Autistic Daughter and cancer

Hello 

I'm Mum to a 22yr old daughter who has Severe Autism  she is non verbal and needs 24 7care .

She has Just been diagnosed with Lymphoma after a huge lump appeard on her breast (the Biopsy on her breast is inconclusive) , 

(They had two attempts at doing a biopsy before they listened to her carers and put her under to do the biopsy)

we are currently waiting for a full ct scan so find out how good or bad everything is going to be.

I was hoping that perhaps some body on this forum may have had experience of dealing with Special needs people and in particular Autism and cancer and may be able to give us some pointers.

It's still all very much in the early stages for us we still dont even know what type of Lymphoma she has.

any advice would be gladly recieved,

Thankyou x

 

Parents
  • Hi I really feel for you. My autistic son has also just been diagnosed with lymphoma. He does have full use of language but never complains of pain. He has enlarged lymph nodes in several places and enlarged spleen and liver. He has also had to have a bone marrow biopsy and has only complained about the latter. Its hard trying to make him really understand even though he trawls the net relentlessly. Is there a link between autism and lymphoma as I have heard of several cases

    Hope your daughters treatment goes well

    Sarah-jayne

Reply
  • Hi I really feel for you. My autistic son has also just been diagnosed with lymphoma. He does have full use of language but never complains of pain. He has enlarged lymph nodes in several places and enlarged spleen and liver. He has also had to have a bone marrow biopsy and has only complained about the latter. Its hard trying to make him really understand even though he trawls the net relentlessly. Is there a link between autism and lymphoma as I have heard of several cases

    Hope your daughters treatment goes well

    Sarah-jayne

Children
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