what grade your cancer was, if so why not do a bit of research before you go to the oncologist and find out what the normal treatment is for your type of cancer, then at least you can question him rather than just be told what they propose.

I think the worse thing is not knowing, once you know you can get your head around it, accept it and get on with it.

All the best

Lots of love

Anne

x

hi girl,

Colly, I am so sorry that you are having such a hard time of it honey, I do hope it all settles down for you soon, but until then, please don't suffer alone, come in here and talk to us, I don't knowhow you are feeling, but there are other ladies on here that have been where you are now, they can talk to you and help you get through this tough time.

Thank you to all of you for giving me a much needed reality check, If I need to have chemo or radiotherapy... then so be it, When I first found out I had cancer I said I would fight it and beat it, my daughter is only 14, but said then that I will see her grow up and get married, even if I have to do it with no breasts and no hair.... Well I now have no breasts... and let's face it, at least my hair will grow back..... so if I need these treatments to beat it... Then bring it on.

I really don't know what I would do without this site..... You have all helped make this so much easier to cope with

So from me... a ver big thank you to you all

Dave is taking me out for the day on Monday, so I will come in on Tuesday after I have been to the hospital to tell you what they have to say

Take care

Love Caz xxx

well done caz

have alovely week end and day out on monday .

write down any questions u have for oncologist so u are prepared!

u will be fine because u are strong lady

lots love nina xxxxx