The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

Parents
  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • How did you get on Hun let me know when you are ready.  Thinking of you x

  • Hi Madgee,

     

    So good to hear from you x

    I was a mess this morning! I was so scared ...I could not sleep or think about anything else.

     I saw my GP this  morning and he said that he could feel a small lump, most likely a fibroadenoma  and that he had  to refer meto the breast clinic! I was so terrified when he sid that !

    I also found out that the wait here in Scotland is 8-12 weeks !! I am not sure how I am going to be able to think anything else apart from what is going to happen when I go to the clinic .

    Very scared !!

    I hope you had a great time away ! 

    Did you see the doctor yesterday? Did you have any news?

     

    I hope everything is well with you. Please keep in touch.xxx

  • Try not to worry if that's what it is that's good news.  Bless you it's a long wait but I don't think they would make u wait that long if it was of concern I really don't.  That said you won't relax fully till you have your all clear Hun.  I didn't get the best news as mine is cancer and although I was prepared I'm still reeling.  On a positive it's almost certainly curable but I have quite a journey ahead of me.  I will let you know how I get along.  I was prepared for the diagnosis as there wasn't really any reassurance or words like don't worry at my initial review and remember I had biopsies there and then.  In yr case there is reassurance and that's really good. Stay strong and positive I'm confident you will get a good result so try and have as much normal as possible while you wait.  My wait was only 2 weeks for results but they were worried and were  vocal about that.  They are professionals who see this every day.  Don't make yourself poorly with stress it's all very consuming.  Keep in touch xxxxx

  • Hi Madgee,

     

    So really sorry to hear about your news , please be strong !!

    In all this at least you know that ot is curable and these are words that come from people who are professionals. 

    It is hard to stay focused and try and occupy your mind with other things !!  I have not really said anything to the family apart form my hubby ,who is really supportive and always try to be so positive .

    I can only hope and pray for all us to be well .

    Please keep in touch. Sending g all my love xxxxx

     

  • Thank you .we are lucky we have our incredible  NHS and they will do everything to give us the best outcome.  Try not to worry I have loads of friends that have lumpy boobs and they get regular checks and lumps benign but it doesn't stop them worrying  before every check. Try stay up beat  I'm feeling really positive about your outcome you should to.   Keep busy hun.  Let me know how u get on x

  • Thank you . You too xxx  

  • Good morning Madgee,

     

    I just wanted to see how you are.  

    I am up and started wfh , I am trying to keep my mind occupied as much as possible.  Try and keep a brave face for my husband and my young daughter.  It is difficult!

     

    I was thinking about you ! Keep in touch . Xxxx

     

     

     

  • Hello lovely I'm very up and down but have everything  moving towards my treatment.  Sleep has been a real issue and without it we are over emotional  and irrational  so make sure you get plenty of sleep.   I find talking to my hubby, a lot, has helped so don't try putting  a brave face on to much, if ur worried share with him.  I am sure you will be OK because I don't think you would have such a long wait if they were really concerned hun.  Nevertheless  it won't stop you worrying so try and distract yourself as much as poss. Thinking of you too stay positive  xxx

  • Hi all, 

    I'm so glad I found this forum - it's been so reassuring to see so much positivity! 

    I've been diagnosed with breast cancer on Friday, after receiving my mammogram/ultrasound/biopsy a week ago, and it's been a whirlwind of emotions. I'm 30, just got back from my honeymoon and this is definitely not how I envisioned we would start our marriage. 

    I found a 2cm lump, and the ultrasound showed some of my lymphnodes were affected. Part of the tumor is invasive and part is non-invasive, but they have already confirmed its grade 3. My specialist has said that apparently duct breast cancer is very treatable (holding onto these words for dear life), but waiting for the MRI/CT scan is honestly so terrifiying. And I'm glad to read i'm not the only one who struggles with this!! I'm also still trying to comprehend that I'm going to be send to the fertility clinic as chemo might impact my fertility, so it's a lot to take in.. 

    Trying to keep myself busy while I wait for the additional scans and hoping the news won't get any worse.. 

    Sending you all strength!

    X Elvira

Reply
  • Hi all, 

    I'm so glad I found this forum - it's been so reassuring to see so much positivity! 

    I've been diagnosed with breast cancer on Friday, after receiving my mammogram/ultrasound/biopsy a week ago, and it's been a whirlwind of emotions. I'm 30, just got back from my honeymoon and this is definitely not how I envisioned we would start our marriage. 

    I found a 2cm lump, and the ultrasound showed some of my lymphnodes were affected. Part of the tumor is invasive and part is non-invasive, but they have already confirmed its grade 3. My specialist has said that apparently duct breast cancer is very treatable (holding onto these words for dear life), but waiting for the MRI/CT scan is honestly so terrifiying. And I'm glad to read i'm not the only one who struggles with this!! I'm also still trying to comprehend that I'm going to be send to the fertility clinic as chemo might impact my fertility, so it's a lot to take in.. 

    Trying to keep myself busy while I wait for the additional scans and hoping the news won't get any worse.. 

    Sending you all strength!

    X Elvira

Children
  • Hi Elvira ,

     

    Welcome and I am so sorry to hear about your news .

     

    It can be really difficult I completely understand! 

    I found waiting for tests and results is the worse part .

    I am trying to keep my mind busy with work , house work and talking to my hubby . He has been really supportive!

    Also speaking to all these lovely ladies in the forum definitely helped .

    Please  try and be strong !

     Thinking of you and keep in touch xxxx

  • Bless you  it's very surreal especially  for you so young.   But yes I was told the same very curable so hang on to that.  Keep in touch and stay strong you got this girl. Sending you massive hugs.  Much love  

  • How are you coping Hun? You have been in my thoughts.  I have spoke to my care team a few times when my mind has been running wild and they have been so kind and reassuring.  They have told me to speak to them when I get fixated on dark thoughts and every time they lift me and make me think more rationally so please speak with them if you too get too down with it all.  Sending love x

  • You're too kind! :)

    I've had my CT scan and MRI yesterday/today and am meeting my oncologist tomorrow morning. So I'm hoping it will help to get some clarity on treatment! It is a strange feeling knowing that something is wrong in your body, but you just have to sit around and wait which I think fuels the anxiety even more. 

    The nurse today was ever so kind when I had my MRI, she calmed me down and told me to just focus on taking 1 step at a time. So I'm currently trying to take my mind off of things and keeping busy. I know me worrying about the results won't change the outcome so I'm trying my hardest to not think about it constantly.  

    Really pleased to hear your care team has been so kind and reassuring! The dark thoughts are always around the corner, but it is good that you have people you can turn too when the thoughts get too heavy. 

    Please know that we are all here for you too! X

  • Good news that everything is happening  so quickly sounds like you have a good team looking after you.  Just stay as strong as you possibly  can.  Company of friends prove a great distraction for me and someone making me belly laugh is like being given a hundred quid so fill your days with good friends and talk drivvle it just gives your head a break from it as I've found it consuming some days.  Please let us know how you get on.  We can do this

  • Hi Elvira114,

     

    So good to hear that everything is happening so quickly .

    It is really hard to stop all the dark thoughts but as you said when you have the support of people around you it is a good feeling. 

    Sorry my English is not that good so I am really sorry if I don't make any sense sometimes.

    I have received  my letter for the hospital appointment yesterday for next Wednesday in the morning! 

    I am so scared what the tests will show and what will happen during the appointment. 

    I can stop crying  when I am on my own at home,  I can't concentrate at all.

    I am sending ally love to you all.

    Have a good, restful night.

    Thinking all of you .xxx

  • Don't apologise, you make complete sense! :) 

    I know it's really hard when you're alone, I have the same and they are the moments when I can't stop either. But 
     

    I'm really glad you know when your appointment will be, at least you know when the next step is, and hopefully they will be able to give you some answers. 
     

    Is there anything you could do meanwhile to take your mind off of things, something that you enjoy doing? 
     

    thinking of you, sending all positive thoughts!! X

  • Thank you so much  

    I am trying to occupy my mind with work and house work when I am alone at home and then when my hubby and my little daughter is back home it is a bit easier .

    My hubby is very supportive which is so good but I have not said anything to tye rest of the family.  When I see them and I feel so guilty bug I don't want to worry them.  I know they will start fussing and get very stressed and worried for me .

    I am hoping  next week I will find my fate and have a plan of what will happen.

    Thank you so much for your kind words.

    Have a good night. Sending my love.xxx

  • Just wanted to let you know I'm thinking of you and sending you all my positive thoughts for tomorrow. I hope you get some clarity!

     

    hugs x

  • Thank you so much Elvira114,

     

    You are so kind . I am terrified and so stressed.  

    In a few hours I will find my fate .

    I hope you are well with you and everything is going according to plan.

    I will let you know later on what the doctor said. 

    Xxx