Hi,

Sorry to read about your daughter's situation. I'm Dad to a 30 year old non-verbal young man with autism and severe learning difficulties and I can only imagine what you're going through.

He doesn't have cancer, but when he had a CT scan for a head injury, it had to be done under general anaesthetic due to his anxiety and hyperactivity. All I can suggest is you make sure everyone in your daughter's care is aware of the autism to ensure they have the chance to make appropriate adjustmrnts to their standard care packages.

Good luck and best wishes

Dave 

Hi ... how crule is life ... my heart goes out to you and your baby ... it's hard enough when we know what's happening ... so wish l could do or say more ... but at least Dave can empathize, ... so just sending you both a big hug ... Chrissie

Thank you, 

its going to be a bit of a bumpy ride but I’m sure 

we’ll get there.

Thank you x

Because she hardly sleeps and needs 24 / 7 care she is now living in a fabulous care home that have an amazing suppost system the specialist pshycologist is working out a story board to hopefully explain eveything to our daughter But its a major learning curve for us and the doctors.

Welcome to the forum confudulated although I'm really sorry to read that your daughter has been diagnosed with lymphoma.

I know you're looking for some tips and advice on how to help your daughter through this so I just wanted to give you our cancer nurses telephone number in case you wanted to discuss your daughter's situation with them. Their freephone number is 0808 800 4040 and are available Monday - Friday between 9a.m - 5p.m so do give them a call when you can as they will do all they can to help you and your daughter at this time.

I know you said it's still in the early stages but I thought I would share the information we have about lymphoma on our website in case you'd like to find out more.

Kind regards, 

Steph, Cancer Chat Moderator

Thank you ,,

My daughter goes in for a 2nd biopsy on her breast lumpy tomorrow fingers crossed this will give us a better idea of what came first the Lymphoma or the breast lump.

Hi I really feel for you. My autistic son has also just been diagnosed with lymphoma. He does have full use of language but never complains of pain. He has enlarged lymph nodes in several places and enlarged spleen and liver. He has also had to have a bone marrow biopsy and has only complained about the latter. Its hard trying to make him really understand even though he trawls the net relentlessly. Is there a link between autism and lymphoma as I have heard of several cases

Hope your daughters treatment goes well

Sarah-jayne

Good luck confudulated for your daughter's biopsy tomorrow. I hope it goes well. I thought I'd stop by and also let you know that your story reminded me of that of [@serendipityb]‍ whose brother was diagnosed with advanced testicular cancer whilst having severe learning difficulties requiring daily care. I think she would be a great person for you to chat to as she has been through this before and I remember it was very difficult for her brother to receive any treatment without a general anaesthetic.

I hope she will see your message and give you some pointers on what to expect as I think she would understand exactly how you are feeling at the moment, the complexities of the emotions involved in supporting loved ones who may not be aware of their cancer diagnosis or find it difficult to understand thereby making treatment harder to face for everyone involved. You can see [@serendipityb]‍ 's profile here and her initial thread here.

Best wishes,

Lucie, Cancer Chat Moderator

hi I have just seen myself mentioned. I hope your daughter is doing ok.