Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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  • Hi .. I have been taking Tamoxifen since January and have just started get cramp, for want of a better word, in my calf muscles and my feet.  It wakes me up a couple of times a night with a pain that feels like the muscle is going to burst.  It was quite frightening the first few times.  At least I now know it's probably the medication!  I also suffer from hot flushes regularly - day and night - and then i get so cold I'm shivering.  Friends suggested a lady magnet that you can use for menopausal symptoms but it's not really working for me ...  Best wishes to everyone else experiencing this 

  • Hi KTT

    sorry to hear of your troubles 

    is I said in my bio I took tamoxifen for around

    8 years not thinking that half of the problems I

    had were caused by it. I also think quite a few

    of my problems were caused by the menopause 

    also. Since stopping the tamoxifen my hot flushesh

    have almost stopped, although the knee & calf pain is just as bad but after watching an arrtical on this 

    morning with some menopause experts they say 

    that in perry menopause you can loose 20%

    of your strength so need to build upper & lower 

    body strength to get it back & arthritis is where the pain comes from that we get during the early days of tamoxifen taking ..

    so we need to build it back up in order to iliminate

    The pain

    good luck 

  • Hi, I’ve been on tamoxifen for 8 years now and have been ok until about 6 months ago I’m experiencing leg pain and hot flushes are really bad, weight gain and aching joints.

     

    my problem is I am premenopause so I’m not wanting to come off tamoxifen so I have another 2 years to go but things are getting worse.

    Not sure what I can do about these things ?

     

  • To apples you can only judge by your pain levelsspeak to your oncologist nurse let them know what’s going on from what I’ve read tamoxifen has benefits of up to 15 years cover when you’ve taken it for 5 years but they are not sure about the amount of extra coverage you get with 10 years as they have only started asking people to take it for 10 years recently take care 

    Lindy-Lou x

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  • To apples you can only judge by your pain levelsspeak to your oncologist nurse let them know what’s going on from what I’ve read tamoxifen has benefits of up to 15 years cover when you’ve taken it for 5 years but they are not sure about the amount of extra coverage you get with 10 years as they have only started asking people to take it for 10 years recently take care 

    Lindy-Lou x

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