The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

Parents
  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • Thank you .we are lucky we have our incredible  NHS and they will do everything to give us the best outcome.  Try not to worry I have loads of friends that have lumpy boobs and they get regular checks and lumps benign but it doesn't stop them worrying  before every check. Try stay up beat  I'm feeling really positive about your outcome you should to.   Keep busy hun.  Let me know how u get on x

  • Thank you . You too xxx  

  • Good morning Madgee,

     

    I just wanted to see how you are.  

    I am up and started wfh , I am trying to keep my mind occupied as much as possible.  Try and keep a brave face for my husband and my young daughter.  It is difficult!

     

    I was thinking about you ! Keep in touch . Xxxx

     

     

     

  • Hello lovely I'm very up and down but have everything  moving towards my treatment.  Sleep has been a real issue and without it we are over emotional  and irrational  so make sure you get plenty of sleep.   I find talking to my hubby, a lot, has helped so don't try putting  a brave face on to much, if ur worried share with him.  I am sure you will be OK because I don't think you would have such a long wait if they were really concerned hun.  Nevertheless  it won't stop you worrying so try and distract yourself as much as poss. Thinking of you too stay positive  xxx

  • Hi all, 

    I'm so glad I found this forum - it's been so reassuring to see so much positivity! 

    I've been diagnosed with breast cancer on Friday, after receiving my mammogram/ultrasound/biopsy a week ago, and it's been a whirlwind of emotions. I'm 30, just got back from my honeymoon and this is definitely not how I envisioned we would start our marriage. 

    I found a 2cm lump, and the ultrasound showed some of my lymphnodes were affected. Part of the tumor is invasive and part is non-invasive, but they have already confirmed its grade 3. My specialist has said that apparently duct breast cancer is very treatable (holding onto these words for dear life), but waiting for the MRI/CT scan is honestly so terrifiying. And I'm glad to read i'm not the only one who struggles with this!! I'm also still trying to comprehend that I'm going to be send to the fertility clinic as chemo might impact my fertility, so it's a lot to take in.. 

    Trying to keep myself busy while I wait for the additional scans and hoping the news won't get any worse.. 

    Sending you all strength!

    X Elvira

  • Hi Elvira ,

     

    Welcome and I am so sorry to hear about your news .

     

    It can be really difficult I completely understand! 

    I found waiting for tests and results is the worse part .

    I am trying to keep my mind busy with work , house work and talking to my hubby . He has been really supportive!

    Also speaking to all these lovely ladies in the forum definitely helped .

    Please  try and be strong !

     Thinking of you and keep in touch xxxx

  • Bless you  it's very surreal especially  for you so young.   But yes I was told the same very curable so hang on to that.  Keep in touch and stay strong you got this girl. Sending you massive hugs.  Much love  

  • How are you coping Hun? You have been in my thoughts.  I have spoke to my care team a few times when my mind has been running wild and they have been so kind and reassuring.  They have told me to speak to them when I get fixated on dark thoughts and every time they lift me and make me think more rationally so please speak with them if you too get too down with it all.  Sending love x

  • You're too kind! :)

    I've had my CT scan and MRI yesterday/today and am meeting my oncologist tomorrow morning. So I'm hoping it will help to get some clarity on treatment! It is a strange feeling knowing that something is wrong in your body, but you just have to sit around and wait which I think fuels the anxiety even more. 

    The nurse today was ever so kind when I had my MRI, she calmed me down and told me to just focus on taking 1 step at a time. So I'm currently trying to take my mind off of things and keeping busy. I know me worrying about the results won't change the outcome so I'm trying my hardest to not think about it constantly.  

    Really pleased to hear your care team has been so kind and reassuring! The dark thoughts are always around the corner, but it is good that you have people you can turn too when the thoughts get too heavy. 

    Please know that we are all here for you too! X

  • Good news that everything is happening  so quickly sounds like you have a good team looking after you.  Just stay as strong as you possibly  can.  Company of friends prove a great distraction for me and someone making me belly laugh is like being given a hundred quid so fill your days with good friends and talk drivvle it just gives your head a break from it as I've found it consuming some days.  Please let us know how you get on.  We can do this

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  • Good news that everything is happening  so quickly sounds like you have a good team looking after you.  Just stay as strong as you possibly  can.  Company of friends prove a great distraction for me and someone making me belly laugh is like being given a hundred quid so fill your days with good friends and talk drivvle it just gives your head a break from it as I've found it consuming some days.  Please let us know how you get on.  We can do this

Children
  • Hi Madgee,

    I was wondering if you already have clarity in your treatment? You mentioned you were working towards treatment, so am wondering if you also already know more?

    Sending hugs xx
     

     

  • Hi there, my treatment  is outlined but have my final results on Wed.  They will be the results of Pet Scan, MRI with contrast.  I had a marker inserted in my breast on Friday.  So Wednesday  I'm back with consultant and hoping cancer is in situ and the plan remains unchanged.  Plan if no secondaries  is 18 or 20 weeks chemo and herceptin  with Herceptin  continuing for a full year. Surgery may follow Chemo.   Some days I'm OK some days  not.  Need Wednesday  out to way and a good outcome and date to start treatment.  Its hard to digest how life changing it all is but am hopeful that it's one year of my life and that is achievable.  Sending love to you how are you coping and have you any news? Stay strong lovely x

  • Sounds like you've had a very busy week! The wait for the scans remains horrible doesn't it.


    Am I right to assume you also have an HER2 positive breast cancer? Because I've had pretty much the same news and treatment outlay. I found out early in the week that I'm hormone negative but HER2 positive, which meant that we will start with chemo for 6 months, then surgery (still confirmed due to the amount of DCIS in my breast around the invasive cancer) and then radiotherapy.  But also have to take Herceptin for a year. They told me this type of cancer reacts really well to chemo and the herceptin so I suppose that's a good thing. I've had my CT scan and MRI results, which we're clear but still waiting for my PET scan results which I get tomorrow. Meanwhile I've started fertility treatment, and chemo is scheduled for 22nd of Nov.. 

    Trying not to worry too much about scan results anymore but to focus on treatment plan, but easier said than done!!

    We got this!! Xxx

  • Bless you stay positive hun.  I think we have identical diagnosis and my treatment  plan the same apart from they haven't mentioned  radiotherapy.  They also told me the Herceptin  directly targets the cancer cells and the combination  or that and chemo has amazing  results. Yes the wait is really tough and as I am 59 I'm fretting that all those little aches and pains I've had are not just getting older but realistically they probably are, it's hard to stop your thoughts running away with you.  We can do this and you are young and presumably  otherwise healthy so dont let it crush your future dreams, I won't allow it to do that. Hope IVF goes OK and will let you  know when I get my date. Holding your hand in my heart keep in touch xxxx

  • Yes they told me the same about chemo and herceptin! And I completely understand what you mean with little aches and pains, for some reason everytime I have as scan I all of a sudden feel pain everywhere. But exactly like you say don't let your thoughts run away with you.

    I'm not sure if this helps you, but one of the nurses recommended this to me - I currently allow myself to think and worry about scan results etc twice a day for about 15-20 min, and then I try to park it for the rest of the day. Because I have 'worry-time' it helps me focus on other things the rest of the day. 

    I hope Wednesday brings you some clarity (I also have scan results Monday and Wednesday, so I'll be thinking of you) and that you'll know when you can start treatment! So many things are changing, but exactly like you said - it's a year, we can do this and we will come out stronger. 

    Sending positive thoughts and hugs!! xxx

  • I hope you received some good news today regarding your scans, and some clarity on dates for treatment?

    Thinking of you, sending hugs! xxx

  • Hi Elvira114 

     

    Sorry for the late reply ...i think all the information started sinking in...

    So I have breast cancer ,at the moment stage 1 , waiting for the 2nd tumor the results for HER2..hopefully back in a week's time. 

    If it is also negative I will have no chemo and only  mastectomy, reconstruction and hormone therapy. If it comes positive then chemo first and then all the rest ...

    I feel scared but relived now that I know in a way what is happening.  The Dr said that hopefully I will finish with the operation before Christmas but not for definite yet..

    At least I will be able to sleep a bit better tonight ..I haven't had a good night sleep for weeks .

    How are you ? Have u heard anything or started treatment?  I am sos sorry if you mentioned it earlier but my brain was scrambled these last few weeks.

    Thank you so so much for thinking about me ,you are so kind .

    I know we will make it ! We are strong .

    I hope you have a lovely evening.  Please keep in touch .

    Sending love to you xxxx

  • Hello lovely ladies I had my results today my pet scan good but have some spread in armpit so treatment starts in a couple of weeks  and following chemo breast surgery and armpit surgery and lymph removal followed by radio and herceptin for rest of year.  This is by no means a walk in the park but the relief that it's not spread into organs or bones is immense.  It feels scary but do able and I too will sleep well tonight.  I feel full of hope and optimism.  I know that's easy said with the journey ahead but there's something about knowing everything that gives control back to your life.  Sending loads of love and positive vibes to you Elvira114 and V1234.  We can do this.  Please keep me updated.  Xxxxx

  • Hi Madgee, 

    So good to hear from you!!!

    I am so happy your PET scan came back good and has not spread into any other organs ! 

    I did feel a lot better , after all the sleepless nights and everyday crying, when the Dr actually  told me what the treatment plan will be . It feels like a weight is off my shoulders .

    Definitely a better sleep tonight Madgee and Elvira114

    Have a lovely night.

    Sending lots of love to both of you.  Keep strong and positive!

    Please keep in touch xxxx