Hello davey,

                   l well understand your frustrations,l was lucky to have had mine reversed after 14 months but it came with a very, very large bill to be paid for doing so.In my case l reacted to the adhesive,so my site never healed and l trying to stick bags onto raw ,bleeding skin, which does not work well. In the end if l found a bag made a good attachment,l was flushing the contents out whilst still attached to me and l could get two days,maybe three before changing.

                                                                                                                               There are other types of bag that maybe work better, and belts that the pouch can be held in,but it feels like a stone age solution,and l always felt that surely a better solution could be found.All you can do now is see if you can find a better alternative to what you are using at present,which hopefully might prove a little more acceptable than you have at present,

                                                                  take care, David

Hello davey,

                   l well understand your frustrations,l was lucky to have had mine reversed after 14 months but it came with a very, very large bill to be paid for doing so.In my case l reacted to the adhesive,so my site never healed and l trying to stick bags onto raw ,bleeding skin, which does not work well. In the end if l found a bag made a good attachment,l was flushing the contents out whilst still attached to me and l could get two days,maybe three before changing.

                                                                                                                               There are other types of bag that maybe work better, and belts that the pouch can be held in,but it feels like a stone age solution,and l always felt that surely a better solution could be found.All you can do now is see if you can find a better alternative to what you are using at present,which hopefully might prove a little more acceptable than you have at present,

                                                                  take care, David

Thanks David. I too have a bleeding sore stoma. I have been given some sticky washer like things that go over the stoma and the bag fixes to that also. This does ease the pain, but I have more problems with leakage when I use them. I also empty my bag while it's still attached and like you did, get two or three days out of one bag. I also use banana shaped sticky pads that go over the edge of the bag, this gives it a little more strength. With my wife having left me, my worry is how any future partner would react. 

hello Davey,

                  l think any future partner would be starting from position with knowledge of your wearing a pouch.If they got past the first week armed with that knowledge you could be reassured of possible potential,if they walk away then there was no meaningful relationship potential to be had.And you might fall head over heels for a bucktoothed,flatulent,one legged,semi bald lady who becomes your everything!.Lifes a funny thing,so is love,and perfection is a scary thing to most people,and remember they may be worrying about their imperfections and how you would react, so stop worrying and get on and live your second chance to its full,don't worry about others,let them worry about you.

                                                                                                                  go get em tiger,

Sorry for the late reply. Thank you for your message

Sorry for the late reply. Thank you for your message.

Merry Christmas

I had my bladder x prostate x lymph nodes out 5 week ago. If it wasn't for my wife i don't know what i would do. My stomach is so swollen i cant see to put the bag on. The stoma is shrinking really fast and i am fed up of having to change my cloths 2 and 3 times a day because of the leak. I am 82 and my wife told the consultant that she didn't think i could cope with a bag and i think she is right. I couldn't live the rest of my life like this. It's not much of a life is it. 

Regards Ronnie.

Sounds terrible Ronnie. I hope it gets better for you soon. Merry Christmas

Health, wealth and happiness to you for 2023 have a good Christmas 

Regards Ronnie

And you Ronnie

Earlier this year, I was diagnosed with Bladder cancer. After TURBT, I was offered to have my bladder removed and be fitted with a stoma.    No Thank You.    I opted for Quality rather than Quantity of life. I'm now trying BCG Immunotherapy.

I had BCG 6 times and it didn't work for me. I was upset when they told me as i thought that it would cure me but was told it doesn't work for everyone. This is why i had to have the robotic radical cystectomy 6 week ago and doing very well. I have a telephone call appointment with my surgeon on the 3/1 to check up on me. The day after my op the surgeon came to my bed and said we got it all out. That is what i was wanting to hear. They gave me a year to live if i didn't have the op so i had  no option. I wanted to live for my wife and family and know i can do this. Good luck with the BCG and a merry Christmas and a happy new year. By the way i am 82 years old.

Regards from Ronnie