Hi I feel exactly the same as you and I am also on tamoxifen, I feel this is actually worse than the treatment. I have been trying short walks and feel it's a struggle. My legs are sore and soles off my feet and my fingers. I feel some days are worse than others. I feel it definitely changes you. I also feel the mood swings are terrible too. I hope you are feeling better since your last post

Hi I feel exactly the same as you and I am also on tamoxifen, I feel this is actually worse than the treatment. I have been trying short walks and feel it's a struggle. My legs are sore and soles off my feet and my fingers. I feel some days are worse than others. I feel it definitely changes you. I also feel the mood swings are terrible too. I hope you are feeling better since your last post

Hi ladies, 

I was diagnosed with hormone receptive breast cancer in March last year (2019), Had a lumpectomy, chemo and radiotherapy and started Tamoxifen in mid November. 

I am now at the point of telling my oncologist that I can't take it anymore as the side effects are so debilitating. There's no let up from the hot flushes which make me feel sick and dizzy and the joint pain and tiredness are relentless. I'm still trying to process the cancer journey but the Tamoxifen is making things worse, I will be speaking to my oncologust on Monday and I'm going to suggest Clonodine. If he can't give me anything to help mitigate these awful supmtoms, I have to ditch the Tamoxifen for my sanity. 

Take care all 

Michelle 

was diagnosed with hormone receptive breast cancer in May 2015, Had dbl mastectomy , chemo and radiotherapyand a hysterectomy. I took a hormone inhibitor ( can't remember the name as my memory is so bad) for 5 years and started Tamoxifen in March this year - I am in agony, every joint in my body aches and the muscles in my legs hurt so much, I am exhausted all of the time, 

I am also at the point of telling my oncologist that I can't take it anymore but I am terrified to come off it.as Luckily I don't get hot flushes but I feel miserable - I don't know how I can stay on this for another four and a half years.

Tammy M

Hi Michelle

Gosh, I feel I could have written your post - exactly the same.  I started on anastrozol but couldn't cope with the joint pain so was moved to tomoxifen. Joint pain is still there though not quite so debilitating but the hot flushes are getting to me so much.  Also, I read that weight gain is a problem and I really need to lose weight as I have developed a heart problem.   

I think ill contact the Oncologist and see what she can suggest.  I just want some normality back.

Sue

Hi Michelle, I had same treatment and was also prescribed tamoxifen. It's really affecting me and I really am considering coming off it. Just wondering if you came off it and if you were given an alternative. I work with children so I'm bending down a lot and it really is a struggle.

Hi Suziewong,

Have a chat with your oncologist about alternatives and see what s/he says. There are a few alternatives, but all come with their own set of side-effects. I moved on to Letrozole from Tamoxifen, but found this harder on my joints. However, it was better for my emotional state.

Please don't just stop, talk to your care team first. You could always phone up your breast care nurse to discuss this.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx