Autistic Daughter and cancer

Hello 

I'm Mum to a 22yr old daughter who has Severe Autism  she is non verbal and needs 24 7care .

She has Just been diagnosed with Lymphoma after a huge lump appeard on her breast (the Biopsy on her breast is inconclusive) , 

(They had two attempts at doing a biopsy before they listened to her carers and put her under to do the biopsy)

we are currently waiting for a full ct scan so find out how good or bad everything is going to be.

I was hoping that perhaps some body on this forum may have had experience of dealing with Special needs people and in particular Autism and cancer and may be able to give us some pointers.

It's still all very much in the early stages for us we still dont even know what type of Lymphoma she has.

any advice would be gladly recieved,

Thankyou x

 

Parents
  • Welcome to the forum confudulated although I'm really sorry to read that your daughter has been diagnosed with lymphoma.

    I know you're looking for some tips and advice on how to help your daughter through this so I just wanted to give you our cancer nurses telephone number in case you wanted to discuss your daughter's situation with them. Their freephone number is 0808 800 4040 and are available Monday - Friday between 9a.m - 5p.m so do give them a call when you can as they will do all they can to help you and your daughter at this time.

    I know you said it's still in the early stages but I thought I would share the information we have about lymphoma on our website in case you'd like to find out more.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Thank you ,,

    My daughter goes in for a 2nd biopsy on her breast lumpy tomorrow fingers crossed this will give us a better idea of what came first the Lymphoma or the breast lump.

  • Good luck confudulated for your daughter's biopsy tomorrow. I hope it goes well. I thought I'd stop by and also let you know that your story reminded me of that of [@serendipityb]‍ whose brother was diagnosed with advanced testicular cancer whilst having severe learning difficulties requiring daily care. I think she would be a great person for you to chat to as she has been through this before and I remember it was very difficult for her brother to receive any treatment without a general anaesthetic.

    I hope she will see your message and give you some pointers on what to expect as I think she would understand exactly how you are feeling at the moment, the complexities of the emotions involved in supporting loved ones who may not be aware of their cancer diagnosis or find it difficult to understand thereby making treatment harder to face for everyone involved. You can see [@serendipityb]‍ 's profile here and her initial thread here.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • hi I have just seen myself mentioned. I hope your daughter is doing ok.

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