Hi I have just had a stool sample and it has come back abnormal calprotectin I have to repeat stool sample in two weeks. I don't know what level the calprotectin is as I only got a text of doctor's to repeat test in 2 weeks so I am worried. I will be doing repeat test next Friday any advice would be appreciated.

Ness49

Hi Jackie like you my calprotectin level is 1800, I'm told that's the cutoff point so it can be higher, mines never been low I don't think but I only have it tested in a UC fllare.

I am starting cortiment Tomorrow have you ever taken it.

My first time on oral meds and a bit apprehensive. 

You ok now as I see this is way back in February 

Take care 

Hi Jem that's a really high calprotectin level, did you find out what was causing it.

I hope you are having it checked out.

Take care 

Hi Jim did you get any answers regarding your extremely high calprotectin. 

Thats the highest I have ever heard of.

Take care and stay safe 

Your cal protectin levels are showing signs of inflammation. Up to 50 is normal, 50-200 is the mid range and over 250 is high mine was 1800 but people seem to go even higher than that.  After my post here back in February I ended up having an urgent sigmoidoscopy which showed awful inflammation of my colon. They couldn't go far as it was so had there was a rush of perforating my bowel. I tended up being admitted 5 days later for 13 days IV steroids didn't work and I have ended up on biologics - infliximab to avoid surgery. I seem to be responding to it and am still on steroids and reducing. I shall be off them in a couple of weeks.  
 

please don't worry about the colonoscopy. You may have had it by now.  Have had a problem getting onto the site to respond.  
 

im sure you will get some answers when you follow up with the consultant after your colonoscopy.  It's better if you can get a quick diagnosis and get the treatment you need if it does turn out to be IBD.  There is a crohns and colitis page on Facebook with lots of supportive people whether you get an IBD diagnosis or not so I would suggest joining if you can.

Wishing you all the best xx

Sorry I have only just been able to get back on this website. My post was the first time on here.  
 

I am sure you have now had your repeat test and got some answers from the hospital. Up to 50:is normal 50-200 mid an over 250 is high inflammation. I have read some get results in the thousands so please try not to worry. Be quicker by what the consultant says and hope you get to the cause of the issue. If it is suspected IBD (Crohn's disease, ulcerative colitis) please have a cook at the crohns and colitis group on Facebook. There's lots of support and advice there.

I wish you well.  

Hi sorry for late reply I had issues with the site as was my first time using it.  
 

I ended up in hospital on IV steroids after an urgent sigmoidoscopy showed severe inflammation in my colon, so bad they couldn't go far for fear of perforating my bowel.  I wasn't sedated so could see how bad it was myself.  They increased the prednisolone and also gave me a rectalfoam, budesonide, is that what your meds is? I haven't had a drug with that name but think it may be similar. I had  budesonide recital foam twice daily.  Unfortunately increasing steroids and the foam and within 5 days was admitted to hospital on IV steroids which also didn't work for me.  I ended up on infliximab infusions - a biologic. Very scary after years on what I considered a low risk drug for years then flaring and ending up unable to control it on a biologic.  However, despite my concern it has really helped my crohns. No longer on recital foam but reducing steroids slowly still I have had side effects which we don't know if they are caused by the infliximab or steroids as been on them since January so am being monitored and received  iv meds to prevent a reaction at my last infusion. I am beginning to think it is the steroids as symptoms still there but defo reducing as I reduce the steroids. 

please don't worry about taking medication as it is important to get any inflammation under control. Sometimes reading about the drugs can scare us silly. If you read the possible side effects of paracetamol it would scare you. All drugs carry a risk but you have to weigh up the pros and cons. Always discuss any concerns with your Ibd team.  
 

If you use Facebook there's a crohns and colitis site and support group you can join and ask questions. I have found it very helpful and informative so please have a look at that.

I do hope you have been getting on ok since you posted here and any drugs you are taking are getting on top of the inflammation  xx

Hi Jackie thank you for replying I am just waiting on my repeat stool sample to see what it comes back at  my last one was in the mid to what u have shown me. Hoping it will be ok and just a bad flare up of my IBS. Been trying gluton free foods and it seems to be improving not so much pain and the diarrhoea seems to have settled seem more constapated at the minute joys of living with IBS. Hope you are ok after ur stay in hospital it sounds like ur having a bad time at the moment. I'll let u know what my what my next results say when I get them.

Take care and wish you well 

Hey,

I found this page today after scouring google for answers. My doctor hadnt mentioned cancer, just possible IBD. Ive been suffering with the worst stomach ache i have ever had, loosing a lot of blood, nausea, ridiculous fatigue and weight loss. I have just had my cal protectin results and they are 2519. I literally feel horrendous at the moment, cant leave my house, awaiting my emergency colonscopy next week.

Did any of you guys get results in the end?

Luc