Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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  • Hi Lindy, I have been on tamoxifen for 6 years now and I feel like I'm an old woman. I ache from head to toe and when I touch my muscles they are so painful. The hot sweats don't come at night time anymore but they do in the day time and it's embarrassing at work to have sweat dripping off my nose. The tamoxifen is my safety net and I don't want to let go. I just don't know what to do. 

  • Hi dawn

    check in with your oncologists & tell them how you feel.I am exactly the same feeling like an old woman like I can hardly move came off tamoxifen & felt a bit better although not 100% because it stays in your system                Take care

    lindy-Lou x

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