Hi having the  same problem but my fc calprotectin is 869 and i am v.worried any advice suspected IBD as well

Hi Anna

im in roughly the same area as you, I've been having bowel issues for around 3 years and had a sigmoidoscopy and ct colonoscopy in that time with normal results. Originally I had a calprotectin test which was within normal range at 48 but just after Christmas had a terrible bout of watery diarrhea that even loperamide didn't treat. Had another calprotectin test and the result has really shocked me at 860 so I've been referred for an urgent colonoscopy next week. I feel like I'm in turmoil and never been so scared. I'm 50 but I'm terrified of the results. 
 

David 

Hi Anna,

Really pleased that it's not shown anything obvious also good to know you got through the endoscopy too !!! Fingers crossed that the biopsies taken don't show anything sinister too. Have a well deserved rest now after your ordeal today. 
 

Best Wishes 

David 

Hi David, I hope you have now had your referral and got some answers.
 

My faecal calprotectin level is 1800.  I have had Crohn's disease for 20 years. (I am now 57) I had been in remission with meds (Pentasa) for quite a few years but despite increasing these recently am now in full flare and back on prednisolone. The steroids aren't fully controlling my symptoms and having to shield because of COVID-19 as classed as high on the vulnerable list due to the meds. Hoping for the vaccine soon and that I can get off the steroids.

If you or anyone else has any questions relating to IBD please feel to ask me.

Anyone know what a 3305 calprotectin may mean, it kinda shocked me how high it was today. I hope everyone has got answers and the Colonoscopies are not as bad as they sound. 

All the best. 

Jem 

Good Afternoon, 

I had a second Calprotection test done recently and it was over 3000 but it seems odd as I really don't have any pain or if any symptoms of IBD. I am wondering if the test result is wrong because the first result was only borderline at 173.  I have a Colonoscopy booked in March and I am really anxious, I feel like they aren't going to find anything to be honest it's all been a bit strange!.

Any words of comfort or advice would be appreciated :) 

Jem 

Hello everyone. 
 

I am slightly worried my calprotectin levels are about 650 and I  am booked in for a colonoscopy, but i am only 19. I'm scared as the doctors think it's a form of IBD, and also I'm scared for the colonoscopy. 
please feel free to drop any advice. Thank you 

Hi

im going through the same thing , have you had your colonoscopy? Thank you 

Hello

no not yet i rang the hospital after i got my referral from the doctors and they said the waiting list is quite long and that they would contact me as to when i can get booked it. It's such a long wait not knowing. 

Still waiting for my colonoscopy date to come through. It will be 2 weeks on Wednesday since I saw my gastroenterologist, was kind of hoping that I would of had a date by now, especially considering that my gastro put this through as an urgent.

On the positive side, my mri date came through and that's on the 12th April. Though I'm not entirely sure what an mri is going to show in regards to crohns/IBD.

My calprotectin level of 5200 is just playing on my mind so much. The waiting is almost unbearable : ( 

What's your symptoms guys? 

Hi I have just had a stool sample and it has come back abnormal calprotectin I have to repeat stool sample in two weeks. I don't know what level the calprotectin is as I only got a text of doctor's to repeat test in 2 weeks so I am worried. I will be doing repeat test next Friday any advice would be appreciated.

Ness49

Hi I have just had a stool sample and it has come back abnormal calprotectin I have to repeat stool sample in two weeks. I don't know what level the calprotectin is as I only got a text of doctor's to repeat test in 2 weeks so I am worried. I will be doing repeat test next Friday any advice would be appreciated.

Ness49

Sorry I have only just been able to get back on this website. My post was the first time on here.  
 

I am sure you have now had your repeat test and got some answers from the hospital. Up to 50:is normal 50-200 mid an over 250 is high inflammation. I have read some get results in the thousands so please try not to worry. Be quicker by what the consultant says and hope you get to the cause of the issue. If it is suspected IBD (Crohn's disease, ulcerative colitis) please have a cook at the crohns and colitis group on Facebook. There's lots of support and advice there.

I wish you well.  

Hi Jackie thank you for replying I am just waiting on my repeat stool sample to see what it comes back at  my last one was in the mid to what u have shown me. Hoping it will be ok and just a bad flare up of my IBS. Been trying gluton free foods and it seems to be improving not so much pain and the diarrhoea seems to have settled seem more constapated at the minute joys of living with IBS. Hope you are ok after ur stay in hospital it sounds like ur having a bad time at the moment. I'll let u know what my what my next results say when I get them.

Take care and wish you well