Hi having the  same problem but my fc calprotectin is 869 and i am v.worried any advice suspected IBD as well

Hi, 

hope things are better! 

I am having the same problem. Although I have been told my calprotectin levels are 150 (a lot lower than majority on here). However I also have Fibromylagia & Diabetes. All of this is just making it so difficult for me to cope. What are you doing to help lower the calprotectin levels? Has anything helped? 

Hi everyone,

It's been a comfort to read your stories on this thread. I have been borderline with IBS/IBD for ten years now - with several examinations always just missing the needed evidence. After a brief period of remission, I have symptoms again. This time in keeping with a polyp. I had one removed three years ago, I was 37. I found out last week that my Calpro is at 1541 (!!) highest I've ever known it. And my occult blood was....... 400ug. This, I am very worried about - but I'm NOT anaemic. Get that, weird. Have been working as a Keyworker but managing. Waiting on my Colonoscopy now.

Wishing you all the best care and powerful healing possible. 

Peace, Tx

I was really ill starting Xmas morning with nausea, stomach cramps and diarrhoea. This went on for 5 days, I was then fine for a week and the same again!!

The doctor did blood tests and my inflammation markers were slightly raised to 17, my platelets were slightly elevated and I did a stool test which has showed high inflammation. (I am not sure how high I didn't think to ask as I was panicking so much).
I have had the worst anxiety and been taking Sertraline for just over 3 weeks, I am starting to feel like myself now.
I have been having 1 loose stool every morning without pain or cramping and then fine for the rest of the day but I’m not sure if it’s my anxiety.
The doctor wants me to have a colonoscopy which I really do not want, I have been referred to the gastroenterologist but my appointment isn’t until July!!
I was signed off work for 4 weeks and they are arranging some CBT for health anxiety.
I am taking a fermented turmeric supplement to hopefully bring down the inflammation myself and ask for a repeat test to avoid the camera.

I have had no cramps now for over 5 weeks, no blood etc but because my stools are quite loose I keep worrying about the change in bowel habits and obviously the high stool result. The stool sample was taken when I was having an ill episode and couldn't stop going to the toilet.

I feel well in myself and have started eating properly again now, I am really scared of having a colonoscopy but I am also worried that I might have bowel cancer. 
I am 32 so the dr said it's highly unlikely but I have read a lot online about young bowel cancer diagnosis it's really hard not to google.

Have the Colonoscopy - it's not as bad as you think. They need to see what's going on and then you'll get a definite confirmation of what's causing the problem. The Prep part isn't great - but hey, we're all used to that. Seriously, if I had been offered one sooner - I would've taken it. Good luck. 

Hi,

It is good to read everyone's posts and to know I'm not alone! I've been suffering with my stomach for around 10 years. I was diagnosed with Crohns by one consultant and put on meds and also a 6 weekly infliximab drip. I was also  booked in for a resection but the surgeon couldn't find anything when he went in. I have constant pain, every day and regular nightly flare ups, where I am doubled up in pain. My recent calprotectin was 1,147.  I'm just waiting for an appointment to find out what will happen next. I dread going back on meds (for some reason, the hospital took me off all meds when I was in remission )

For anyone who is worrying about a colonoscopy, please don't. I had one a couple of years ago (for no reason, they needed to look at my stomach and even I know that's not how you get there...but I'm no doctor so I went along with it!). The worst part for me was the prep - 2l of laxatives certainly gives 'ring of fire' an interesting meaning. The colonoscopy itself was straightforward and whilst I appreciate I had no fissure/haemorrhoids/inflammation etc, it was not painful. I opted to have no pain relief and whilst I felt like an extra out of Alien, it was ok. A few deep breaths as they negotiated 'corners' but otherwise, I'm glad I was able to leave as soon as it was over. That was my main reason for not wanting meds, I didn't want to have to stick around afterwards! 
 

I have just heard that I have raised calprotectin but I do not yet know to what extent - I have a gp appointment 9th April so it looks like a 9 day, anxiety filled wait for me. I have had various issues lately so went to the drs as soon as I noticed my stool wasn't normal (for me) which was only about 2 weeks ago, though who knows how long it's been like it without me noticing! I have excessive mucus, with each stool starting off absolutely solid then turning much softer by the end of the movement. I feel very tired, my back aches, I am bloated and get cramps. I also have no appetite and some serious nausea. Naturally I went on dr google so of course I am panicking! I should say that my bloods came back fine, but I know this doesn't always mean much. I'm hoping my appointment with the gp results in a referral for a colonoscopy/scan of sorts. I shal just have to wait and see I guess! 

For anyone who is worrying about a colonoscopy, please don't. I had one a couple of years ago (for no reason, they needed to look at my stomach and even I know that's not how you get there...but I'm no doctor so I went along with it!). The worst part for me was the prep - 2l of laxatives certainly gives 'ring of fire' an interesting meaning. The colonoscopy itself was straightforward and whilst I appreciate I had no fissure/haemorrhoids/inflammation etc, it was not painful. I opted to have no pain relief and whilst I felt like an extra out of Alien, it was ok. A few deep breaths as they negotiated 'corners' but otherwise, I'm glad I was able to leave as soon as it was over. That was my main reason for not wanting meds, I didn't want to have to stick around afterwards! 
 

I have just heard that I have raised calprotectin but I do not yet know to what extent - I have a gp appointment 9th April so it looks like a 9 day, anxiety filled wait for me. I have had various issues lately so went to the drs as soon as I noticed my stool wasn't normal (for me) which was only about 2 weeks ago, though who knows how long it's been like it without me noticing! I have excessive mucus, with each stool starting off absolutely solid then turning much softer by the end of the movement. I feel very tired, my back aches, I am bloated and get cramps. I also have no appetite and some serious nausea. Naturally I went on dr google so of course I am panicking! I should say that my bloods came back fine, but I know this doesn't always mean much. I'm hoping my appointment with the gp results in a referral for a colonoscopy/scan of sorts. I shal just have to wait and see I guess!