Autistic Daughter and cancer

Hello 

I'm Mum to a 22yr old daughter who has Severe Autism  she is non verbal and needs 24 7care .

She has Just been diagnosed with Lymphoma after a huge lump appeard on her breast (the Biopsy on her breast is inconclusive) , 

(They had two attempts at doing a biopsy before they listened to her carers and put her under to do the biopsy)

we are currently waiting for a full ct scan so find out how good or bad everything is going to be.

I was hoping that perhaps some body on this forum may have had experience of dealing with Special needs people and in particular Autism and cancer and may be able to give us some pointers.

It's still all very much in the early stages for us we still dont even know what type of Lymphoma she has.

any advice would be gladly recieved,

Thankyou x

 

Parents
  • Hi,

    Sorry to read about your daughter's situation. I'm Dad to a 30 year old non-verbal young man with autism and severe learning difficulties and I can only imagine what you're going through.

    He doesn't have cancer, but when he had a CT scan for a head injury, it had to be done under general anaesthetic due to his anxiety and hyperactivity. All I can suggest is you make sure everyone in your daughter's care is aware of the autism to ensure they have the chance to make appropriate adjustmrnts to their standard care packages.

    Good luck and best wishes

    Dave 

     

  • Because she hardly sleeps and needs 24 / 7 care she is now living in a fabulous care home that have an amazing suppost system the specialist pshycologist is working out a story board to hopefully explain eveything to our daughter But its a major learning curve for us and the doctors.

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