I hate my stoma bag

I've recently been told they can't reverse my stoma bag.,I'm devastated as I really hate having it. Many a time I have woken up covered in my own ****, it's degrading. I was standing in a line waiting to go into a shop when I noticed **** all down my trousers and my shoes, I was mortified. My wife has left me and I'm now apprehensive about meeting new people and how they will react to me having a bag. 

Parents
  • I dated a guy with a stoma bag, it didn't bother me in the slightest and when he told me, it was a case of....oh....why's that? Are you better now? Yes? Good - and that was it. 
    He was such great company, the bag didn't get any thought - even when I saw it, there were better things going on at that time to care about it, if you know what I'm saying...:love:


    I can't honestly imagine any girlfriends of mine turning down a guy with a stoma bag.....it would be like turning someone away for having toenails or hair...it just wouldn't make any sense to do that.

    So....Do you know why is it leaking randomly? Who would you speak to in your medical team about getting this sorted? 
     

    I am sure there is a gent on here who I see around who also has a stoma bag...I hope he sees your message too xx

Reply
  • I dated a guy with a stoma bag, it didn't bother me in the slightest and when he told me, it was a case of....oh....why's that? Are you better now? Yes? Good - and that was it. 
    He was such great company, the bag didn't get any thought - even when I saw it, there were better things going on at that time to care about it, if you know what I'm saying...:love:


    I can't honestly imagine any girlfriends of mine turning down a guy with a stoma bag.....it would be like turning someone away for having toenails or hair...it just wouldn't make any sense to do that.

    So....Do you know why is it leaking randomly? Who would you speak to in your medical team about getting this sorted? 
     

    I am sure there is a gent on here who I see around who also has a stoma bag...I hope he sees your message too xx

Children
  • Thank you for your lovely comments, I just hope i meet someone as open minded as you. I may have to speak to my stoma care nurse and see if she can offer a better solution for my issue of leaking. X

  • Hi Davey

     

    i was up at 4.30am today because BOTH of my stomas(colostomy and urostomy) leaked in the night and it’s horrible, so I understand where you’re coming from. Luckily leaking at night is very rare for me, but stumbling about changing beds is NOT fun!

     

    I tried a number of bags before I settled on ones which suited me, but no system is 100% perfect. I would definitely speak to your stoma nurse for advice-I found mine to be very supportive and full of good advice, plus he/she can give you other bags to try. I tried loads! You don’t need to be suffering from regular leaks..there are bound to be bags which suit you better and will give you more confidence. 

     

    My personal preference is to change both bags daily, which helps. If I leave the colostomy bag on too long it will push off the skin, and although I use a drainable bag I never drain because it doesn’t feel clean to me. There are lots of products to help with sore skin-barrier sprays and wipes, and good old calamine lotion. The trick is to make sure your skin is completely dry before putting on the new bag-I dry it with a hairdryer on low. Your nurse can also give you stoma powder to go on your skin. 

     

    It’s life changing, but saved my life so I try to look at it like that. I have a partner who helps me a lot and isn’t bothered by the bags and I hope you’ll find someone who thinks just the same. We just go to the loo a different way, it doesn’t change who we are inside except in the physical sense. You just need to find someone who understands that. 

     

    I’ve had my stomas for almost 5 months, and while I can’t say I like having them, I do accept them both as I would have died without the surgery I had. They are permanent, can never be reversed, so I just have to come to terms with that..and I believe I have. I wish you all the best and hope things improve for you. x

     

     

  • Thank you for your advice, I really appreciate it. I tend to leave my bags on a couple of days, especially if I'm not getting any discomfort from them. I use the powder frequently as sometimes it bleeds quite badly. I'm currently using like a sticky washer that fits over my stoma and that has helped with the bleeding and the pain. I'm struggling to come to terms with having it, I know I should, but I still find it degrading. I just hope I can find someone who accepts its part of who I am now, but I'm apprehensive about meeting a new partner. 

  • Hi Davey have you ever tried the 2 peace stoma bag

    Regards Ronnie

     

  • Sorry for the late response. I have tried a number of different bags and use elastic tape to secure the edges. At night my bag just seems to fill up quickly. The last 2 mornings I have had to change my bag as it was beginning to leak. It really gets me down. 
    have a merry Xmas and thank you for your message

  • A two peace bag is the one peace you stick on for a week and just attach a new bag twice a week.

    Sounds a lot easier to me.

    From Ronnie

  • I'll speak to my stoma care nurses about it. Thank you and Merry Christmas