I hate my stoma bag

I've recently been told they can't reverse my stoma bag.,I'm devastated as I really hate having it. Many a time I have woken up covered in my own ****, it's degrading. I was standing in a line waiting to go into a shop when I noticed **** all down my trousers and my shoes, I was mortified. My wife has left me and I'm now apprehensive about meeting new people and how they will react to me having a bag. 

Parents
  • Hello davey,

                       l well understand your frustrations,l was lucky to have had mine reversed after 14 months but it came with a very, very large bill to be paid for doing so.In my case l reacted to the adhesive,so my site never healed and l trying to stick bags onto raw ,bleeding skin, which does not work well. In the end if l found a bag made a good attachment,l was flushing the contents out whilst still attached to me and l could get two days,maybe three before changing.

                                                                                                                                   There are other types of bag that maybe work better, and belts that the pouch can be held in,but it feels like a stone age solution,and l always felt that surely a better solution could be found.All you can do now is see if you can find a better alternative to what you are using at present,which hopefully might prove a little more acceptable than you have at present,

                                                                      take care, David

  • Thanks David. I too have a bleeding sore stoma. I have been given some sticky washer like things that go over the stoma and the bag fixes to that also. This does ease the pain, but I have more problems with leakage when I use them. I also empty my bag while it's still attached and like you did, get two or three days out of one bag. I also use banana shaped sticky pads that go over the edge of the bag, this gives it a little more strength. With my wife having left me, my worry is how any future partner would react. 

Reply
  • Thanks David. I too have a bleeding sore stoma. I have been given some sticky washer like things that go over the stoma and the bag fixes to that also. This does ease the pain, but I have more problems with leakage when I use them. I also empty my bag while it's still attached and like you did, get two or three days out of one bag. I also use banana shaped sticky pads that go over the edge of the bag, this gives it a little more strength. With my wife having left me, my worry is how any future partner would react. 

Children
  • hello Davey,

                      l think any future partner would be starting from position with knowledge of your wearing a pouch.If they got past the first week armed with that knowledge you could be reassured of possible potential,if they walk away then there was no meaningful relationship potential to be had.And you might fall head over heels for a bucktoothed,flatulent,one legged,semi bald lady who becomes your everything!.Lifes a funny thing,so is love,and perfection is a scary thing to most people,and remember they may be worrying about their imperfections and how you would react, so stop worrying and get on and live your second chance to its full,don't worry about others,let them worry about you.

                                                                                                                      go get em tiger,