Eleven years living with Metastatic breast cancer today

Hello!

Its an odd day to celebrate isn't it?

But today, July 11th, I am celebrating living with metastatic breast cancer for eleven years. It's been a quiet day here, but a beautiful one.

The cancer (oestrogen receptive Invasive Ductal Carcenoma, moderately aggressive) had spread throughout both of my lungs and liver back in July 2011 and I was struggling to breathe. I was 44. It was so terribly frightening & I had no idea it was cancer.

It's been a long journey, but I'm still here and celebrate each day. 

I remember my first Prof. telling me "It's not "terminal" till you're dead". He was so right!

Over the years I have realised that everyone struggles sometimes. I used to think my problems were the worst. But we all have tricky times we have to deal with don't we?

As you read this, I send you all some of the gigantic luck that seems to have fallen my way!

Love to all my friends on here, and all the very best to anyone who is struggling with something tricky at the moment.

Best wishes,

Mary

 

  • Thank you so much coming on to this forum helps me as I know I can reach out to people I am neurotic I know, I can't believe how much my mind has changed as normally I am a very in control well organized person...  it since last Thursday at 5pm my world imploded .. xx 

  • Hi again Mary,

    So pleased you had a lovely quiet peaceful day.

    Carry on enjoying life as you deserve!

    Love, Rose xx

  • Wonderful news, it is so good to hear positive things like this, thank you, it gives us all hope, Violet, xx

  • Hi, sorry to find you on here.

    I was diagnosed with Stage 1 BC in January and was terrified.  I'm doing ok after mastectomy.  Hearing stories like yours really gives me hope that I'll probably be ok!

    You're an inspiration.  Thanks so much for posting your story.

     

    Mary x

  • Hi Justathena,

    I am really sorry you are going through this. The early days, while waiting to get a clear picture of your diagnosis and treatment plan are terrifying, as others have said. However, that will ease, I hope. I was diagnosed with stage 3 BC in February. I've since had a mastectomy and axillary clearance of the lymph nodes. I'm now receiving chemo, with radiotherapy and endocrine therapy to follow. It is natural to feel panic-stricken but knowing the plan helps a lot. Take all the help you can get, use the support of the breast care nurses, they are are wonderful and ask for a referral to cancer counselling. It will take time to come through but is a helpful resource . Also, check out the nearest Maggie's Centre to you. They offer all sorts of support, groups and activities.

    Mary's experience is a wonderful example of how far we can go beyond expectations. My oncologist gave me some very good advice to not google! 5 year survival rates are very good, even for stage 3. Any stats you read about long term survival are based on people diagnosed 10-15 years ago and based on outdated treatment plans, do don't go there. Since I received my diagnosis I've learned of so many women living full lives years later.

    Good luck with your tests,

    Annie

  • Hi dear mary sorry I've been quiet lately ,tempted to text you but couldn't think what to put and didn't want to put wrong thing .

    Got Brenda home after she got heart failure due to meds, got pneumonia and covid, I'd had enough when i hurd Brenda going into care home, i phoned me adult social care told them she was coming home, they arranged her meds for home i went straight to hospital told reception Brenda coming home, they said she's booked to go to psychiatric hospital i told them she's coming home so they changed paperwork so everything legal. Got home plenty of talk.

    Got home phoned dr to make sure about meds and script, they said same as hospital so i told them same so things legal done. 

    I've been off and on my meds, feeling alot better off, my oncologist has booked me in for urgent ct and bone scan to see if my cancer spreading it is coming back slowly then se what treatment next. 

    Hope things are OK with you. Love Billy xxxx 

  • Crikey Billy! 

    You are an amazing man and fantastic partner for Brenda. She is a very lucky woman, and I am sure she deserves you.

    Please remember me to her Xxxx

    Please do think of your own health through this. It will only be good for Brenda to be home if you're coping. If you start to find things getting too much please please ask for more help. It makes you stronger if you're taking those decisions and having difficult conversations.

    It's very tricky. And it sounds pretty grim.

    I wish I could be there to give you a hand.

    All is well here at the moment.

    I had Covid, caught from my granddaughter whilst singing Waltzing Matilda in the 30th August. Still struggling with tiredness but yay I survived it!

    You are more than welcome to contact here at any time. And I will always answer. We have know you quite a while now.

    Love and best wishes to you both,

    Mary

    Xxxx

  • Thank you so much Mary for posting your story. Ive just been diagnosed with stage 4 bowel cancer recurrence that's came back after 10 years which is a shock and very frightening. 

  • Mare 

    thank you for sharing your story I was so overwhelmed reading this 11years wow , lovely to hear such positive story's xx I wish you the best and thanks for making my day xx