Hi having the  same problem but my fc calprotectin is 869 and i am v.worried any advice suspected IBD as well

Hi Anna

im in roughly the same area as you, I've been having bowel issues for around 3 years and had a sigmoidoscopy and ct colonoscopy in that time with normal results. Originally I had a calprotectin test which was within normal range at 48 but just after Christmas had a terrible bout of watery diarrhea that even loperamide didn't treat. Had another calprotectin test and the result has really shocked me at 860 so I've been referred for an urgent colonoscopy next week. I feel like I'm in turmoil and never been so scared. I'm 50 but I'm terrified of the results. 
 

David 

Good Afternoon, 

I had a second Calprotection test done recently and it was over 3000 but it seems odd as I really don't have any pain or if any symptoms of IBD. I am wondering if the test result is wrong because the first result was only borderline at 173.  I have a Colonoscopy booked in March and I am really anxious, I feel like they aren't going to find anything to be honest it's all been a bit strange!.

Any words of comfort or advice would be appreciated :) 

Jem 

Hello everyone. 
 

I am slightly worried my calprotectin levels are about 650 and I  am booked in for a colonoscopy, but i am only 19. I'm scared as the doctors think it's a form of IBD, and also I'm scared for the colonoscopy. 
please feel free to drop any advice. Thank you 

Hi

im going through the same thing , have you had your colonoscopy? Thank you 

Hello

no not yet i rang the hospital after i got my referral from the doctors and they said the waiting list is quite long and that they would contact me as to when i can get booked it. It's such a long wait not knowing. 

Still waiting for my colonoscopy date to come through. It will be 2 weeks on Wednesday since I saw my gastroenterologist, was kind of hoping that I would of had a date by now, especially considering that my gastro put this through as an urgent.

On the positive side, my mri date came through and that's on the 12th April. Though I'm not entirely sure what an mri is going to show in regards to crohns/IBD.

My calprotectin level of 5200 is just playing on my mind so much. The waiting is almost unbearable : ( 

What's your symptoms guys? 

Hi I have just had a stool sample and it has come back abnormal calprotectin I have to repeat stool sample in two weeks. I don't know what level the calprotectin is as I only got a text of doctor's to repeat test in 2 weeks so I am worried. I will be doing repeat test next Friday any advice would be appreciated.

Ness49

Hi Jackie like you my calprotectin level is 1800, I'm told that's the cutoff point so it can be higher, mines never been low I don't think but I only have it tested in a UC fllare.

I am starting cortiment Tomorrow have you ever taken it.

My first time on oral meds and a bit apprehensive. 

You ok now as I see this is way back in February 

Take care 

Hi Jem that's a really high calprotectin level, did you find out what was causing it.

I hope you are having it checked out.

Take care 

Your cal protectin levels are showing signs of inflammation. Up to 50 is normal, 50-200 is the mid range and over 250 is high mine was 1800 but people seem to go even higher than that.  After my post here back in February I ended up having an urgent sigmoidoscopy which showed awful inflammation of my colon. They couldn't go far as it was so had there was a rush of perforating my bowel. I tended up being admitted 5 days later for 13 days IV steroids didn't work and I have ended up on biologics - infliximab to avoid surgery. I seem to be responding to it and am still on steroids and reducing. I shall be off them in a couple of weeks.  
 

please don't worry about the colonoscopy. You may have had it by now.  Have had a problem getting onto the site to respond.  
 

im sure you will get some answers when you follow up with the consultant after your colonoscopy.  It's better if you can get a quick diagnosis and get the treatment you need if it does turn out to be IBD.  There is a crohns and colitis page on Facebook with lots of supportive people whether you get an IBD diagnosis or not so I would suggest joining if you can.

Wishing you all the best xx

Your cal protectin levels are showing signs of inflammation. Up to 50 is normal, 50-200 is the mid range and over 250 is high mine was 1800 but people seem to go even higher than that.  After my post here back in February I ended up having an urgent sigmoidoscopy which showed awful inflammation of my colon. They couldn't go far as it was so had there was a rush of perforating my bowel. I tended up being admitted 5 days later for 13 days IV steroids didn't work and I have ended up on biologics - infliximab to avoid surgery. I seem to be responding to it and am still on steroids and reducing. I shall be off them in a couple of weeks.  
 

please don't worry about the colonoscopy. You may have had it by now.  Have had a problem getting onto the site to respond.  
 

im sure you will get some answers when you follow up with the consultant after your colonoscopy.  It's better if you can get a quick diagnosis and get the treatment you need if it does turn out to be IBD.  There is a crohns and colitis page on Facebook with lots of supportive people whether you get an IBD diagnosis or not so I would suggest joining if you can.

Wishing you all the best xx

Hello. I've just been scanning through this whole conversation. I was diagnosed with UC in 2009. Been happily in remission for most of that. Then I started getting constipated whilst pregnant with my daughter. She is now 3.5 yes old. Been getting all sorts of changeable BM , have been using laxitives and all sorts. Then Sept last year I started getting really really foul smelling flatulance and symptoms worsened. Had FC come back at >700 in Nov, >900 in January 2021 and just last week they came back as >7000.

I'm in so much pain and discomfort but they don't seem too concerned because I've a history of UC but those levels scream CRC to me.

Does anyone have any further information or have a CRC diagnosis after FC levels that high?

Please help, I'm freaking out.

TIA Sam